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Oh No | Just Diagnosed
Mole on side exponentially grew and turned colors in a couple of weeks
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Neuropathy. Is there anything I can do or take to help this condition?
Neuropathy. Is there anything I can do or take to help this condition?
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Oh No | Cancer has spread/Metastasized
Currently not in my liver but my lymph nodes.
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New Year New Thoughts
I hope 2022 has come in well for all of you. Happy New Year. I wish all of you the very best this year- whether that comes in the form of remission, slowed progress of disease, new family members, grand celebrations. If this year is looking a little less grand than I hope, then I wish you peace and support to get through…
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Happy New Year Wishes!
I am just writing to say I hope everyone on this site has a good year ahead. I know we are all struggling with various things - I, for one am trying to make a decision whether or not to switch to tamoxifen(instead of anastrozole) because of my bones...more on that another time. And I am sad to learn of a childhood friend I…
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Side Effects | Cough
Drug induced pneumonitis developed after first treatment of combo immunotherapy along with extreme fatigue. Resolved with steroids.
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Receiving treatment
What would you do to stay upbeat and positive?
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What should I expect with treatment?
What should I expect with treatment?
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a little holiday cheer!
I hope this link will work here? This is just a fun video and no matter what event you are celebrating, it is sure to include the iconic family dinner, right? Love to all of you! (If the link doesn't work, try copying it in your browser, you won't be sorry!) ;-) https://www.thebigshow.com/vod_html5/videos/20211223/high.mp4
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not sure what to ask
not sure what to ask or do
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Drug or Chemo Therapy | Chemotherapy
He was scared his, Dad takes him to treatment, trouble adjusting to all meds, can't do anything no energy
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Procedure or Surgery | Long-term catheter
Didn't really know what to expect, but his Mom had been through it
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Oh No | found out on his own due to Covid-19 protocols
his wife was in hospital with GBS, 2 children 11 &10, no job, can't pay bills no money coming in
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Side Effects | Nerve damage (peripheral neuropathy)
I have lost dexterity and strength in my legs and my hands. I am 2 months past chemo (r-epoch) and wondering if/when this side effect will lessen or if it will
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After the sonogram, the hotshot radiologist l...
After the sonogram, the hotshot radiologist looked at me and said, “well I have good news and bad news. The good news is you got your mammogram. The bad news is you have cancer. “Just like that. I was so shocked I didn’t know how to react in his presence. But I cried all the way home.
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The effects of radiation were not so much ins...
The effects of radiation were not so much instantly felt but appeared later in the journey.
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Drug or Chemo Therapy | Chemotherapy
Covid had just exploded on the scene so I was somewhat on my own through this leg. Also my boyfriend of 10 years left me and my dog died.
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Oh No | Just Diagnosed
On vacation I was hospitalized after a near drowning experience. Due to trouble regaining my ability to breathe I was given a CT scan and an X-ray that revealed the cancer. Such a blessing to have discovered it before it became more advanced.
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What is Everyone Doing to make the Season Bright?
The Holiday season is in full swing, so what is everybody doing? Unfortunately, a Christmas tree doesn't ward off bad vibes...I daresay we have all known some tough yuletides and I sincerely hope this year isn't one of them for you. I have two friends dealing with a recent heavy diagnosis and one who is still reeling from…
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Thankful Thursday
I don't know if anyone will see this but, if so... How about if we do a Thankful Thursday? What are you thankful for today? I'll start us off. We saw the docs on Tuesday and they said my husband's latest MRI scans are good. We are so grateful.
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Celebration | Anniversary
12/17/2021 I am SO blessed & thankful! My last chemo after 1st recurrence was 12/2018. Then I tried a PARP- Zejula- which after 2 weeks, crashed my platelets & caused me to be hospitalized for 2 weeks! My onc & I agreed, no more Zejula- my body's reaction was so extreme & it took SO long to recover, they thought I was…
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Celebration | Remission
CA125 went from 4200 before hysterectomy to 8 Pelvic CT scan is clear blood counts back to normal
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Side Effects | Chemo brain
A little Chemo Brain seems to be subsiding use the Dignicap system was able to keep 80 Slight Chemo Brain seems to be subsiding no other side effects I used the Digni Cap I keep 90% of my hair 5
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Drug or Chemo Therapy | Chemotherapy
Adjuvant Carbo/Taxol 6 rounds
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Procedure or Surgery | Debulking surgery
Great Gyno Onc
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CALQUENCE FOR MCL
I have been on Calquence for Mantle Cell Lymphoma since February, 2018. I am curious to know if anyone else has experience with Calquence. It doesn't seem to be a very popular drug, as I see ads for Imbruvica and more people seem to be taking Imbruvica, so I was just looking for other people who have personal experience…
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Happy Thanksgiving
I want to wish everyone at WhatNext a very Happy Thanksgiving!!! I hope everyone is doing well.
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Other Care | PET every three months
my remission has been over 3 years with PET scans suggested by MD Anderson every 3 months as became sensitive/allergic to Rituxin I did the first six month course but a year later was told to do just Rituxin once every few months-got way too sick -so just watching by PETSCAN MDAnderson is tops on Mantle cell but local…
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Other Care | Taking Imbruvica - 3 - 140 mg tabs daily
Nov 12, 2021 platelet count was 85. Has been holding in this range for the past 4 months. Been on this med for about a year and seeing doctor about every 90 days. Lab work every 30 days. A "wait and see" approach to dealing with my lymphoma.
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Leg Cramps?
I saw my PA today and I am fine (yay!). We talked about a lot of things, but, when I told her I have leg cramps (Charlie horse stuff) at night, she advised me to try tonic water before I go to bed. It's the quinine that should help and I only need about a half a glass. I will let you all know if this works! So far, not…
