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Drug or Chemo Therapy | Chemotherapy
Covid had just exploded on the scene so I was somewhat on my own through this leg. Also my boyfriend of 10 years left me and my dog died.
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Oh No | Just Diagnosed
On vacation I was hospitalized after a near drowning experience. Due to trouble regaining my ability to breathe I was given a CT scan and an X-ray that revealed the cancer. Such a blessing to have discovered it before it became more advanced.
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What is Everyone Doing to make the Season Bright?
The Holiday season is in full swing, so what is everybody doing? Unfortunately, a Christmas tree doesn't ward off bad vibes...I daresay we have all known some tough yuletides and I sincerely hope this year isn't one of them for you. I have two friends dealing with a recent heavy diagnosis and one who is still reeling from…
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Thankful Thursday
I don't know if anyone will see this but, if so... How about if we do a Thankful Thursday? What are you thankful for today? I'll start us off. We saw the docs on Tuesday and they said my husband's latest MRI scans are good. We are so grateful.
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Celebration | Anniversary
12/17/2021 I am SO blessed & thankful! My last chemo after 1st recurrence was 12/2018. Then I tried a PARP- Zejula- which after 2 weeks, crashed my platelets & caused me to be hospitalized for 2 weeks! My onc & I agreed, no more Zejula- my body's reaction was so extreme & it took SO long to recover, they thought I was…
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Celebration | Remission
CA125 went from 4200 before hysterectomy to 8 Pelvic CT scan is clear blood counts back to normal
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Side Effects | Chemo brain
A little Chemo Brain seems to be subsiding use the Dignicap system was able to keep 80 Slight Chemo Brain seems to be subsiding no other side effects I used the Digni Cap I keep 90% of my hair 5
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Drug or Chemo Therapy | Chemotherapy
Adjuvant Carbo/Taxol 6 rounds
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Procedure or Surgery | Debulking surgery
Great Gyno Onc
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CALQUENCE FOR MCL
I have been on Calquence for Mantle Cell Lymphoma since February, 2018. I am curious to know if anyone else has experience with Calquence. It doesn't seem to be a very popular drug, as I see ads for Imbruvica and more people seem to be taking Imbruvica, so I was just looking for other people who have personal experience…
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Happy Thanksgiving
I want to wish everyone at WhatNext a very Happy Thanksgiving!!! I hope everyone is doing well.
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Other Care | PET every three months
my remission has been over 3 years with PET scans suggested by MD Anderson every 3 months as became sensitive/allergic to Rituxin I did the first six month course but a year later was told to do just Rituxin once every few months-got way too sick -so just watching by PETSCAN MDAnderson is tops on Mantle cell but local…
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Other Care | Taking Imbruvica - 3 - 140 mg tabs daily
Nov 12, 2021 platelet count was 85. Has been holding in this range for the past 4 months. Been on this med for about a year and seeing doctor about every 90 days. Lab work every 30 days. A "wait and see" approach to dealing with my lymphoma.
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Leg Cramps?
I saw my PA today and I am fine (yay!). We talked about a lot of things, but, when I told her I have leg cramps (Charlie horse stuff) at night, she advised me to try tonic water before I go to bed. It's the quinine that should help and I only need about a half a glass. I will let you all know if this works! So far, not…
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Revlimid
Thinking on going off this maintenence drug.I've been on for 18 months after stem cell transplant. Any thoughts from anyone who's been on this or who went off of it? My counts have been very good. I see the doctor every 2 months. Cost of drug worries us as $16,775.00 per month. I currently have Neuropathy pretty bad in the…
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Oh No | Cancer has spread/Metastasized
Spring 20021 Radiologist suggested surgery after last PET/CT scan showed recurrence. Met w/ ent surgeon who wanted to slice & dice. I chose NOT to do surgery. The "possible" side effects might be some loss of motion in right arm and I am WAY TO ACTIVE (swimming 3000yds/day, surfing, yoga, all around VERY active to take…
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Estrogen question
Recently I read an article about the latest findings in a quest to understand alzheimer's. One of the points made was the observation that women are more vulnerable to the disease when their estrogen levels drop. (?!) So, here we are, taking anastrozole, and other estrogen blocking drugs to decrease our chances of…
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Receiving treatment
Receiving treatment
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Anyone being treated for colon cancer with Keytruda?
My medical history is 2004 stage 3 colon cancer and resection of my entire ascending colon and part of my illium. In 2007 I experienced an MI and a shunt was inserted into my right posterior coronary artery. in 2016 I received 45 external beam radiation treatments for prostate cancer. In 2020 I was diagnosed with squamous…
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Anyone being treated for colon cancer with Keytruda?
Have any of you been treated for colon cancer with Keytruda? I am having a 2nd bout with colon cancer and I am inoperable because of my poor lung function, thus surgery was not an option. I know very little about life on biologicals. I am looking to find someone who is being successfully for colon cancer with biologicals…
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Clinical Trial | Auto stem cell transplant/ high dose chemo to address aggressive protein
Before agreeing to the trial, i have to share having bone marrow biopsies freaked me out- the pain was intense for me.I responded very well to the initial rounds of chemo and was in remission. However, with more in depth testing as part of the trial i had a choice to either go directly to maintence treatment or have the…
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Drug or Chemo Therapy | Chemotherapy
Initial six rounds of chemo was frightening as it was unknown. But it didnt interfere too much in my life- i missed 2-3 days from work per month mostly for fatigue. That was the only side effect i experienced
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Oh No | Just Diagnosed
I was informed I had cancer a few days after my mom died. I was in shock and immediately compartmentalized and kept it to myself until i completed all testing
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Celebration | Remission
Not total. 2 months b4 treatment is finished.
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Oh No | Just Diagnosed
Went to ER after turning over in bed & hearing as well as feeling my ribs break. I always had yearly mammos & never imagined that after many scans I was DX with metastatic breast cancer also to bones.
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Oh No | Cancer has spread/Metastasized
Dr.seems nonchalant. Wasn't in beginning Very frustrating
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Drug or Chemo Therapy | Chemotherapy
After radiation my oncologist scheduled me to have a port placed in order to start first chemo meds. I received Abraxene & a immunotherapy drug. After 8 months I developed painful colitis from the immunotherapy drug so had to stop it. After 2 more months of just Abraxene my scan showed spots on my liver. I am now on a…
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Radiation | External radiation
My first course of treatment was radiation.
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Clinical Trial | I received a 3 part dose of drugs Revlimed, Dexamethasone, Valcaid
I was part of a research study at Northwestern Medical Center. It involved a stem cell transplant then heavy doses of Steroids and Chemo. I did this twice, once in 2019 and again in 2020 along with a 3 week hospital stay to watch my white blood cells return to normal. The first time was pretty rough the second week. I had…
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Radiation | External radiation
could have been worse but was bad enough
