Does anyone know the survivor rate of inflammatory breast cancer stage 3?

Neeser
Neeser Member Posts: 11
edited December 2022 in Breast Cancer
2017 I was diagnosed stage 3@46 and it had spread to 5 lymph nodes and I am triple neg my Dr said I was rare due to my age and having that form started chemo my left ventricle had to be 55*% it was 66% he said 14 rounds and it's going to best up your body 12 is all I could handle u toyed with my life didn't Care I was supposed to have a mastectomy 4 to 6 wks after treatment I waited 5 month it started growing had surgery Aug 2018 took my nipple and 6 nodes and tissue I have a expander need to get reconstruct pathology report on the cells was stage 0 same as lymph ain't going to lie what are my odds of staying in remission?I went threw everything and alone threw the end and no help support nothing I have a good dr has anyone else had this experience and what was the yrs and out come did it come back somewhere else?

Comments

  • GregP_WN
    GregP_WN Member Posts: 742
    edited March 2020
    Your diagnosis type is different from mine, but I have had 3 recurrences. The numbers on recurrences are for a wide range of thousands of people and may not apply to you. Just as those numbers for my cancer didn't apple to me. I made it far longer than the numbers said I would before I had either a new cancer or a recurrence.
  • po18guy
    po18guy Member Posts: 329
    edited March 2020
    As to cancer in general: statistics and prognosis apply to groups of patients - but to no one in particular. The last time I had a prognosis was 2009 and it was 'extremely poor' - 3 month median survival. This was before another relapse and two additional cancers. Someone survives every cancer.

    Be that someone.
  • Carool
    Carool Member Posts: 787
    edited March 2020
    My cousin had Inflammatory Breast Cancer maybe eight years ago and is doing okay. I wish you everything good.
  • Kalee
    Kalee Member Posts: 18
    edited March 2020
    So, very sorry ....cancer bites! I am triple negative and stage 4 with recurence in sept. last year. Yesterday, keytruda was approved for triple negative ....ask your doc if this would apply for inflammatory breast cancer. I am on tecentriq at the moment after doing all the other stuff, another surgery, chemo and radiation. Don't be discouraged, there are plenty of people with inflammatory breast cancer that are doing just fine. There was a lady that had her own blog and started an organization for inflammatory, for the life of me i can't remember her name or the org, but i spoke to her, she was doing well, and i think it was 10 years into her diagnosis....her name was terry. I'll look and see if i can find info.
  • PaulineJ
    PaulineJ Member Posts: 205
    edited March 2020
    For what I can remember
    In 1998 Cololn surgery 3 times ( 1 in March,then 2 in Sept.(same week) Lots of complications.The 3rd was because of the 2nd surgery my colon was dying and I would have been dead in a week if they didn't operate the 3rd time.Lots and lots of complications since.And getting worst 'til now.Nothing has worked.
    I had 6 lymph nodes in 2012 with BC
    I had cervix biopsy and complications in my 40's
    Had gall bladder surgery in my teens or 20's?
    Open heart surgery(aorta valve) (bypass ) and tumors in 2014.
    Dental surgery in 2019.Still not done.I finally went back to United Health Ins.(Best ins.)I was miserable for 2 years with Tufts,but didn't want to lose the doctor I had.Second great doctors. And he's the best.For he does house calls (like in the old days.And he can get a needle for blood in me in seconds lol! I've been dehydrated for has long as I can remember.Complicated patient.lol! I was told.
    All the procedures and surgeries That I can remember and I'm still here.Tired , but here with,the grace of God.
  • PaulineJ
    PaulineJ Member Posts: 205
    edited March 2020
    Mentally and emotionally is another story,etc.
  • PaulineJ
    PaulineJ Member Posts: 205
    edited March 2020 Answer ✓
    Oops ! I forgot Hysterectomy in my 30-s-40's

    My doctor says I don't have dementer.,I'm too smart and remember lots of things.If he only knew.LOL!
  • petieagnor
    petieagnor Member Posts: 110
    edited March 2020
    I had Stage 3 ductal breast cancer in 2006 with 12 nodes removed. I don't exactly know what the survival rate is, but I'm still here after 14 years. I was 60 then. I went through most of the stuff you've gone through. Had taxol; lost hair; gained weight; lost weight; radiation; got burned; scarred. Keep in mind that everyone is different. Fighting any type of cancer is scary. I turned everything over to God. I only worried about what I could control, which wasn't much. I survived and you will, too. I hope this helps.
  • pennyo
    pennyo Member Posts: 1
    edited March 2020
    I have stage 4 inflammatory breast cancer. I'm into 3 years now and still hanging around. Try to keep a good attitude and remember to enjoy the little things when you can. Good luck...you have more support than you know!

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