-
Changing taste and smells. Not lost, but changed.
Things that are supposed to smell a certain way don't. Things that are supposed to taste a certain way don't. Is this a normal thing? Maybe before I lose it all the way? Anybody got this?
-
Have any of you experienced crying with the feeling you cannot stop?
Expanding on Coleman's question about depression and anger; have any of you experienced bouts of just uncontrollable weeping? Not because of pain or anxiety, fear or depression but just a feeling of utter despair that takes over your whole body and mind. This has happened to me. I have to just let it runs it's course and…
-
pain 8 years later
Still having rectal pain 8 years after to the point that it is very painfull to have a BM & uncomfortable to sitt and no one seems to have any answers to why
-
How long can you keep a catheter in before it needs replacement?
They didn't tell me when to come back
-
Side Effects | Mouth sores
His mouth is still so sore and his tongue feels huge. He is having a hard time getting enough in him to maintain his weight.
-
Side Effects | Pain
My husband has been in pain since the surgery in August. He is at a constant three at all times. He doesn't sleep much all; a couple hours at a time day and night.
-
How many of you have drifted off into what you might call depression?
There are days that I feel fine, not to beaten down by treatments and I have a good outlook on life. Followed by a few days of being mad at the world, snapping at everyone, feeling like my life is over and all I'm doing is waiting to die. *Repeat* Does anyone else have this going on? I really don't like the idea of seeing…
-
I have had some hyperbaric oxygen treatments and now I've developed this condition.
Has anyone had hyperopia?
-
Does the cold weather of Winter time give you problems while dealing with cancer?
The treatments can make our joints stiff and hard to get around and walking on slick surfaces can be dangerous. Our blog post today has some reminders about some of these things that we might not think about when we are dealing with everything else. Take a look at it here >> http://bit.ly/2MZtuNU
-
It's national bean day! It almost slipped by me! I happened to see this online, I know some of us ar
Beans are a great source of protein, fiber, carbohydrates, folate, and iron. For #NationalBeanDay, try this 3-ingredient recipe from HNCA's online cookbook! Learn the Recipe >> https://bit.ly/2sQh4AU
-
For the Head and Neck Cancer patients on the site:
Join us for North American HPV Awareness Week, January 27-31, 2020! The week is dedicated to raising awareness of #HPV related #cancer and promoting the prevention potential of the HPV vaccine. Register for free daily webinars or learn more! #USvsHPV http://bit.ly/2SEDH3e
-
Nauseous reactions to Ninlaro common?
I've been taking Ninlaro for a couple years and recently find I have a reaction 3-5 hours after taking it .. get really nauseous and then ... yuck.
-
Do you know the updated standards for screening for cervical cancer?
Many women have been used to having annual Pap smears, but the recommendations have recently changes. This change reflects understanding that 70% of cervical cancer is caused by the HPV virus. There are three screening tests available: 1)the traditional Pap smear, 2) a co-test that is a combination of traditional Pap and…
-
Have you noticed being more sensitive to spicey food since you started or finished treatments?
I can't tolerate anything even on the mild side of hot anymore. I guess it's from the radiation burning my throat, or perhaps the chemo irritated the lining of my esophagus? I'm not sure what did it but I can't handle anything hotter than plain old black pepper any more.
-
My doctor told me that if my cancer comes back after treating this diagnosis that it would be hard t
Who has had a relapse or another type of cancer diagnosis after your first diagnosis? Has it been harder to treat this time? I'm not even done with this one and I'm already worrying about the next one.
-
I have developed shingles due to nerve damage from treatments, they say.
It's painful as anything I've been through so far. Have anyone else had this happen? How long did it last?
-
Another 4 weeks of waiting
We finally have a date for surgery, Jan 28th. Another 4 weeks away, this waiting isn't working well with me. I can feel the changes in this thing in my throat and can't stand the thought of it getting bigger before it gets gone. My oncologist assures me that a couple more weeks isn't going to make any difference. The 28th…
-
"Hey, that's good to know, do you do kid's birthday partys too"?
What I asked the radiation oncologist today after he got done telling me about the possible carotid artery getting too thin and possibly blowing in two from radiation on my neck for the third time in a lifetime causing me to bleed out. Also, he said the other side effects might be loss of all swallowing and possible…
-
Implant pain after 6 days?
The first two days after my exchange I felt pretty good. But today-day 6-I am in so much pain. Stabbing on one side down by ribs and in between implants. Also above one implant. So sore to even touch. Is this normal?
-
Side Effects | Nerve damage (peripheral neuropathy)
My 14 year old daughter has been cancer free for 8 years now. About every 3 months she has massive nerve pain where her portacath was located in her chest. It hurts and bothers her so much that she doesn't sleep much at all for the entire week. We are wondering if there is anyone else who has dealt with this. Not sure if…
-
some side effects are starting to pile up on me.
The sores in my mouth and some burning on my chest from radiation, and the constant heartburn I guess is from the radiation too. What would you say has been the worst of the side effects from treatments?
-
Celebration | Remission
tumors pretty much gone. PSA # very very low. Not going back to dr for this one.
-
Radiation | External radiation
six treatments at specific locations in spine, hips and ribs. Easy no problem.
-
Drug or Chemo Therapy | Chemotherapy
Did taxol and cisplatin. No hair, lost weight, neuropathy in feet and hands. Stopped treatment on doctors recommendation due to side effects. Hair returned but weird, weight back, neuropathy stayed.
-
Oh No | Cancer has spread/Metastasized
After 3+ years cancer free??, cancer is back metastasized in bones, ribs, vertebra, hips. Will start chemo and some radiation to relieve discomfort.
-
Radiation | Internal radiation
Even though I seemed to have mild affects, I still had burning sensations in my butt and girlie parts and a nice one on the right side of my pelvic.
-
In case you haven't seen a post like this one below, and hopefully haven't fell for it, please don't
This was posted on a Facebook Group by a troll: "I Am Graham lost my wife to cancer two years back Am here to offer emotional or maybe financial support to cancer victims And maybe also make new friends" It's hard to believe, but there are several people answering this troll and offering to talk and "be his friend". Those…
-
For those of us that have a hard time swallowing and might choke
Any of us can choke so this is good to know, but those of us with damage to our throat, esophagus, etc from radiation know this problem all too well. I learned this today: "The international symbol for choking is putting your hands around your neck as if you are choking yourself." In all my years I've never heard this, but…
-
Four days ago I had my exchange done.Today my Dr took off the "tube top". He said to wear only a sh
Four days ago I had my exchange done.Today my Dr took off the "tube top". He said to wear only a sh
-
Here is some good information on treating prostate cancer
"The CARD trial shows convincingly that cabazitaxel is the preferred therapeutic option over second-line androgen-signaling inhibitors (abiraterone, enzalutamide) in patients with metastatic castration-resistant prostate cancer who had rapid disease progression while they were receiving first-line androgen-signaling…
