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Clinical Trial | I started a clinical trial with Keytruda Combined with ADU-S100 to see how the adde
This is the trial that I am on: https://www.cancer.gov/about-cancer/treatment/clinical-trials/search/v?id=NCI-2019-04759
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Drug or Chemo Therapy | Immunotherapy - Clinical Trial
I started Keytruda immunotherapy today, and a clinical trial with a drug called ADU-S100 combination. The keytruda went in without any problems, and the ADU-S100 injection was a little painful to have a needle stuck into the tumor in my neck. Overall, not too bad. As of this writing, at 830 PM I have no significant side…
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Oh No | Cancer is back/Recurred
Well ... maybe the cancer is back ... maybe it is not. For the first time since I was diagnosed in 2012, there is a new spot in my right lung. It is still small - 3 mm, lower right node. My oncologist says that spots sometimes show up in that area of the lungs that are not malignant. I could just be fighting an infection…
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Side Effects | Chemo brain
Was still bad even 8 weeks after radiation and 4 months after chemo. I started playing xbox Golf with my son and my chemo brain started to improve within 2 weeks...and felt real good after 3 months. It seems that all the hand coordination, timing, processing for game playing really help sharpen my thinking. Who knew!
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Side Effects | Insomnia and trouble regulating body temperature
This is a result of the hormone blocker Anastrozole. After trying motrim pm, melatonin (20mg), some Rx...I have settled in tylenol pm. I am still awaken several time a night with slight neuropathy, but at least I get some sleep.
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Drug or Chemo Therapy | Chemotherapy
Had my first and second chemotherapy, 5/13 & 5/27, with Taxol. Bone and muscle pain which did not respond to OTC medication. Was prescribed Norco which caused extreme itchiness during the second round of Taxol. Have stopped chemotherapy temporarily so that I can have cracked teeth extracted and take care of itchiness of…
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Decision Point | to treat or not to
we were given the choice...."prolong the inevitable , quality of life, maybe new treatments in 5 years...if she lasts that long
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Other Care | lifetime caregiver required
Mom did it dad worked, dad has heart attacks- no more work, mom passes away, older sister takes over caregiving (room and board with husband) of dad too.
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Celebration | Return home after 4 months
quiet at home
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Procedure or Surgery | Surgery
GBM confirmed...4 surgeries....80% right brain removed
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Oh No | Just Diagnosed
collapsed at school 7yrs old..... mom took home......temp dropping..calls dr....no worry......calls dad at work....dad say go to er.......brain hemorrhage....airlifted to Oakland childrens hospital.....the nightmare has begun...
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Radiation | External radiation
the side effects still showing up 17 years later
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Oh No | Money
I paid 10000$ for prgeta treatment
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Side Effects | Fatigue (tiredness)
Rush pain
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Procedure or Surgery | Surgery
TRAM flap 5/2020
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Celebration | Anniversary
One year after treatment was celebrated on May 24, 2020. Getting my first haircut next week. Slight neuropathy remains on right foot, and side effects from hormone blocker are all that remain. Doing very good!
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Drug or Chemo Therapy | Pomalyst
Also taking Dex.
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Oh No | stress over being a caregiver
I am currently taking care of my mothers picc line and indwelling pleural catheter. I feel guilty for feeling stress about this, as i would just like to really just be her daughter and enjoy what time she does have left. feel like she is not giving us the full scope of her diagnosis as she had a spot in her lung and it was…
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Oh No | stress
i am finding myself extremely stressed about my mothers cancer. She was so outgoing and active at 81 and now she is down, sad, and fatiqued
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Celebration | Remission
After Stem cell transplant in 2019. Last PETSCAN & BYISOPY in June 2020. No cancer found.
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Drug or Chemo Therapy | Chemotherapy
after chemo wear portable pump for 48 hours
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Drug or Chemo Therapy | Radiation therapy megesterol and tamoxifen alternating every three weeks
I haven’t had any new regrowth in 2 years it the cancer still exists in my lungs.
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Side Effects | Cough
Since the cancer was in both lungs I was treated aggressively. After 4 months of weekly chemo there was no more that could be done and my cough was so much worse (chemo cough) they stopped it.
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Oh No | Cancer has spread/Metastasized
Spread to both lungs, which is why I had the chemo. Wish I had a port placed cause my veins will never be the same again.
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Drug or Chemo Therapy | Chemotherapy
I had carboplatin and taxol every week for 4 months toward the end the fatigue was unbearable
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Radiation | Internal radiation
Slightly uncomfortable
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Oh No | Just Diagnosed
I was diagnosed with uterine cancer from a d and c biopsy procedure. I will be seeing an oncologist for the first time next week and am scared.
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Drug or Chemo Therapy | Chemotherapy
That was my first chemo now I am on Ibrance which a lot easier
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Loss | Body part/function
Kidney removal 12/2018.
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Procedure or Surgery | Surgery
Had kidney removed in December 2018. Spent a week in the hospital and 2 weeks in rehab. Had to have 2 blood transfusions due to excessive bleeding.
