Has anyone been through ABVD and MOPP in different diagnoses then had your Hodgkin's come back?

RockTom
RockTom Member Posts: 3
edited March 2020 in General Cancer
I have had two dx's and for some reason, I keep looking around corners waiting for the next one to come calling. I'm just wondering what the next treatment protocol is.

Comments

  • GregP_WN
    GregP_WN Member Posts: 742
    I had both of those for two separate dx's, they worked but 18 years later I was dx'd with a different diagnosis. So I'm no help to you as far as the next line of defense.
  • po18guy
    po18guy Member Posts: 329
    edited March 2020
    Hodgkin's 'can' relapse, but is not normally known for that. My concern is that the pathology on the biopsy sample might not be/was not correct. I know of several cases in which Anaplastic Large Cell Lymphoma (ALCL) was misdiagnosed as Hodgkin's and the wrong treatment given. Conversely, I also know of cases of Hodgkin's which were misdiagnosed as ALCL.

    I strongly urge you to have your latest biopsy re-evaluated at a different pathology lab, preferably at a university/teaching hospital or a major cancer center. Mistakes are made and it is very difficult to distinguish between some types of lymphomas.

    My case is slightly different, but goes to prove the point. Neither pathologist nor oncologist thought I had a malignancy. In truth, I was at stage IV with a rare and aggressive T-Cell Lymphoma. Only when I went to Fred Hutchinson/SCCA was I properly diagnosed.
  • Erik1059
    Erik1059 Member Posts: 2
    edited March 2020
    I had both as well, with multiple dx's. The BMT was my next treatment. Please read my story, it may help.

    https://www.whatnext.com/blog/posts/from-a-devastating-diagnosis-in-his-20s-to-23-years-of-surviving-and-thriving

    The BMT worked well for me, it never returned, now 28 years later. Keep up the fight!

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