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Oh No | Pain med issues, withdrawal, anxiety
Methadone was initially 5 mg 3 times daily and oxycodome for breakthrough. I stopped taking any methadone due to terrible anxiety
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Radiation | Internal radiation (Brachytherapy)
I had a horrific experience with interstitial Brachytherapy then developed UTI, a yeast infection that added to the discomfort after the completion of 4 high dose treatments. My pain was not controlled at various stages
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Drug or Chemo Therapy | Chemotherapy
I had a kidney nephrostomy for blocked ureter
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Had to rejoin
Ooh no.. I updated my postal code and all my experiences background disappeared :-( had to rejoin. Thus happen to anyone before?
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Has anyone read about stem cell treatment for erectile dysfunction after having prostate surgery.
Has anyone read about stem cell treatment for erectile dysfunction after having prostate surgery.
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Decision Point | Second Opinion Time?
Based on how fast this trajectory is changing, should I get second opinion? I feel so stressed with everything else- the prospect of having to gather records and find a new doctor to give second opinion is just another stressor. But I have somewhat lost confidence. Just don't understand how things went so bad so fast.
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Decision Point | If anything shows up in right breast, proceed immediately to double mastectomy?
Surgeon said no signs this was invasive in initial mammogram. I asked are we going to look at right breast. She says will look with the PET/MRI tests- much more thorough and in depth.
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Loss | My mind/Sense of Humor
My surgeon's assistant has constantly complimented me about always having a smile on my face. Well, it was successfully knocked off and eliminated with the news about "way worse" and anticipated mastectomy. Don't know when my smile will come back, if ever.
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Oh No | Cancer has spread/Metastasized
Got radiology/pathology results back on Monday 1/27/2020. Doctor very discouraging/discouraged- seems absolutely stunned that invasive is now in picture. Told me again about larger margins- much larger- but no longer contained In Situ. It has become more invasive. Will schedule me for PET Scan/MRI. I am current waiting for…
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Procedure or Surgery | Lumpectomy
Surgery 1/22/2020. Knew lumpectomy for removal of calcifications- know there are two areas so know margins will be larger than initially planned. Apparently quite a bit larger margins than anticipated according to surgeon's post-op discussion (very minimal since I was under anesthesia).
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Procedure or Surgery | Savi Scout Transmitter implant.
Went in 1/20/2020 to have Savi Scout implant to track appropriate incision site. Waiting and waiting for radiologist and surgeon to discuss implanting site. Find out maybe place between "two areas." What? Two areas- this is news to me. Breast care nurses show me images and tell me "long way apart in surgical terms"-…
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Oh No | Just Diagnosed
12/16/19 found out I definitely have DCIS. Plan is to do lumpectomy, then radiation (5x/week for 6 weeks)Then a course of Tamoxifen. All sounds pretty simple. Ready to go. Scheduled surgery for 1/22/2020. Will be done with Savi scout. Have to get Savi scout markers placed pre-surgery. Scheduled for 1/20/2020.
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Procedure or Surgery | Stereotactic Biopsy
Had stereotactic biopsy and had marker placed.
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Oh No | Just Diagnosed
Calcifications detected on mammogram. Had two more follow up mammos to verify. Got referral to surgeon who will schedule biopsy and get care team together (apparently that's the normal protocol here in this area). Got a referral to do a stereotactic biopsy on 12/10/19.
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What do you do the night before big time surgery? Apparently you don't sleep much.
Up until midnight or so, awake at 3 AM. No problem, I'll get plenty of sleep today, probably pretty deep sleep. It's that waking up thing that is gonna hurt. However it goes and however much it hurts I'm ready to get this thing out of me and get on the other side heading towards recovery. Thanks for your concerns,…
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We have had several people ask about time under anesthesia, concerned about how long you can safely
Each operation is different, but I take it that the jest of the question is has anyone had any adverse effects directly related to being under general anesthesia for hours and hours? Anyone? Thanks for your input and we will pass along the feedback.
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Hormone cream safety in vaginal area
Radiologist told me the hormones arent systemic when applied in that area alone. A gyno told me same thing couple years ago but I didn't think he was right I didn't check into it any further. Does anyone have info on this ?
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Side Effects | Nausea/Vomiting
Still have daily nausea and anxiety Meds don't seem to be helping.
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Oh No | Cancer is back/Recurred
5 years to the day colon cancer returned
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Drug or Chemo Therapy | Chemotherapy
2nd rounds of chemo
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Procedure or Surgery | Surgery
Liver surgery 0ct 2014 it had spread from my colon
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Oh No | Cancer is back/Recurred
Cancer first diagnosed Feb 2014
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Who would you say you have gotten the most support from?
A family member or friend? I've had a few friends that have far outdone my family. It's kind of sad really.
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How do you come to grips with the fact that everything you have worked for all of your life could be
We retired, paid off everything, moved to a new state, new house, new dreams, and were getting ready to really enjoy the sunset of our lives. Now this damn diagnosis comes and is going to ruin our lives. I'm so pissed at the world right now. How do you deal?
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Other Care | Dealing with basal cell carcinoma since 2017.
2 biopsies on my back, 1 on my chest and 1 on my middle ear which required a skin graft after removal. Still having basal cells as of 2020.
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Is it just me or does this happen to everyone when talking to a friend about your cancer diagnosis?
Everyone seems to insist on telling me about all of their relatives that have died from cancer. What kind of cancer it was, how long they fought it and all the grueling details about how it wasn't the cancer that killed them it was the chemo or radiation. Does everyone get this? I really don't understand how people think…
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Milestones | Other
I was diagnosed Nov 2011, Stage 3, Incurable Non-Hodgkin's Follicular Lymphoma (NHFL). I did 2.5 years chemo Bendamustin & Rituxan every 28 days for six months, Rituxan every other month for 2 years. After last chemo, it took two years for my oncologist to use the word, Remission. Last visit with my oncologist - she told…
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How do you get humility and gratitude? This worked for me
Sweetie threw me a surprise dinner party last night with a small group of 60 or 70 family and friends as a "last supper" before heading off to Vandy tomorrow. Read my thoughts about it here>> http://bit.ly/2U4nc41
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Since starting chemo my skin seems to be crusty dry
Does the chemo do this or is it just from normal winter weather? What do you use for the cracks in skin around the mouth?
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I am a year or so out of treatment and I still can't get back to normal sleep.
I used to only sleep 6 or 7 hours a day, but now I seem to need 10 or 11 hours to feel like I've gotten enough. Does Anyone else seem like you're still dragging?
