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How to know if it’s back ? Would an MRI help?
I already posted my symptoms, and thank you that answered me(I kinda knew I need to see a doctor , but now brings another question? I ... think I should see my oncologist I have had already??? But I am wondering how would I get an MRI on my own first???? Thanks!!’n
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How to get back to eating after surgery?
My husband had surgery 5 months ago and is still not eating. He will only drinks protein drinks and creamed soup. Any advice to get him to start trying would be great! He passed a swallow test and the therapist have tried to encourage him but no luck! I'm getting frustrated with his weight loss. He doesn't have a feeding…
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Do you always get things checked that don't seem right with your body?
This is an example of why you need to get checked out if you have something going on with your body that you think might not be right. My 4th cancer diagnosis started almost a year ago with a strange tickling sensation inside my throat that I couldn't explain. I had my throat scoped 4 times which didn't show anything…
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My latest blog post about my latest diagnosis. It sounds like the kid on the corner hawking Newspape
I have had a lot of people that have said things like I don't deserve to have to go through this again, how do you do it, why has this burden been put on you again, I'm sorry that your life has been ruined, (true story), and a number of similar statements. It got me to think about how my life isn't ruined and that there…
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Megase (MEGESTROL ACETATE)
Has anyone taken this drug as a hormone blocker and what side effects have you experienced. I’ve read the literature and it’s scary.
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Adrenal insufficiency
What should I be concerned about with adrenal crisis
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Procedure or Surgery | Surgery
This is my third bout with cancer, my second with esophageal cancer. I had to have a laryngectomy as well as a gastric pull up with this one as the tumor was to high to be reached by any other means. My lymph nodes were all clear and I only had follow up radiation after surgery. I was able to retire from being an educator…
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Oh No | Just Diagnosed
Small cell lung cancer /oat cancer /limilted
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Oh No | death
My sister has passed away 09/31/19
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Sore Elbow
I was dx with NCSC a year ago and had surgery to remove the mass followed by Rad Tx to the nasal cavaity and paranasal sinuses. There were no mets found at the time via a PetCT prior to the surgery and one done 3 months after Rad Tx. This month I developed a soreness in my rt elbow . after recieving a second Shingles shot…
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After partial lobectomy for Adenocarcinoma Stage 1A, 13 months ago experiencing discomfort
13 months ago I had upper left upper lobe removed. Now after 13 months I am experiencing discomfort around the area, waking me up at night and uncomfortable when I cough. Is this normal? Also experiencing upper back ache.
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Tomorrow is the first of my two dates I'm waiting for, we go to see my onco ENT surgeon for pre-op q
After the surgeon's appointment, we go to speech pathology to get information on what's to be expected and how I might be able to talk again. I'm in the dark on that one, so we will just see. I have a box full of questions for her, I might get tossed out of her office. Things I want to know are: How long will this surgery…
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What would your "last meal" be?
As my surgery date gets closer and closer Donna keeps telling me to give her a list of things I want to eat before that date, because we don't know how long I'll be on a feeding tube. Worst case scenario is I never eat and swallow again. (I don't for a minute expect that) I feel sort of like someone on death row waiting…
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Our blog post today is from Ms. JaneA, What To Say To The Newly Diagnosed
This topic came up many times with my recent diagnosis. People that I've known for years went stone cold and silent when I told them that I had cancer again. Why? Because most people just don't know what to say, it's an awkward moment. Ms. Jane and I thought it was a good time to put up some tips on what to say and how to…
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My doctor said they can't give anything that will stop the pain in bones.
There might not be a pill or pain killer but I know people often find other things that work. Have any of you found something that will help with bone pain?
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Baroreflex failure years after radiation
I had tongue cancer 6 years ago and went through chemo (cisplatin) and radiation (36 treatments). Now, after being cancer-free for 6 years, My blood pressure has gone off the rails. I have been hospitalized twice in the past two months and the doctors have diagnosed my condition as being "baroreflex failure", caused by the…
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Procedure or Surgery | CT scan
Dr.s saw something on my CT scan & admitted me to the hospital. What it is is since I cannot swallow, all the mucus is gathering at my vocal cords & it showed up on the CT scan. Overnight stay for nothing & no formula either. Released, went home & promptly passed out in the floor. Just needed to eat. I am also now full…
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Side Effects | Dumping syndrome
I didn't know. When they fed the formula in the hospital, I almost immediately had to go to the bathroom. They eventually sent me to a nutrionist who gave me a recipe to make my own "formula" at home. It did not work to well. I went from 115 lbs to 68 lbs in 6 months. Then I fell & broke my hip. Ortho doc said it was…
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Side Effects | Too many to count
1st go round was lack of taste. took about 6 months for that to come back. Some hair loss at nape. 2nd X OH BOY! I had a temporary stoma. Didn't like that at all. It was removed before I left the hospital. Scars everywhere. I have 1 scar from my hip to my knee where they took a strip of meat to put in my throat. A have a…
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Radiation | External radiation
Was able to work for the 1st week, then I started foaming at the mouth like a rabid animal. Also nightly gag fest. Thick saliva.
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Procedure or Surgery | Surgery
Surgery went fine, but they did not tell I would never eat again. That was glossed over. I wish they had given me worse case scenario so I would have been better prepared. Also they placed a stoma on top of a blood clot. Kept coughing up blood clots.
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Nerve Pain from portacath (removed 8 years ago!)
My 14 year old daughter has been cancer free for 8 years now. About every 3 months she has massive nerve pain where her portacath was located in her chest. It hurts and bothers her so much that she doesn't sleep much at all for the entire week. We are wondering if there is anyone else who has dealt with this. Not sure if…
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Adrenal insufficiency
Dr. Just called and said I have adrenal insufficiency. What could this mean?
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How bad do you have to get before you are considered disabled?
I am still able to work now, but if these side effects continue to compound and if something else pops up that makes me unable to work I could be in real trouble. We don't have hundreds of thousands of dollars in the bank, I work a real job for a living and if I can't work I have a problem worse than the cancer. What,…
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Drug or Chemo Therapy | Targeted therapy
I've been on Kadzyla infusions every 3 weeks and side effects are minimal for the first 5 infusions. I'm eternally tired but don't know what treatment is to blame - probably all.
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Radiation | Proton Radiation
Had to stop treatment for 8 days because burns were so bad. The good news is that skin recovers quickly!
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Drug or Chemo Therapy | Chemotherapy and HerceptinProjeta target treatments
Few side effects until the last 2 infusions. The 6th infusion was awful - wiped me out and it took nearly 8 weeks to recover
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I had the best surprise yesterday. Some old friends got together and dropped by to see me.
A group that we all went to school with years ago and have kept in touch with ever since. All of them stopped by our house out of the blue and presented us with 2,500.00 in cash to help with expenses getting back and forth to dr., and treatments, co=pay, etc. I was overcome with emotions. I don't think I've ever felt that…
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Port or not?
Should I have a port incerted when I have my surgery. Chemo doctor said I was having only 3 sessions. So is it worth putting a port in or just using my veins.
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I am still seeing people that I've known for years that didn't know I have been diagnosed
When I tell them about it some of them just get a blank stare in their face. Some say that they don't know what to say. I can tell that they are not comfortable talking about it. This seems strange to me. I am the one with the cancer, not them so they shouldn't feel bad. What do you say to people when you can tell that…
