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Celebration | Relief At Minimal Treatment
After thinking initially that I would have to undergo radiation, that was off the table when we decided to move forward with mastectomy. After getting news that there was no evidence of spreading to the sentinel nodes, that was another relief. After the Oncotype DX score came back low and my oncologist said we would just…
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Procedure or Surgery | Sentinel lymph node biopsy
Sentinel Node biopsy was done at the same time as the mastectomy. I really didn't know people did it at another time. So I just thought it was part of the deal with the mastectomy.
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Recurrence treatment decision inquiry
Hi everyone, a family member recommended this network and I have joined in hopes to share my experience and obtain thoughts from others going through the same. I have a diagnosis of Endometrial Serous Carcinoma stage IV. I heard news that my cancer has come back after going through the first line of treatment options which…
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Clinical Trial | inhibitor of cyclin D1/CDK4 and CDK6
Started Sept 2020. This is a trial of ribociclib combined with Femara. Only side effects so far are fatigue. 2 women are on this trial at our facility; the other woman had to reduce the dosage due to her lab values. As of Oct 22 Pat's labs values are still reasonable., CA-125 reduced from 327 to 307---not great, but down.
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What to do next...
What to do next
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Clinical Trials
Are there clinical trials being done for metasticized triple negative cancer
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Prayers for Greg
I usually check out the What's Next Digest when I first open my computer, and I am always a little disappointed when it skips a day. But, now, I find myself being disappointed when there is still no post from Greg. It has been 20 days since he left a word here about the stomach tube craziness. I know we are ALL concerned…
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Trelstar
Hi All, I'm trying to get any info on Trelstar. Due to the shortage of Lupron Depot my Oncologist wants me to start taking it. I've been on Lupron for 4 1/2 yrs. I was hoping to be off of it. My Ca27.29 us up and down. I'm use to being 41 or 42. I've gone up to 67, had pet scans. watched everything I did. Got it down to…
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CT results
I promised I'd add in my CT results. Had a virtual appt with my oncologist this morning. Looks good. There are a couple of areas we'll keep an eye one -- diaphragm and right adrenal gland -- but we've been keeping an eye on those since 2012. I forget what exactly is up with the diaphragm. I've known about the cyst on top…
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Prostate Cancer Radiation
Do any of the Prostate folks have a good resource for a beginner's guide to this topic? I have a friend who is trying to figure out how to help her Dad through this, he seems to be Stage 1 but not totally sure. She said he is having radiation with spacers and markers. Thanks in advance!
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Not Forgotten
We all tend to get focused on certain situations at times and lose sight of the forest as we concentrate on the trees. Our world is a mixed up and crazy place right now. Things can feel awfully bleak, but most of us have learned some good coping skills. As we focus on some pressing problems, don't forget that all of us…
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Clinical Trials
Are there clinical trials being done on Triple Negative Cancer which has metasticized?
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Lymphedema discomfort
My arm is always throbbing. I see no outward signs of blood clots. Massage taught to me by a therapist does not help. The sleeve does not help. Is this just my new normal? I am very puffy next to the arm pit area as well. Thanks for listening to my lament!
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Missing Greg
Anybody hear anything about Greg lately?
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Missing Greg's Posts and Praying He's Okay
Donna, would you give us an update if Greg isn't up to it? Or Jane, it seems you keep in touch with him outside of these posts - have you heard how he's doing? Or ... anyone else who knows ... update, please? Prayers that they are finding a solution to his feeding tube issues and any other problems he's been encountering.
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Drug or Chemo Therapy | Targeted therapy
All TACE Procedures (N=3) were uneventful. Post procedural complications ranged from minimal to rehospitalization x 1 wk.
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Procedure or Surgery | Liver transplant
At 10 months post transplant, doing ok now. Not an easy road but worthwhile.
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Medication question
I know we are all sidetracked with Greg's illness and hospitalization. However, MelindaLV wrote in 4 days ago asking the community about TREISTAR and anything you may know about it. I told her that I had no knowledge of it and that I was confident that someone would know something and would respond. I was wrong, she's not…
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Oh No | Just Diagnosed
Just diagnosed with GIST in the head of the Pancreas. Dr recommends Whipple procedure and Imatinib. Part of my trouble making a decision for the surgery is that I have no symptoms and am not suffering in anyway. This recommended surgery and drug seems like a difficult life-changing decision.
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Just got diagnosed with thyroid cancer
Now I have two cancers. How often does that happen? Anyone else?
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Other Care | Doctor visits
I still have to go see my oncologist about every 3 months and I still go see my surgeon I don't know how long I've got to keep doing that and I still yet to keep my appointment to get my Orthopedic breast with bra so I still have a lot to do
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Celebration | Finished treatment
Yes there's celebration because I live through something that have killed a lot of people but God saw to let me stay here so I'm still here in my hair is growing back slowly the discoloring of my skin is coming around but I'm still worried about my stomach but I thank God everyday that I still have life and can move around…
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Side Effects | Fluid in the abdomen (ascites)
I had several side effects from neuropathy to hair loss to I still believe that there is something wrong with my stomach because it is still swollen and hard and I don't know what that is but I intend to find out it burned my skin some discolored all around it was not easy on the body with the chemo
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Drug or Chemo Therapy | Chemotherapy
The chemo was very strong it burned my skin on my arms and my hands and it cost neuropathy and I was very weak from it but I still try to go to work despite all of those things but I'm glad it's over I still have the neuropathy
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Oh No | Cancer is back/Recurred
I have been cancer-free for nine and a half years and then I get told that I have breast cancer again this time stage 2 triple negative
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Radiation | External radiation
My husband had 35 sessions of targeted radiation to his neck for stage 2 laryngeal cancer and the only word to describe is brutal. He was in so much pain near the end it hurt to swallow his own saliva.
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Drug or Chemo Therapy | Chemotherapy
My husband did 6 weeks of cisplatin and it was really hard on him, his energy level was a constant zero. He was nausea always and had a hard time eating.
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Procedure or Surgery | Bone biopsy to confirm that metastases were from original breast cancer
In 1997, I had multiple biopsies, mastectomy, lymph node dissection, implant chemotherapy port, Flap reconstruction
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Oh No | Cancer has spread/Metastasized
I was originally diagnosed with breast cancer in 1997. I underwent unilateral mastectomy, clinical trial of high dose chemotherapy, radiation, and finally reconstructive surgery. I was followed for 10 years with no recurrence. This past year, I started having hip and low back pain and went to see an orthopedic surgeon,…
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Side Effects | Stomach distended and hard and will Not go away
I just had a bilateral mastectomy on the 29th of April 2020 and my drain stayed in for about 4 weeks but after I was able to move around I noticed that my stomach was like really hard and round exceptionally round like a beer gut and I was thinking it was because I didn't have breast anymore but it's not that, it is still…
