Another 4 weeks of waiting
GregP_WN
Member Posts: 742
We finally have a date for surgery, Jan 28th. Another 4 weeks away, this waiting isn't working well with me. I can feel the changes in this thing in my throat and can't stand the thought of it getting bigger before it gets gone. My oncologist assures me that a couple more weeks isn't going to make any difference. The 28th is the soonest available.
We lost two weeks by going to consultations with chemo and radiation oncology to be sure there is nothing that they could do. And there isn't. I thought that was the case all along but I appreciate them looking at all of the possibilities before ripping everything out of my throat. It's sort of a no return thing.
Here is another blog post with my thoughts on how this has gone from just a diagnosis to being a real thing. Our lives are going to change in a big way now. Click here http://bit.ly/2MGAYoT to read.
We lost two weeks by going to consultations with chemo and radiation oncology to be sure there is nothing that they could do. And there isn't. I thought that was the case all along but I appreciate them looking at all of the possibilities before ripping everything out of my throat. It's sort of a no return thing.
Here is another blog post with my thoughts on how this has gone from just a diagnosis to being a real thing. Our lives are going to change in a big way now. Click here http://bit.ly/2MGAYoT to read.
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Comments
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The waiting game is awful. I'm so sorry that you have to wait so long. Hugs, Greg.0
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I had to wait for almost two months from the time of diagnosis from biopsy until my treatment plans were set. There were a lot of referrals from one doctor to another for second opinions within the facility. They wanted me to hear several of the specialties in the cancer center to hear their ideas. I appreciated their diligence and being thorough.0
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So sorry, Greg. So anxiety-making. Your oncologist is probably right, but then again, it's not his throat.0
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“ A couple more weeks,” easy for them to say. I know when I was diagnosed I wanted those tumors out the next day. I can identify with your anxiousness and am disheartened you and your loved ones once again have to face surgery and uncertainty. I will be thinking of you on the 28th and keeping everything crossed .0
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The waiting is tough. I’ll be doing the same as Lynne-I-Am.0
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Will be praying for you.0
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The waiting is a killer - I've taken anti-anxiety on occasion waiting for the "next available date" which helped a little but that's a personal thing - I know many folks are anti-medicine for this type of thing but I figured that it couldn't hurt so gave it a go.0
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I've been off the board for a couple of weeks, so I missed this news. Yuck. I'm sorry they couldn't find alternatives and that you have to wait to get the ball rolling. Many hugs to you and Donna.0
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I am sorry, too When my cancer was growing by leaps and bounds and I was referred to a clinical trial, the place I was referred didn't seem to "get" that a week or two in their life was like months (or more) in mine. I know you are very happy at Vandy, but my solution was to quickly change research facilities and to go somewhere that they seemed to "get" that we couldn't just be waiting around for something. (As soon as they got word I was going elsewhere to be a labrat, they really got on the stick, sending trial opportunities and begging me to stay with them, but I chose not to and have never regretted that decision!!!)0
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GregP...imagine all of us here are standing around you during this dreadful waiting period, with encouraging words, hugs, prayers, whatever each of us has to offer you and know we will always have your back here at WhatNext. I know you are but a mere mortal yet your exceptional fortitude in dealing with your cancer is astounding and has been an inspiration for me and many others to keep on keeping on.0
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