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Has anyone had a sleep study done?
I am having trouble getting any sleep and I figure it's all the treatment, side effects, etc. But I'm wondering if a study would be a waste of time? Anyone had any luck? Or, how have you gotten sleep short of sleeping pills?
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Copy and paste
I keep getting these FB posts about cancer. They ask you to copy and paste to show that you support someone with cancer. How do you feel about these.? As a cancer survivor and the widow of a cancer victim I don’t do these things. I appreciate the thought behind it but I hate to make anyone feel guilty for they way they…
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I am getting to that point where I can't taste much or what I do tastes terrible.
How long does this last or when will my taste come back?
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I received an estimate on the total cost of my surgery and hospital stay yesterday as a part of my i
This estimate is based on a 3-day stay, I've already been told that I will be there 7 to 10 days, or whatever it takes until I get well. So this estimate is in error to start with, but here is what it is. $232,000.000 Sor we can safely say 250,000 to 500,000. So at this point, I'm just considering all of this to be like we…
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Stage 4 how long will I last?
Stage 4 how long will I last?
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How much is a life worth? How high can medical expenses continue to rise?
I am thinking about this today. My most recent bill of over 28k for an hour or less in OR for a biopsy in my throat. The doctor told me she expected it to be a 10 minute procedure. I think it went longer since they found malignant material, but still, I was in and out an in the recovery in an hour. My next surgery I expect…
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I noticed Taylor Swift has revealed that her mom has a brain tumor.
There is an article about it here. Of course there are many. and this is Another case of it doesn't matter who you are or how much money you have cancer shows no prejudice. https://www.nydailynews.com/snyde/ny-taylor-swift-mom-brain-tumor
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Our January Newsletter is out and you should get it in your inbox of the email address that you used
If you don't get it automatically, your email provider is blocking it as spam. Please check your spam folders and move the email into your inbox, or mark it "Not Spam", or something similar based on your email providers way of sorting.
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Have any of you heard of the drug Someta?
It's supposed to help with strengthening your bones?
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How to know if it’s back ? Would an MRI help?
I already posted my symptoms, and thank you that answered me(I kinda knew I need to see a doctor , but now brings another question? I ... think I should see my oncologist I have had already??? But I am wondering how would I get an MRI on my own first???? Thanks!!’n
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How to get back to eating after surgery?
My husband had surgery 5 months ago and is still not eating. He will only drinks protein drinks and creamed soup. Any advice to get him to start trying would be great! He passed a swallow test and the therapist have tried to encourage him but no luck! I'm getting frustrated with his weight loss. He doesn't have a feeding…
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My latest blog post about my latest diagnosis. It sounds like the kid on the corner hawking Newspape
I have had a lot of people that have said things like I don't deserve to have to go through this again, how do you do it, why has this burden been put on you again, I'm sorry that your life has been ruined, (true story), and a number of similar statements. It got me to think about how my life isn't ruined and that there…
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Megase (MEGESTROL ACETATE)
Has anyone taken this drug as a hormone blocker and what side effects have you experienced. I’ve read the literature and it’s scary.
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Sore Elbow
I was dx with NCSC a year ago and had surgery to remove the mass followed by Rad Tx to the nasal cavaity and paranasal sinuses. There were no mets found at the time via a PetCT prior to the surgery and one done 3 months after Rad Tx. This month I developed a soreness in my rt elbow . after recieving a second Shingles shot…
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After partial lobectomy for Adenocarcinoma Stage 1A, 13 months ago experiencing discomfort
13 months ago I had upper left upper lobe removed. Now after 13 months I am experiencing discomfort around the area, waking me up at night and uncomfortable when I cough. Is this normal? Also experiencing upper back ache.
