How long have you had a feeding tube in? The PEG type in the belly?

NeckCancer

I have asked to have mine out a couple of times but the doctors don't want me to have it out yet because I keep having issues with my mouth/throat with not being able to swallow. I'm so ready to get it out. I keep bumping up against things with it, it's aggravating while sleeping, or any time really. Does anyone have one for over a year?

Dkatsmeow

i have had mine since OCT 8, 2015. almost 5 years. When I don't have my bra on, I take a large safety pen & pen it near the neck of my shirt. It helps to keep it out of the way. besides that leaving it hanging is too close to being a man for me.HAHA!!

GregP_WN

I have only had mine for a month but I'm ready to get rid of it ASAP! I am able to eat and swallow again so I really don't need it. And, it's starting to hurt around where it goes into my belly. I have an appointment to get it out next Tuesday.

@DKatsmeow, I can't imagine 5 years, but I do know that we adapt to whatever we have to so like you, I know I could manage with it if I had to, but I'm happy that I don't. Maybe one day you will be able to get it out.

smlroger

I had my tube in for six months past end of radiation/chemo treatments. By then throat had healed enough to eat but I was using it to add liquid calories and protein. My doctors left the call up to me at that time. Removal was easy. Now just have a winkle and scar from it. Another badge.

Dkatsmeow

Greg tell your doctor if it is hurting. I have a tube of nystatin I occasionally use. The Gi doctor said it's sugar that makes mine raw sometimes. Also they sometimes leak. Another trick is to use some Baby butt cream around it so when it leaks it doesn't get on you. Also you may want to put some kind of pad around it. I get 2" split pads that I use. Also some suggested using Mylanta as it helps to neutralize your stomach acid.