-
Clinical Trial | Pemigatinib by Incyte. FIGHT202. It's an FGFR2 inhibitor drug.
This is an FGFR2 inhibitor. If you have bile duct cancer, you should have NGS(next generation sequencing) either through biopsy or a blood test(liquid biopsy) to determine if your tumor has a mutation that is able to be targeted by a specific treatment.
-
Side Effects | Depression/Anxiety
I stayed depressed and started hearing voices to shoot my brains out. Literally. It was awful for me. I am still having pain a year later and unable to lose weight due to all the steroids.
-
Microwave therapy
Is anyone here having microwave therapy. A lady in my cancer support group is taking microwave therapy with chemotherapy and a kind of directed radiation. It seems this is a very new treatment
-
What do you have going on this week? Treatments, scans, surgery, check-up? Nothing?
I have a surgery follow up with my ENT Oncologist/surgeon to see how my stoma is healing, and I can get rid of this feeding tube that's hanging out of my belly. I've started eating on my own and I'm able to swallow so far with no issues so it's time to get that sucker out. It's aggravating having to watch out for it all…
-
Evening primrose oil
I have had three surgeries since June of 2017. The initial lumpectomy, then in 2018 removal of a benign cyst and last spring a surgical biopsy that turned into a rather extensive lumpectomy to clean up a large seroma and scar tissue, also benign. As a result of all this messing around I have constant low grade pain in my…
-
Procedure or Surgery | Surgery
While putting on a pair of shoes I fractured my back and had to have surgery to repair two vertebrae.
-
Oh No | Just Diagnosed
Weird thing to say but I was told it is called by HPV virus which I did not have and was relieved but I felt like I was eaten up with cancer, all my muscles hurt
-
Drug or Chemo Therapy | Immunotherapy -- BCG treatment
This was not too painful, but it was very difficult to hold in pee for some time afterward. I still have to make sure that I am aware of where there is a bathroom available! Unfortunately, I developed the bladder disease Interstitial Cystitis after treatment, but do well with it, using natural remedies for pain relief.
-
Procedure or Surgery | Surgery
Did the immunotherapy "BCG" treatments after a resection of a massive tumor ("size of a large orange"). All clear as of 2002!
-
Drug or Chemo Therapy | Chemotherapy
Kadcyla every 3 weeks for 15 doses because of residual disease in the pathology report after mastectomy.
-
Side Effects | Nerve damage (peripheral neuropathy)
Neuropathy continues to disturb my daily life. My legs are weak and ands and feet hurt at night.
-
Radiation | External radiation
Blistering and burning for about 2 weeks out of 6
-
Anyone have experience with SIRT Y90?
Going to ask the DR about this, we are looking for options at this point. If anyone has ever had it performed, I would be interested in hearing about it
-
Stoma Damange
I am having problems with my stoma every since my surgery. It keeps getting worse. I am going to a wound care center for this, but it seems not to be clearing up. I hurt so bad and don't know if I will ever get this healed. I now go 2 times a week, I feel I need to change my flange every day and do a good cleaning of my…
-
Does the worrying and anxiety ever stop?
As more and more time goes by since my diagnosis and the treatments get more and more distant I should be feeling proud of how far I've come. But with that comes the worry and anxiety building more and more too.
-
Side Effects | Pain
Caused by a number of things, and/ or stemming from or exaserbated by radiation treatment. Serious 24/7 pain, which I manage well with natural remedies. Until I found something natural that worked, I was talking a woeful cocktail of narcotics that was the only thing that addressed the level of pain I experience I am happy…
-
Drug or Chemo Therapy | Chemotherapy
I received acupuncture every day from a Chinese MD who specialized in cancer, and I believe that it helped me endure the 24-hour chemo pumps and the office infusions with minor to no complications. I was ill, certainly, but considering my rather weak compisition and how ill I was going into this, my counts stayed good most…
-
Radiation | External radiation
Due to pre-existing conditions that made the 42- session radiation treatment necessary risky, I suffer from serious PRD (pelvic radiation disease) which has disabled me. I appreciate the UK's PRD Association, as in the USA, few doctors I have interfaced with acknowledge its ravages. As a counselor for children and adults…
-
Clinical Trial | letrozole with ibrance for HER2- trial
I was allergic to the ibrance and had to stop taking it
-
Celebration | Anniversary
2020 marks 8 years in remission. Our first grandchild is on the way!! Praise God!!! Feeling very good with minimal side effects. Losing some teeth where radiation was focused. GI complications are resolved. Loving life!!!
-
Loss | My mind/Sense of Humor
I am still feeling disfigured and lost at times. My job has been great but I am lost.
-
Drug or Chemo Therapy | Chemotherapy
It was so bad I could not even complete. Did 4 treatments and had to discontinue. Horrible experience that I do not wish on my worst enemy.
-
Procedure or Surgery | Mastectomy
I had a rough time. Infection set up 5 different times. Ex pander had to be removed 3 times. Chemo is no joke and I could not complete it.
-
Our February Newsletter is Available
This month we have a recap of our most popular blog posts that are full of valuable information to help us navigate through the cancerland that is our lives these days. Click here to read it>> https://conta.cc/2PjBkmI
-
Scar Tissue or Lesions on rib
Was diagnosed with Stage 3 111B colon cancer 3/18. Removed part of colon on 5/18. Began chemo on 8/18. My scan on 8/19 showed a lesion on my 5th left rib. Did radiation for 10 days in August. Oncologist switched me to Opdivo. However, nobody took a sample to see if its cancer on my rib, or scar tissue? My oncologist keeps…
-
What do you do about people wanting to hug you?
While in treatment I am paranoid about everyone snorting, sneezing, coughing, etc. Then you add that to someone who wants to run up and hug you. I don't want hugs! How do you fend them off without just yelling at them?
-
My doctor wants me to have a PET scan but my insurance is saying they won't pay for one now.
They say a PET is not needed now, wants them to do a ct scan first. This makes no sense to me at all. Why spend the money on a CT then when it won't show what they need they then pay for a PET. This is what's wrong with healthcare in our country these days. Anyone else having trouble getting a PET paid?
-
A friend of mine saw me yesterday and as we chatted I told her I hadn't been out as much in the last
She dropped her mouth and said, well you don't look like you have cancer! Almost in a way that suggested she didn't think I really did. I didn't know how to take that. Should I be happy that I don't look bad, or angry because she thought I might be lying about having cancer?
-
Opdivo Side Effects
I would appreciate hearing from anyone in the group who has, or is, experiencing problems with your platelets or blood while taking Opdivo. I have experienced other side effects, however low platelets have been the biggest concern. Thanking you in advance for any feedback.
-
Celebration | good pathology report
The margin is clean and the lymph node has no cancer.