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Tomorrow is the first of my two dates I'm waiting for, we go to see my onco ENT surgeon for pre-op q
After the surgeon's appointment, we go to speech pathology to get information on what's to be expected and how I might be able to talk again. I'm in the dark on that one, so we will just see. I have a box full of questions for her, I might get tossed out of her office. Things I want to know are: How long will this surgery…
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What would your "last meal" be?
As my surgery date gets closer and closer Donna keeps telling me to give her a list of things I want to eat before that date, because we don't know how long I'll be on a feeding tube. Worst case scenario is I never eat and swallow again. (I don't for a minute expect that) I feel sort of like someone on death row waiting…
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Our blog post today is from Ms. JaneA, What To Say To The Newly Diagnosed
This topic came up many times with my recent diagnosis. People that I've known for years went stone cold and silent when I told them that I had cancer again. Why? Because most people just don't know what to say, it's an awkward moment. Ms. Jane and I thought it was a good time to put up some tips on what to say and how to…
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My doctor said they can't give anything that will stop the pain in bones.
There might not be a pill or pain killer but I know people often find other things that work. Have any of you found something that will help with bone pain?
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Baroreflex failure years after radiation
I had tongue cancer 6 years ago and went through chemo (cisplatin) and radiation (36 treatments). Now, after being cancer-free for 6 years, My blood pressure has gone off the rails. I have been hospitalized twice in the past two months and the doctors have diagnosed my condition as being "baroreflex failure", caused by the…
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Nerve Pain from portacath (removed 8 years ago!)
My 14 year old daughter has been cancer free for 8 years now. About every 3 months she has massive nerve pain where her portacath was located in her chest. It hurts and bothers her so much that she doesn't sleep much at all for the entire week. We are wondering if there is anyone else who has dealt with this. Not sure if…
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How bad do you have to get before you are considered disabled?
I am still able to work now, but if these side effects continue to compound and if something else pops up that makes me unable to work I could be in real trouble. We don't have hundreds of thousands of dollars in the bank, I work a real job for a living and if I can't work I have a problem worse than the cancer. What,…
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I had the best surprise yesterday. Some old friends got together and dropped by to see me.
A group that we all went to school with years ago and have kept in touch with ever since. All of them stopped by our house out of the blue and presented us with 2,500.00 in cash to help with expenses getting back and forth to dr., and treatments, co=pay, etc. I was overcome with emotions. I don't think I've ever felt that…
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Port or not?
Should I have a port incerted when I have my surgery. Chemo doctor said I was having only 3 sessions. So is it worth putting a port in or just using my veins.
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I am still seeing people that I've known for years that didn't know I have been diagnosed
When I tell them about it some of them just get a blank stare in their face. Some say that they don't know what to say. I can tell that they are not comfortable talking about it. This seems strange to me. I am the one with the cancer, not them so they shouldn't feel bad. What do you say to people when you can tell that…
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If you lost your taste, how long did it take to lose it?
Then, after treatments are over how long will it take to come back? I have mostly lost it now and that makes eating just a going through the motions thing. I don't even want to eat anything either. My appetite has left with the taste.
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Today's blog post has some good information and resources for financial assistance
Lack of money to pay for the never ending expenses is a side effect of cancer that we can't get away from and there's no pill we can take to fix it. Help is what we need. Here are a few resources, and a link to our existing resources page that has tons of places that offer help in different forms for cancer patients.…
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Thoughts on medical or recreational marijuana?
I was just reading the comments on alcohol consumption and that started me thinking about mj. Medical is very difficult to get in Northern New York. There's, like, one dispensary up here and it's miles and miles and no doctors are authorized to prescribe. I personally think every oncology unit should have someone in staff…
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If you successfully reach the end of treatments...
How often do you go back to your doctor for checkups to monitor if you are having a recurrence? I am not liking the idea of not seeing my doctor every month.
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Do you have to do any of the "leg work" in filing your claims, or does your facility/doctor's office
We have heard from some people that they are being given some what of a run-around in getting their claims filed and are being asked for itemized bills and other documents. How is your claims experience?
