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Decision Point | Decided to leave family alone. Completely alone.
No support from family and friends
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Since I've been sort of busy for the last week I've let me emails get ahead of me.
So, trying to catch up a little. Someone emailed wanting to know if there was an issue with drinking coffee during treatments. I know what I did, what did you do?
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Procedure or Surgery | Lobectomy
The operation was a bust so dr couldn’t do anything but close me up I was heartbroken and Mad as hell!
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There really wasn’t an oh no moment it was mo...
There really wasn’t an oh no moment it was more like dang already I’m only 50 I always knew that this would get me many years in therapy and look back and she can remind me first time I met her I told her that this is what I will die from.
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How long does it take for your hair to finally grow back once you're done with treatments?
Are there any people here that their hair didn't grow back at all, or grew in so thin it wasn't adequate?
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Have you ever posted a negative experience with a doctor on Yelp, or your own Facebook page, or that
I have had a few poor experiences and I don't mind posting the good, bad, and ugly on my own FB page, but that doesn't carry much weight. I was going to post a negative post on Yelp, then I thought no. But how is a doctor any different than the corner butcher shop? If they dropped a steak on the floor and then picked it up…
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Tonight You Won't Be Able To Speak-What Will You Say Today?
This is something I was thinking about up to my surgery. Even the last minute before they rolled me to the operating room we were in the little cubicle holding area. The last thing I said with my old voice was I love you to my Sweetie. After the surgery and I woke up, I tried to talk just out of habit/reaction, nothing…
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Sweetie and I are headed back to Vandy today for my 1 week follow up, actually it's been 10 days
I am hoping for a good report, I'm anxious about my pathology report, but ready to keep moving forward in any case. As they say on those TV cop shows, "cover us, we're going in"!
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Oscars tonight!
How do you feel about the Oscars? Do you watch? Have you seen any of the movies? Or do you not bother? Seven years ago, I had landed in the hospital and was watching the Oscars between nurse and doctor visits. Didn't get much out of it that night. But it's in my memory of my cancer journey. We have seen 7 of the 9 movies…
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What experience have you had with Endocrine Treatment?
I have metastatic disease in my axial nodes, bone (shoulder), and lungs.
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PEG Feeding Tube Removal
I have had a feeding tube for a few months. I am supposed to get it out now that I am able to eat by mouth. I have never asked the doctor what type of procedure is it to get it out. I'm assuming I'd have to be back in the OR and be put to sleep. I can't imagine them doing that in the doctors' office. Has anyone had one…
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Procedure or Surgery | Feeding tube
was messy but saved his life. was removed several months later once he was able to eat again.
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Drug or Chemo Therapy | immunotherapy / keytruda
was stable on keytruda for 2 years until cancer became active again. will start chemo again.
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Procedure or Surgery | Cryotherapy
my husband has had many sessions of cryotherapy and it has helped but was also hospitalized twice for blood loss / throwing up blood.
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Drug or Chemo Therapy | keytruda / immunotherapy
nausea and fatigue
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Procedure or Surgery | Colon surgery (colectomy or hemicolectomy)
Surgery September 2019, two thirds of transverse/descending bowel removed with 23 lymph nodes, clear margins, no cancer detected therefore no chemo
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Radiation | External radiation
fatigue, nausea, constipation and diarrhea. My husband has had radiation twice, the first time on liver and was easier on him than the recent treatment of three weeks to main tumor at the junction of esophagus / stomach. lots of weight loss, not wanting to eat, upset stomach.
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Drug or Chemo Therapy | Chemotherapy
nausea, neuropathy, multiple hours to administer the meds.
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Does it seem like each day doesn't get any better?
Each day we go through usually gets better. Sometimes it seems like they are not. Sometimes the simplest things will make a day better. Our blog post today has some simple ideas and simple thoughts to make life a little easier each day. Click here for the article>> http://bit.ly/2v7XMrA
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Drug or Chemo Therapy | Chemotherapy
Capecitabine to start for 6 minths to get risiduals
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Insensitivity
I set up an appointment with my Primary Doctor. My husband told me that the dry spots on my back had turned black. I had him take photos of the spots. Indeed they needed to be investigated. The nurse took my weight, BP, and pulse. She told me the Doctor will be right with me. Never did she ask me to gown up. Then the…
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Other Care | CAM (Complementary and Alternative Medicine)
Acupuncture for anxiety, nausea, facial neuralgia, fibromyalgia.
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Celebration | Finished treatment
No growth in the lesion. Limited side effects from the lesion.
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Side Effects | Depression/Anxiety
Controlled with Prozac 30 mg and .25 of clonazapam daily
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Drug or Chemo Therapy | Chemotherapy
Fatigue was bad
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Radiation | External radiation
Radiation was difficult with fatigue and nausea. Symptoms lasts for months after treatment was completed. 30 treatments in six weeks. Proton beam.
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Rush Limbaugh Diagnosed with Advanced Stage Lung Cancer
I just heard on the news that Rush Limbaugh has been diagnosed with late-stage lung cancer. I admire him for being open about his diagnosis. It seems like our disease gets more attention when celebrities are hit by it. In the lung cancer community, we have lost this week at least three people who have been long-time…
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Who has had a laryngectomee here on the site? I know of a couple but I don't know who is still hangi
I have a few questions
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trouble posting
I cannot seem to post? I have tried responding to questions for a week and nothing happens when I try to post. It is very frustrating! I am trying this to see if it posts?
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Eye problems with tamoxifen
Has anyone suffered serious eye problems on tamoxifen? I have had a stroke in my eye and 6 months later I had a retinal vein occlusion in the same eye (a blood clot). I don’t know if it’s related or not to tamoxifen. I am aware it can cause blood clots. I have been on a blood thinner for Afib. It makes me so nervous. I’ve…
