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If you lost your taste, how long did it take to lose it?
Then, after treatments are over how long will it take to come back? I have mostly lost it now and that makes eating just a going through the motions thing. I don't even want to eat anything either. My appetite has left with the taste.
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Procedure or Surgery | Abdominal hysterectomy
I had stage 3 ovarian cancer that had wrapped around my colon and spread all around in the abdominal cavity. I had 3 rounds of chemo and one of those drugs ate up my colon. This is just a snapshot of a long hard year.
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Celebration | Finished treatment
I am now a candidate to have my ostomy reversed and the first appointment with that doc is 1/10/2020
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Today's blog post has some good information and resources for financial assistance
Lack of money to pay for the never ending expenses is a side effect of cancer that we can't get away from and there's no pill we can take to fix it. Help is what we need. Here are a few resources, and a link to our existing resources page that has tons of places that offer help in different forms for cancer patients.…
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Thoughts on medical or recreational marijuana?
I was just reading the comments on alcohol consumption and that started me thinking about mj. Medical is very difficult to get in Northern New York. There's, like, one dispensary up here and it's miles and miles and no doctors are authorized to prescribe. I personally think every oncology unit should have someone in staff…
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If you successfully reach the end of treatments...
How often do you go back to your doctor for checkups to monitor if you are having a recurrence? I am not liking the idea of not seeing my doctor every month.
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When you first got your diagnosis, could you feel or see your cancer getting worse while you waited?
My latest diagnosis started almost a year ago. I knew there was something going on in my neck and I asked for it to be scoped several times. Each time there was nothing there, but the symptoms have progressively gotten worse. Just in the last week, the pain that I have has doubled or even tripled. I had no pain in the…
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Do you have to do any of the "leg work" in filing your claims, or does your facility/doctor's office
We have heard from some people that they are being given some what of a run-around in getting their claims filed and are being asked for itemized bills and other documents. How is your claims experience?
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In case you arent aware, do not let your life or health insurance lapse while you are in treatments
You will not be able to get new insurance for several years after treatment ends and then the options are few. I recently had a conversation with a fellow cancer patient who thought she could drop an expensive life policy and pick up a new one with another company. NO.....That would be sort of like waiting to buy…
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Celebration | Finished treatment
February 2019
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Drug or Chemo Therapy | Chemotherapy
Weight loss 17lbs. Hair loss. Loss of appetite, diarrhea for a week after each treatment. Food had a metallic or super sweet taste.
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Radiation | External radiation (Proton beam)
43 radiation treatments likened to a bad sunburn
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Drug or Chemo Therapy | Hormone therapy
Loss of muscle tone and strength. More emotional
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Some good words to remember on days that you doubt:
Whenever you find yourself doubting how far you can go, just remember how far you have come. Remember everything you have faced, all the battles you have won, and all the fears you have overcome. Then raise your head up high, and forge ahead. Because these difficult roads, will lead to beautiful destinations. ~ Unknown
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If you know who the legendary rock band Rush is then you know who the drummer is. Neil Peart
Shocking news today that he passed away today from brain cancer. They quit playing and touring 3.5 years ago. At that time it was said that Neil was the one that wanted some downtime. There hasn't been a peep out of anyone, anywhere about him being diagnosed. I have no idea how they were able to keep it quiet. From one…
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Ruth Ginsburg Health Update - Good News
Did you just hear or read that Supreme Court Justice Ruth Ginsburg has gotten good news after treatment for a tumor on her pancreas? No Evidence of Disease - NED. Greg, I immediately thought of you. In 1999, she had colon cancer. In 2009, she was diagnosed with early stage pancreatic cancer. After a fall in November 2018…
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Changing taste and smells. Not lost, but changed.
Things that are supposed to smell a certain way don't. Things that are supposed to taste a certain way don't. Is this a normal thing? Maybe before I lose it all the way? Anybody got this?
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Have any of you experienced crying with the feeling you cannot stop?
Expanding on Coleman's question about depression and anger; have any of you experienced bouts of just uncontrollable weeping? Not because of pain or anxiety, fear or depression but just a feeling of utter despair that takes over your whole body and mind. This has happened to me. I have to just let it runs it's course and…
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pain 8 years later
Still having rectal pain 8 years after to the point that it is very painfull to have a BM & uncomfortable to sitt and no one seems to have any answers to why
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How long can you keep a catheter in before it needs replacement?
They didn't tell me when to come back
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Side Effects | Mouth sores
His mouth is still so sore and his tongue feels huge. He is having a hard time getting enough in him to maintain his weight.
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Side Effects | Pain
My husband has been in pain since the surgery in August. He is at a constant three at all times. He doesn't sleep much all; a couple hours at a time day and night.
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How many of you have drifted off into what you might call depression?
There are days that I feel fine, not to beaten down by treatments and I have a good outlook on life. Followed by a few days of being mad at the world, snapping at everyone, feeling like my life is over and all I'm doing is waiting to die. *Repeat* Does anyone else have this going on? I really don't like the idea of seeing…
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I have had some hyperbaric oxygen treatments and now I've developed this condition.
Has anyone had hyperopia?
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Does the cold weather of Winter time give you problems while dealing with cancer?
The treatments can make our joints stiff and hard to get around and walking on slick surfaces can be dangerous. Our blog post today has some reminders about some of these things that we might not think about when we are dealing with everything else. Take a look at it here >> http://bit.ly/2MZtuNU
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It's national bean day! It almost slipped by me! I happened to see this online, I know some of us ar
Beans are a great source of protein, fiber, carbohydrates, folate, and iron. For #NationalBeanDay, try this 3-ingredient recipe from HNCA's online cookbook! Learn the Recipe >> https://bit.ly/2sQh4AU
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For the Head and Neck Cancer patients on the site:
Join us for North American HPV Awareness Week, January 27-31, 2020! The week is dedicated to raising awareness of #HPV related #cancer and promoting the prevention potential of the HPV vaccine. Register for free daily webinars or learn more! #USvsHPV http://bit.ly/2SEDH3e
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Nauseous reactions to Ninlaro common?
I've been taking Ninlaro for a couple years and recently find I have a reaction 3-5 hours after taking it .. get really nauseous and then ... yuck.
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Do you know the updated standards for screening for cervical cancer?
Many women have been used to having annual Pap smears, but the recommendations have recently changes. This change reflects understanding that 70% of cervical cancer is caused by the HPV virus. There are three screening tests available: 1)the traditional Pap smear, 2) a co-test that is a combination of traditional Pap and…
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Have you noticed being more sensitive to spicey food since you started or finished treatments?
I can't tolerate anything even on the mild side of hot anymore. I guess it's from the radiation burning my throat, or perhaps the chemo irritated the lining of my esophagus? I'm not sure what did it but I can't handle anything hotter than plain old black pepper any more.
