After partial lobectomy for Adenocarcinoma Stage 1A, 13 months ago experiencing discomfort

Kerrieliz
Kerrieliz Member Posts: 9
edited January 2020 in General Cancer
13 months ago I had upper left upper lobe removed. Now after 13 months I am experiencing discomfort around the area, waking me up at night and uncomfortable when I cough. Is this normal? Also experiencing upper back ache.

Comments

  • GregP_WN
    GregP_WN Member Posts: 742
    edited January 2020
    I developed areas of pain after the years started going by, it seems like every year brings a new spot that hurts. In my case, it was scar tissue and radiation damage. I usually bring it up with my doctor when I went in for a checkup or at least I will send a message to her office or call to see if I need to come in.
  • po18guy
    po18guy Member Posts: 329
    edited January 2020
    How frequently do you cough? If the cough is not a virus, it may have a cause such as inflammation which needs to be investigated. I would make an appointment.
  • Kerrieliz
    Kerrieliz Member Posts: 9
    edited January 2020
    I do have a cough and it is not a virus, they ruled that out. Make an appointment with who pulmonologist or GP?
  • po18guy
    po18guy Member Posts: 329
    edited January 2020
    Oncologist, I would say. They have the most experience with post-operative lung disease and may be able to put your mind at ease. If they want you to see some other specialist first, they will let you know.
  • Kerrieliz
    Kerrieliz Member Posts: 9
    edited January 2020
    I have never seen an Oncologist I had surgery and treatment by pulmonologist and surgeon only.
  • po18guy
    po18guy Member Posts: 329
    edited January 2020
    OK, then begin with the pulmonologist. Just in case - and nothing more than that - I would recommend that you search out an excellent nationally-known pulmonary oncologist. A little insurance policy, and a consult might be good, as they would undoubtedly have much experience and advice which could help you. You want to know - you need to know, so as to put your mind at ease.
  • Kerrieliz
    Kerrieliz Member Posts: 9
    edited January 2020
    I have been thinking about going to Sloan for a second opinion. I am waiting for my Drs office to call me back that things are getting worse.
  • Kerrieliz
    Kerrieliz Member Posts: 9
    edited January 2020
    po18guy Thank you I have never heard of a pulmonary oncologist, I will look into that.
  • po18guy
    po18guy Member Posts: 329
    edited January 2020
    I would go to Sloan (Kettering) without a doubt. With the prevalence of lung cancer (in the top 4), they assuredly have some of the world's finest specialists. A second, even third set of eyes on your case cannot hurt. It was a second opinion at a major cancer research facility that saved my life four times now.
  • Kerrieliz
    Kerrieliz Member Posts: 9
    edited January 2020
    The surgeon in the pulmonologist office I go to did my surgery and he came from and studies at Sloan Kettering, so I feel fortunate to have them in my area. I did mention once to the pulmonologist about going to sloan Kettering and he said he would be the first one to refer me if needed.

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