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How many years/months past finishing treatment are you, if you have finished treatments?
I am already stressing over a recurrence and I'm not even done with my treatments yet. I can't seem to stop worrying about it coming back after I'm done.
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Today is Rare Disease Day. Who here has a rare cancer?
Please post what type of diagnosis you have and when you were diagnosed. We hope all of you are doing well today on this rare day.
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Chemotherapy due to recurrence
I've had a recurrence of cancer in the same breast where I had a mastectomy over six years ago. I had a tumor and the implant removed earlier this month and just saw my Medical Oncologist today. Because of the aggressive nature on my cancer, he is recommending chemotherapy - dose-dense AC/T. The first time, I had Cytoxan…
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Celebration | Doctor check up..
Every check up been very positive happy times..
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Side Effects | Fatigue (tiredness)
Side effects have been harder than treatment I have days where I feel like a truck hit me..chemo brain forgetful at times trouble sleeping
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Oh No | Work problems
Lost my job right after treatment was over
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Drug or Chemo Therapy | Chemotherapy
Had first infusion of dd-AC/T chemotherapy on 3/11. Having a port made all the difference. So far, some queasiness (ginger), constipation (prune juice), dryness (nose and eyes), and generally feeling more tired (naps).
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Procedure or Surgery | Surgery for a port.
Some pain over the site of the port, but not excessive. The nurse navigator told me that some patients have chemo the same day. I'm glad I had a few days to heal.
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Procedure or Surgery | Mastectomy
My surgeon not only removed the tumor, but also the implant. Good news is that margin is clear and no cancer in lymph node.
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Celebration | Finished treatment
great feeling when the dr tells you that your cancer is gone the tumor was taken out and there was no lymph involvement
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Side Effects | Chemo brain
really did not have any bad side effects just tired and puffed up from steriods and bored from being low energy and having to try to stay away from people
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Drug or Chemo Therapy | Chemotherapy
your whole life changes while you are getting the chemo
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Did you lose your hair during chemo or from radiation?
Our blog post today has some helpful information to help you understand why and when you might lose your hair. Click here for the article http://bit.ly/2TdvKTY
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How long have you had a feeding tube in? The PEG type in the belly?
I have asked to have mine out a couple of times but the doctors don't want me to have it out yet because I keep having issues with my mouth/throat with not being able to swallow. I'm so ready to get it out. I keep bumping up against things with it, it's aggravating while sleeping, or any time really. Does anyone have one…
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Has anyone been through ABVD and MOPP in different diagnoses then had your Hodgkin's come back?
I have had two dx's and for some reason, I keep looking around corners waiting for the next one to come calling. I'm just wondering what the next treatment protocol is.
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Drug or Chemo Therapy | Chemotherapy
Started with Revlamid, had to stop after 1st round, continued with valcaid. #’s and markers not lowering at a good rate. 1st round of radical chemo will be given on Tues 3/3/20 I will be in hospital receiving chemo for 5 days
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Oh No | Never knew I had smoldering multiple myeloma
Sent to oncology dr in 2012. Told everything okay. Seen by same dr in 2015 told blood work looked good. Primary Dr never followed up. Returned to FL 2019 Received diagnosis
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Drug or Chemo Therapy | Pembrolizumab
Fatigue, pain and swelling in feet and legs but managable
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How common is it to have to get anti-depressants?
I have talked to my doctor about the mood swings and what seems like depression over this diagnosis but I haven't agreed to take them yet. I don't want to start another problem because of this problem. Does anyone have any experience with them?
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Oh No | Cancer has spread/Metastasized
small area on colon, but has spread to lungs
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Low blood sugar...nerve damage. Red hands / ...
Low blood sugar...nerve damage. Red hands / red feet. My hands were red on the inside, and extremely sore to the point where I could hardly pick up a utensil to eat with. The skin on my palms eventually peeled away to make room for new skin. My feet were red, but not nearly as bad as my hands. I had a gross looking big toe…
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Decision Point | Stopping chemo after 5 rounds instead of 6
The chemo was impacting my kidney and was no longer worth the risk
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Drug or Chemo Therapy | Chemotherapy
I did 5 rounds of gemczar cisplatin. The cisplatin was split between 2 weeks but is harsh on kidneys. Nothing tasted good so fluids was a problem. Always tired.
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diagnosis
its been 8 years since I found the lump in my breast. An out of this world experience. I have had coworkers to pass away from cancer,or their family member to pass away from cancer. pancreatic and liver cancer. new diagnosis of breast cancer for their loved ones. than they come back and say "I didn't realize what you were…
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Question re back pain, rib pain after treatment
Hi, I used to frequent this site when I was under tx in 2015-16, but forgot my username and password etc. Anyways, wanted to ask others that may have gone into mestatic cancer after their breast cancer treatment. I thought the back pain and now rib pain and pelvic pain, might of been due to my night cleaning job that I…
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Clinical Trial | Pemigatinib by Incyte. FIGHT202. It's an FGFR2 inhibitor drug.
This is an FGFR2 inhibitor. If you have bile duct cancer, you should have NGS(next generation sequencing) either through biopsy or a blood test(liquid biopsy) to determine if your tumor has a mutation that is able to be targeted by a specific treatment.
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Side Effects | Depression/Anxiety
I stayed depressed and started hearing voices to shoot my brains out. Literally. It was awful for me. I am still having pain a year later and unable to lose weight due to all the steroids.
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Microwave therapy
Is anyone here having microwave therapy. A lady in my cancer support group is taking microwave therapy with chemotherapy and a kind of directed radiation. It seems this is a very new treatment
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What do you have going on this week? Treatments, scans, surgery, check-up? Nothing?
I have a surgery follow up with my ENT Oncologist/surgeon to see how my stoma is healing, and I can get rid of this feeding tube that's hanging out of my belly. I've started eating on my own and I'm able to swallow so far with no issues so it's time to get that sucker out. It's aggravating having to watch out for it all…
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Evening primrose oil
I have had three surgeries since June of 2017. The initial lumpectomy, then in 2018 removal of a benign cyst and last spring a surgical biopsy that turned into a rather extensive lumpectomy to clean up a large seroma and scar tissue, also benign. As a result of all this messing around I have constant low grade pain in my…
