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Celebration | Received Mastectomy Bra
This was a bittersweet celebration. I am glad to have a bra that makes my chest area look a little more balanced. I am glad I don't have to try to figure out ways to put a zillion things in my bra that get bunched up or fall out. It is a much nicer bra than I anticipated it would be. I thought it was going to be really…
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Celebration | Remission
It is the third time I hear the words, "Treatment has attained remission." When I first heard it for the first time, I celebrated and thanked God to have made it through. But it returned 9 months later, and I had to undergo an 18-month treatment for Relapse. When I finished that treatment, I heard the words, "Treatment has…
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Procedure or Surgery | Mastectomy
Had positive anterior margins.
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Oh No | Cancer is back/Recurred
I've had 2 recurrences since 2015.
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Drug or Chemo Therapy | Immunotherapy-Keytruda
Trying 3 rounds of Keytruda via IV, another drug recommended by Dana Farber. This was FDA approved in the fall of 2019 after clinical trials showed promising results in patients with advanced endometrial cancer. Feeling optimistic.
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Procedure or Surgery | CT scan
CT scan repeated following 3 rounds of Avastin. Results showed drug did not help and tumors are continuing to grow. Feeling defeated.
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Drug or Chemo Therapy | Immunotherapy-Avastin
Trying another immunotherapy drug called Avastin via IV. Plan is to do 3 rounds, every 3 weeks followed by CT scan again.
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Oh No | Cancer has spread/Metastasized
After 3 months on the Olaparib, CT Scan taken showed it didn't work with existing tumors growing along with new ones showing up.
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Drug or Chemo Therapy | Immunotherapy -Olaparib
Went on Olaparib for 3 months as my Oncologist recommended and the Dana Farber Oncologist recommended. Had no side effects from it.
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Procedure or Surgery | Implant chemotherapy port
It wasn't as bad as everyone told me and it makes doing my chemotherapy so much easier I wished I would have got my port sooner, I always was an easy stick until chemotherapy it destroyed my veins with my port I don't stress like I did I'm very happy with my decision.
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Drug or Chemo Therapy | Chemotherapy
My chemotherapy treatment is with gemcitabine and cisplatin along with dexamethasone I do have really bad hot flashes when I take the dexamethasone but other than that the nausea I had for years so I'm use to that and my oncologist prescribed zofran and it helps, I had very thick hair it is thin now but I'm not worried…
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My wife died on Mother's day, May 10th from M...
My wife died on Mother's day, May 10th from MDS, an illness called Pre-leukemia. She was cancer free after chemo treatments but the result of the chemo was fatal. My heart is broken. Our 57th wedding anniversary was today, May18th.
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Procedure or Surgery | Surgery
2 lymph nodes removed for biopsy, Bone marrow biopsy
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Procedure or Surgery | Surgery
I was told the growth was large enough to warrant the total removal of my thyroid and that this was the first step of treatment. I did a lot of reading and watched a lot of videos about the procedure and always ended up crying, feeling bad for myself. All of this happened during my winter break. I had just started graduate…
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Oh No | Health insurance issue
I convinced myself that the bump on my neck was nothing. It didn’t hurt, so it was fine. My boyfriend said it was fine, my younger sister said it was fine, I thought it was fine. I was young, active, healthy, fine. I cancelled care with the clinic enraged by the bill for a visit where I filled out paperwork, and declared I…
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Oh No | Problem with doctor
It was my senior year of college and it dawned on me that I didn’t have a doctor and hadn’t had a basic check up since I was in elementary school. The most I had done was a physical exam to do high school sports. I decided to apply to be a new patient with a clinic in my college town that would accept my mom’s work…
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Drug or Chemo Therapy | Chemotherapy
First treatment, minor nausea
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Procedure or Surgery | Surgery
Removed a lymph node to get diagnosis
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Side Effects | Nerve damage (peripheral neuropathy)
When touch cold, feels like knives going into my fingertips
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I am contemplating having the DIEP procedure ...
I am contemplating having the DIEP procedure done and I am interested in hearing from women who've gone through the experience.
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Celebration | Day one of Stem Cell Transplant
I’m now 6 months Post Stem Cell still weekly blood tests and doctors appointment
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Side Effects | Diarrhea
Chemo brain, cramps in legs, fatigue,
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Drug or Chemo Therapy | Chemotherapy
Chemo drugs-chop/ice/beam and Melphalan
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Procedure or Surgery | stent to ureter
Pat had a lower left abd tumor start to grow in Jan 2020. Well, it actually was growing before that for 2 months, but Jan is when we had to quit the clinical trial due to this growth. Eventually (March) it partially obstruct her left ureter, causing UTI-like complaints. It was decided by oncologist and urologist that a…
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Drug or Chemo Therapy | Hormone therapy
My wife Pat started on Megace and tamoxifen after having to quit a clinical trial. (see previous experience). The regimen is complicated, esp when added to other med schedules: she takes tamoxifen for 3 weeks, then Megace for three weeks, and again until we can get into a trial. Her doctor has a trial, but it is not open…
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Drug or Chemo Therapy | Chemotherapy
my 1st chemo is May 14,2020
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Procedure or Surgery | Implant chemotherapy port
This takes some getting used to.
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my 1st chemo will be May 14,2020. As of now ...
my 1st chemo will be May 14,2020. As of now I am cancer free. Had a radical hysterectomy in the beginning of March. But because of the type of cancer, Serious.I will be getting Chemo and radiation because it is a rare and highly aggressive form and it has a good chance of spreading.
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Oh No | Just Diagnosed
Sibling was just diagnosed. Don't know what stage the cancer is at nor who the Oncologist will be yet.
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Oh No | Just Diagnosed
Just diagnosed with Endometrial cancer. Don't know the stage yet nor if it has spread to other organs. Awaiting to know who the Oncologist will be.
