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Celebration | Finished treatment
Yes there's celebration because I live through something that have killed a lot of people but God saw to let me stay here so I'm still here in my hair is growing back slowly the discoloring of my skin is coming around but I'm still worried about my stomach but I thank God everyday that I still have life and can move around…
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Side Effects | Fluid in the abdomen (ascites)
I had several side effects from neuropathy to hair loss to I still believe that there is something wrong with my stomach because it is still swollen and hard and I don't know what that is but I intend to find out it burned my skin some discolored all around it was not easy on the body with the chemo
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Drug or Chemo Therapy | Chemotherapy
The chemo was very strong it burned my skin on my arms and my hands and it cost neuropathy and I was very weak from it but I still try to go to work despite all of those things but I'm glad it's over I still have the neuropathy
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Oh No | Cancer is back/Recurred
I have been cancer-free for nine and a half years and then I get told that I have breast cancer again this time stage 2 triple negative
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Radiation | External radiation
My husband had 35 sessions of targeted radiation to his neck for stage 2 laryngeal cancer and the only word to describe is brutal. He was in so much pain near the end it hurt to swallow his own saliva.
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Drug or Chemo Therapy | Chemotherapy
My husband did 6 weeks of cisplatin and it was really hard on him, his energy level was a constant zero. He was nausea always and had a hard time eating.
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Procedure or Surgery | Bone biopsy to confirm that metastases were from original breast cancer
In 1997, I had multiple biopsies, mastectomy, lymph node dissection, implant chemotherapy port, Flap reconstruction
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Oh No | Cancer has spread/Metastasized
I was originally diagnosed with breast cancer in 1997. I underwent unilateral mastectomy, clinical trial of high dose chemotherapy, radiation, and finally reconstructive surgery. I was followed for 10 years with no recurrence. This past year, I started having hip and low back pain and went to see an orthopedic surgeon,…
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Side Effects | Stomach distended and hard and will Not go away
I just had a bilateral mastectomy on the 29th of April 2020 and my drain stayed in for about 4 weeks but after I was able to move around I noticed that my stomach was like really hard and round exceptionally round like a beer gut and I was thinking it was because I didn't have breast anymore but it's not that, it is still…
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Celebration | Cancer is shrinking
Randy had his first CT after his third round of chemo today. Dr.'s nurse called to let us know it showed a 40% improvement. It was the first good news we have had. We will get more in details on Wednesday before next round of chemo, but they wanted to call with the good news.
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Is it just me, or are you tired of hearing this phrase "together, we will get through this" ?
I appreciate the positive attitude on the subject, but this is being beat into the ground. And what's the "together" part? Nobody has stopped by our house and offered to help us get through it. We are more like on our own instead of together with anyone. Every business that advertises on TV has been using this too. I guess…
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Drug to prevent mouth sores during chemo
Does anyone know about a drug to prevent mouth sores during chemo. The only one I can find is Palifermin (Kepivance), but I'm not sure if it is for a specific type of cancer.
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Side Effects | Weight loss
When I was initially diagnosed stage IV RCC, I weighed 191 lbs. Two years later I weighed 204. Following that I started slowly losing weight and now stay in the mid 130s.
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Side Effects | Vaginal dryness or irritation
Once I stopped taking the hormone replacement therapy in approximately 2016, I lost all sexual desire and became very dry and easily irritated.
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Side Effects | Skin changes
I seem to bruise quite easily and they take a couple of months to disappear. I am not on a blood thinner which many people ask me when they see my arms. I don't know the cause.
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Side Effects | Pain
I started having bone and muscle pain about 1-1/2 years into treatment which eventually became quite severe. It is now well controlled with the use of Morphine.
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Side Effects | Nausea/Vomiting
I have started to have issues with Nausea with dry heaves over the last 3 months. Generally mid-morning with the hot flashes but not daily.
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Side Effects | Hot flashes
When I was on the Votrient I had to stop my hormone replacement therapy that I had been on since going through menopause. Following stopping that medication I started getting hot flashes predominately at night, In recent months I no longer have the hot flashes at night but are now experiencing them in mid-mornings!
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Side Effects | Fatigue (tiredness)
This has been a side effect starting prior to my diagnosis and continues. I sleep on an average of 12 hours a night.
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Side Effects | Depression/Anxiety
Initial experience came after a slight increase in the size of my tumor at the top of my sternum was identified in January 2018 after having been on Votrient for 4-1/2 years! Was put on 10 mg of Lexapro.
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Side Effects | Constipation
Caused by both iron and Morphine. Take 2 Senna tablets twice a day which resolves the issue.
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Side Effects | Chemo brain
This increased over time. I was put on Ritalin, 10 mg, in AM and Noon in September 2018, which made an amazing improvement.
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Side Effects | Bone fracture or break
Had a break in the bone just below my sternum which healed after the second round of radiation therapy.
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Side Effects | Anemia (low red blood cell counts)
Have to take iron daily which causes constipation so also have to take Senna daily.
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Radiation | External radiation
More of an inconvenience than anything as I had to drive 45 mins to and from the treatment center for a 5-min procedure daily for 10 days. Had this in August 2014 and then again in April 2016.
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Drug or Chemo Therapy | Chemotherapy
Biggest side effect was fatigue initially. As time progresses bone and muscle pain started and increased over time.
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Oh No | Cancer has spread/Metastasized
15 years after initial diagnosis and left nephrectomy, metastasis to the top of the sternum was identified!
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Procedure or Surgery | Surgery
Recovery was long as this was an open radical left nephrectomy in 1999.
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nearly 5 yr appt - NED! BUT kidney values not NED - help?
The past 2 years, my GFR numbers have been in the hi 40s to 50s. My onologist says for me not to worry - it was to be expected due to really dose-dense chemo. My NP has been concerned. But now I am deciding to get more info. It indicates 3rd stage chronic kidney disease and 'they' suggested jumping straight ahead to a…
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Clinical Trial | Study drug to help alleviate mouth sores during treatment
Worked 100%, zero mouth sores which is almost unheard of for my treatment
