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Side Effects | Eye Inflammation
Patient suffers from inflammation in both eyes.
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Side Effects | Taste change/loss
Patient says foods don’t taste good.
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Side Effects | Fatigue (tiredness)
Patient takes frequent naps and sleeps about 12 hours per night.
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Drug or Chemo Therapy | Other
Treatment has caused overactive thyroid, eye inflammation, back and body pain, and fatigue.
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Decision Point | Treatment Options
Doctor gave me the options of: abiteratone/prednisone, enzalutamide, or docetaxel (chemo) in addition to Lupron for my initial treatment. He favored docetaxel due to widespread Mets. Second opinion also favored same, with second option of abiteratone.
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Oh No | Just Diagnosed
Diagnosed with stage 4 prostate cancer with mets through hips, lower back, shoulders, sternum. Previously had no health issues, but went to the doctor for hip and shoulder pain. I originally thought it might be arthritis setting in at 46.
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Procedure or Surgery | Bone Marrow Transplant
I am surprised at how much this procedure (and the 25 day hospitalization) knocked me on my butt! I am normally quite active and stayed as active as possible in the hospital, but am still just completely exhausted.
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I am now almost a year out from radiation. B...
I am now almost a year out from radiation. But, the pain in my arm and side will not lessen. Are there any recommendations on what might help in relieving this pain? I have tried occupational therapy, heat , nothing seems to work.
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Drug or Chemo Therapy | Chemotherapy
I started with Gemzar and abraxane and. About 17 months. Took a break and did 5Fu and iriatacin for 2 months (it didn’t work and the side effects were horrible. Now I’m on carboplatin (3 months now, every week)It seems to be slowing down the monster, but it’s still growing and spreading. The side effects are vomiting,…
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Oh No | Just Diagnosed
June 2018. I’ll never forget it. My doctor said inoperable and I have two years to live. Oh no! I have made many changes in my life to improve the quality of living around here. I’m here at two tears now and still going “strong”.
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Side Effects | Fatigue (tiredness)
After two years of chemo and radiation I feel like side effects are an every day occurrence. It varies vomiting, nausea, fatigue, pain. I can’t complain. I’m still here...
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Side Effects | Rash
BAD BAD rash from the erbitux AND the mouth/neck 26 zaps of 2 gray each session. SUCKED!
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Radiation | External radiation
26 throat/neck radiation zaps of 2 gray each. TERRIBLE radiation burn around the neck. NO salvia. NO taste. SUCKED!
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Decision Point | chemo or not?
I began this journey taking Revlamid then subsequently wrapped up that. I've progressed and now, it's chemo time yet I've always said I'd never do chemo. I don't want my family to see that part of my journey. I want them to never know the down sides. I'm not sure what to do...
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Celebration | Finished treatment
After 5 brutal rounds of chemo I am done!!!
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Side Effects | Infection
too many side effects to mention
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Admitted to the hospital for 5 day continuous...
Admitted to the hospital for 5 day continuous treatment. Made it through 5 rounds. Hospitalized 5 more times during treatment with infections
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Oh No | triple negative breast cancer stage 4
Ok so this was a wake up call
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Drug or Chemo Therapy | Chemotherapy
neuropathy very intense by third session
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Oh No | Screwed Up My Experiences Timeline on Here
Ugh, I accidently wrote over my original one with things going on today (it's been a long day and apparently I not only have stage IV cancer, but also pneumonia, and COVID? I'll blame that on why I screwed up. I hardly ever write in here, so maybe that's why I royally screwed it up. Will fix later
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Celebration | Breakthrough
I finally got back to cardio training at the gym. My last session at the gym was January 20th before my lumpectomy and then my mastectomy. Then just as I was released to do strength training, COVID-19 closed down the world and my gym was ordered to close. I have been walking and doing a little bit of yoga all along. On…
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Oh No | Cancer has spread/Metastasized
Oh no what can I say. Now the doctors are saying I have a new cancer. This is completely a new cancer. I now have small cell lung cancer that has spread to my liver with stage 4. I was admitted to 10 days in the hospital with aggressive Chemo. My husband took me in with a 7 8 blood pressure and anomia. I am now out and…
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Drug or Chemo Therapy | Chemotherapy
Dad will begin chemo treatments next week
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Procedure or Surgery | Surgery
Leg amputation due to synovial cell sarcoma behind the knee cap
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Celebration | Received Mastectomy Bra
This was a bittersweet celebration. I am glad to have a bra that makes my chest area look a little more balanced. I am glad I don't have to try to figure out ways to put a zillion things in my bra that get bunched up or fall out. It is a much nicer bra than I anticipated it would be. I thought it was going to be really…
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Celebration | Remission
It is the third time I hear the words, "Treatment has attained remission." When I first heard it for the first time, I celebrated and thanked God to have made it through. But it returned 9 months later, and I had to undergo an 18-month treatment for Relapse. When I finished that treatment, I heard the words, "Treatment has…
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Procedure or Surgery | Mastectomy
Had positive anterior margins.
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Oh No | Cancer is back/Recurred
I've had 2 recurrences since 2015.
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Drug or Chemo Therapy | Immunotherapy-Keytruda
Trying 3 rounds of Keytruda via IV, another drug recommended by Dana Farber. This was FDA approved in the fall of 2019 after clinical trials showed promising results in patients with advanced endometrial cancer. Feeling optimistic.
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Procedure or Surgery | CT scan
CT scan repeated following 3 rounds of Avastin. Results showed drug did not help and tumors are continuing to grow. Feeling defeated.
