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Side Effects | Nausea/Vomiting
Still have daily nausea and anxiety Meds don't seem to be helping.
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Oh No | Cancer is back/Recurred
5 years to the day colon cancer returned
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Drug or Chemo Therapy | Chemotherapy
2nd rounds of chemo
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Procedure or Surgery | Surgery
Liver surgery 0ct 2014 it had spread from my colon
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Oh No | Cancer is back/Recurred
Cancer first diagnosed Feb 2014
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Who would you say you have gotten the most support from?
A family member or friend? I've had a few friends that have far outdone my family. It's kind of sad really.
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How do you come to grips with the fact that everything you have worked for all of your life could be
We retired, paid off everything, moved to a new state, new house, new dreams, and were getting ready to really enjoy the sunset of our lives. Now this damn diagnosis comes and is going to ruin our lives. I'm so pissed at the world right now. How do you deal?
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Other Care | Dealing with basal cell carcinoma since 2017.
2 biopsies on my back, 1 on my chest and 1 on my middle ear which required a skin graft after removal. Still having basal cells as of 2020.
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Is it just me or does this happen to everyone when talking to a friend about your cancer diagnosis?
Everyone seems to insist on telling me about all of their relatives that have died from cancer. What kind of cancer it was, how long they fought it and all the grueling details about how it wasn't the cancer that killed them it was the chemo or radiation. Does everyone get this? I really don't understand how people think…
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Milestones | Other
I was diagnosed Nov 2011, Stage 3, Incurable Non-Hodgkin's Follicular Lymphoma (NHFL). I did 2.5 years chemo Bendamustin & Rituxan every 28 days for six months, Rituxan every other month for 2 years. After last chemo, it took two years for my oncologist to use the word, Remission. Last visit with my oncologist - she told…
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How do you get humility and gratitude? This worked for me
Sweetie threw me a surprise dinner party last night with a small group of 60 or 70 family and friends as a "last supper" before heading off to Vandy tomorrow. Read my thoughts about it here>> http://bit.ly/2U4nc41
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Since starting chemo my skin seems to be crusty dry
Does the chemo do this or is it just from normal winter weather? What do you use for the cracks in skin around the mouth?
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I am a year or so out of treatment and I still can't get back to normal sleep.
I used to only sleep 6 or 7 hours a day, but now I seem to need 10 or 11 hours to feel like I've gotten enough. Does Anyone else seem like you're still dragging?
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Get Well Wishes for Greg
Let's all post a get well message for Greg. Wishing Greg a successful surgery and a speedy and comfortable recovery
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Pain medicine, are you getting what you need?
With the opioid epidemic going on I was worried that I wouldn't be able to get the pain meds that I know will be needed when I come home. I remember the last radical neck dissection that I had in 2009, now I'm going to have that on the left side as well as the laryngectomy. Last week I questioned my doctor about this. She…
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Has anyone had a sleep study done?
I am having trouble getting any sleep and I figure it's all the treatment, side effects, etc. But I'm wondering if a study would be a waste of time? Anyone had any luck? Or, how have you gotten sleep short of sleeping pills?
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Side Effects | Bone thinning (osteoporosis)
I have a chemo fog constipation severe migraines extremely tired sleep a lot depression fear the unknown. Excessively dry mouth hot flashes anxiety.
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Copy and paste
I keep getting these FB posts about cancer. They ask you to copy and paste to show that you support someone with cancer. How do you feel about these.? As a cancer survivor and the widow of a cancer victim I don’t do these things. I appreciate the thought behind it but I hate to make anyone feel guilty for they way they…
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Has anyone had lymph nodes pop up in a spot far away from your cancer?
I have bladder cancer tht I'm still getting treated for but I am sure I can feel lymph nodes in my neck. I can't see my doctor until Monday.
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I am getting to that point where I can't taste much or what I do tastes terrible.
How long does this last or when will my taste come back?
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I received an estimate on the total cost of my surgery and hospital stay yesterday as a part of my i
This estimate is based on a 3-day stay, I've already been told that I will be there 7 to 10 days, or whatever it takes until I get well. So this estimate is in error to start with, but here is what it is. $232,000.000 Sor we can safely say 250,000 to 500,000. So at this point, I'm just considering all of this to be like we…
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Procedure or Surgery | Surgery
MM attacked my left humerus causing the bone to become so weak I broke the bone throwing a tennis ball or the neighbor dog. 6 weeks waiting for it to heal on it's own for nothing. Ended up with surgery to place a plate on the humerus to stabilize it. Lots of pain involved and now I'm facing the fact I have active MM in a…
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I am being treated at the major health facility near where I live, and they accept my insurance.
I need to see a urologist about what could be kidney issues that may or may not be related to my MM. I called that office to get an appointment and they say that they do NOT take my insurance. Even though it's in the same facility, inside the same brick walls, but a different specialty. I tried to tell this girl that yes,…
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Stage 4 how long will I last?
Stage 4 how long will I last?
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Loss | Body part/function
Lung damage, skin rash & joint pain from transplant.
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Celebration | Birthday
I have celebrated 3 years of my re-birthday! I am 100% donor cells 3 years later.
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Side Effects | Bone thinning (osteoporosis)
There are at least ten side effects on the list of side effects. I experienced side effects of chemotherapy, the stem cell transplant (neutropenic), idiopathic thrombocytopenia; weight loss, anemia, dry eyes, mouth sores, constipation, bone pain, osteoporosis from steroids, weakness & inability to walk unassisted. All…
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Oh No | Just Diagnosed
Diagnosed with a very rare bone cancer; Myeloproliferative Neoplasm that was Myelofibrosis.
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Decision Point | Had to decide to have a stem cell transplant or not. Given a 50/50 chance of survi
It was going to be a long arduous recovery and I was warned of it's difficult recovery. It took at least a year to regain my strength but chemo brain stayed with me for about 2 years.
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Procedure or Surgery | Other
Stem cell transplant left me incapacitated for about 1 year.
