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A quick update.
A quick history of my prostate cancer. Aug. 2011, first diagnosed, Gleason score 3+3=6, two cores at 5% Jun. 2016, last of four biopsies, Gleason score 3+3=6, two cores at 5%, decided to adopt program of active surveillance. Jan. 2020, PSA essentially unchanged over past few years, digital exams continue fine, sticking…
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Milestones | Other
Just want to let others know there is life after cancer! My daughter is living a very full life raising her 3 children, working at a local hospital, and is involved in extreme hog hunting... Our family has been so very blessed. God and life is good!
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Celebration | Finished treatment
Rang the bell!!! Scans show completely clear
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Drug or Chemo Therapy | Immunotherapy
Accepted fairly well, minimal side effects, 3 yrs worth...
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Procedure or Surgery | Surgery to remove cancer that has spread
Removed 8 in long, 2 in wide, 2 in deep strip from front left thigh, removal of all left side lymph nodes, port insertion
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Non Hodges follicular lymphoma what is the death rate age after being diagnosed
Non Hodges follicular lymphoma what is the death rate age after being diagnosed
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Other Care | ct scan
Coming up on my CT scan Feb 13th and colonoscopy on april 1st
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Radiation | External radiation
Had radiation dermatitis on breast and in arm pit, with radiation treatment. The skin was quite dry and irritated . Was difficult to keeping a dressing to area.
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Stage 3 statistics, survivors
Did you have bladder pain throughout and after treatment
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After dealing with cancer for this long I have a hard time relaxing and de-stressing
When I go home and my dog jumps up in my lap all of that seems to melt away. I'm starting to think that there is something to this "therapy dog" thing. Does anyone else find this is true for them? I used to think it was all a crock and just a way for people to get their animals on the plane.
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Somebody asked me when is my anniversary and I really don't know.
Do we use the day of diagnosis, end of treatment, or after a year out? Never really thought about it.
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A question that was emailed to us from the WhatNext Digest, have any of you been told this?
I wanted to ask a question...i have been on levothyroxine 88 since my left thyroid lobe was removed for cancer a few years ago. Now I am told there is a new school and an old school and the new school is not to take the levothyroxine. So the doctor has advised me to stop taking it and I'm into about three weeks of not…
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Anyone dx with dementia after chemo or stem cell transplant?
Anyone dx with dementia after chemo or stem cell transplant?
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Oh No | Pain med issues, withdrawal, anxiety
Methadone was initially 5 mg 3 times daily and oxycodome for breakthrough. I stopped taking any methadone due to terrible anxiety
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Radiation | Internal radiation (Brachytherapy)
I had a horrific experience with interstitial Brachytherapy then developed UTI, a yeast infection that added to the discomfort after the completion of 4 high dose treatments. My pain was not controlled at various stages
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Drug or Chemo Therapy | Chemotherapy
I had a kidney nephrostomy for blocked ureter
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Had to rejoin
Ooh no.. I updated my postal code and all my experiences background disappeared :-( had to rejoin. Thus happen to anyone before?
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Has anyone read about stem cell treatment for erectile dysfunction after having prostate surgery.
Has anyone read about stem cell treatment for erectile dysfunction after having prostate surgery.
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Decision Point | Second Opinion Time?
Based on how fast this trajectory is changing, should I get second opinion? I feel so stressed with everything else- the prospect of having to gather records and find a new doctor to give second opinion is just another stressor. But I have somewhat lost confidence. Just don't understand how things went so bad so fast.
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Decision Point | If anything shows up in right breast, proceed immediately to double mastectomy?
Surgeon said no signs this was invasive in initial mammogram. I asked are we going to look at right breast. She says will look with the PET/MRI tests- much more thorough and in depth.
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Loss | My mind/Sense of Humor
My surgeon's assistant has constantly complimented me about always having a smile on my face. Well, it was successfully knocked off and eliminated with the news about "way worse" and anticipated mastectomy. Don't know when my smile will come back, if ever.
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Oh No | Cancer has spread/Metastasized
Got radiology/pathology results back on Monday 1/27/2020. Doctor very discouraging/discouraged- seems absolutely stunned that invasive is now in picture. Told me again about larger margins- much larger- but no longer contained In Situ. It has become more invasive. Will schedule me for PET Scan/MRI. I am current waiting for…
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Procedure or Surgery | Lumpectomy
Surgery 1/22/2020. Knew lumpectomy for removal of calcifications- know there are two areas so know margins will be larger than initially planned. Apparently quite a bit larger margins than anticipated according to surgeon's post-op discussion (very minimal since I was under anesthesia).
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Procedure or Surgery | Savi Scout Transmitter implant.
Went in 1/20/2020 to have Savi Scout implant to track appropriate incision site. Waiting and waiting for radiologist and surgeon to discuss implanting site. Find out maybe place between "two areas." What? Two areas- this is news to me. Breast care nurses show me images and tell me "long way apart in surgical terms"-…
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Oh No | Just Diagnosed
12/16/19 found out I definitely have DCIS. Plan is to do lumpectomy, then radiation (5x/week for 6 weeks)Then a course of Tamoxifen. All sounds pretty simple. Ready to go. Scheduled surgery for 1/22/2020. Will be done with Savi scout. Have to get Savi scout markers placed pre-surgery. Scheduled for 1/20/2020.
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Procedure or Surgery | Stereotactic Biopsy
Had stereotactic biopsy and had marker placed.
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Oh No | Just Diagnosed
Calcifications detected on mammogram. Had two more follow up mammos to verify. Got referral to surgeon who will schedule biopsy and get care team together (apparently that's the normal protocol here in this area). Got a referral to do a stereotactic biopsy on 12/10/19.
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What do you do the night before big time surgery? Apparently you don't sleep much.
Up until midnight or so, awake at 3 AM. No problem, I'll get plenty of sleep today, probably pretty deep sleep. It's that waking up thing that is gonna hurt. However it goes and however much it hurts I'm ready to get this thing out of me and get on the other side heading towards recovery. Thanks for your concerns,…
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We have had several people ask about time under anesthesia, concerned about how long you can safely
Each operation is different, but I take it that the jest of the question is has anyone had any adverse effects directly related to being under general anesthesia for hours and hours? Anyone? Thanks for your input and we will pass along the feedback.
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Hormone cream safety in vaginal area
Radiologist told me the hormones arent systemic when applied in that area alone. A gyno told me same thing couple years ago but I didn't think he was right I didn't check into it any further. Does anyone have info on this ?
