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Procedure or Surgery | Surgery
radical hysterectomy and removal of cervix
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Procedure or Surgery | Thyroidectomy
Thyroid was removed and it is hard to keep the meds to where I am not going from hypo to hyper.
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Drug or Chemo Therapy | Taking for over 9 yrs now Letrozole
Lucky I have no side effects
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Radiation | External radiation
Had a great group that when my skin was getting burned they changed and did the whole breast instead and then went back so i did not have bad burn
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Drug or Chemo Therapy | Chemotherapy
Carboplatin I could not finish 2xs because I had a reaction it was the last 2 times.
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Oh No | Just Diagnosed
Discovered inadvertently July 8 during retinal exam for floater in other eye (which turned out to be harmless). Diagnoses confirmed July 15 by ocular oncologist--in the ciliary body (dang). Radiological Oncology telephone consult July 24. In process of ordering materials for and constructing plaque for brachytherapy…
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Oh No | Just Diagnosed
Discovered inadvertently during retinal exam for problem with other eye. Diagnoses confirmed by ocular oncologist--in the ciliary body (dang). In process of ordering materials for and constructing plaque for brachytherapy (internal radiation), tentatively Aug. 14 (implantation)-18 (removal).
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Oh No | Just Diagnosed
I was diagnosed a couple of weeks ago, but it is small (less than 2 cm) and early. It was not a huge shock because two of my mother’s sisters died of breast cancer. I have decided on bilateral mastectomy (not nipple-sparing). If pathology on lymph nodes is positive, I will also have radiation therapy. I am thankful that I…
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Side Effects | Hot flashes
Early on in treatment, several years out it is minimal.
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Side Effects | Incontinence (cannot control urine)
With 3rd stem cell transplant (allo), due to certain chemotherapies and other medications. Took a several months to subside.
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Side Effects | Memory changes
Actually changes, there seems to be no rhyme or reason as to when it presents and goes away.
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Side Effects | Mood changes
Comes with the territory.
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Side Effects | Mouth sores
Did not have them until I recently got sick, January 2020. Thought to be a bi-product of a GVHD flare up. Diagnosed with Flu-B, not sure now if it wasn't COVID-19.
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Side Effects | Nausea/Vomiting
Comes and goes with all treatments and with GVHD.
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Side Effects | Weight loss
Nature of the beast, currently monitoring my intake and have had to change what I intake. I am now a vegetarian, as my body refuses red meat. Working my way to vegan, as I feel better eating this way.
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Side Effects | High blood pressure (hypertension)
Being medicated presently, but it fluxuates. My script fluxuates according.
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Side Effects | Fatigue (tiredness)
Neverending, you learn to live with it. However, there are times of extreme fatigue and other times when it is so minimal you think you are finally back to normal.
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Side Effects | Depression/Anxiety
Both come and go, I think it is part of the cancer itself. I have found Xanax (only when needed), deep breathing, Reiki and meditation work wonders.
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Side Effects | Chemo brain
Seeking treatment for this presently, I put it off for far it long. It is real.
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Side Effects | Anemia (low red blood cell counts)
Had to have one or two iron infusions and now take iron supplements.
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Side Effects | Diarrhea
Changes depending on treatment types and the GVHD flare ups.
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Side Effects | Constipation
Changes depending on treatment types and the GVHD flare ups.
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Radiation | External radiation
The actual radiation procedure was rather painless, just tedious. The initial and long term side effects left much to me desired. A year or so out, I have little to no negative effects from the full body radiation.
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Side Effects | Fatigue (tiredness)
Was receiving chemo and radiation at the same time,now just receiving chemo. When I was receiving both I was exhausted ! Now that I'm only receiving chemo, I'm so tired. I've been on chemo (Ibrance) since 10/2019.
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Loss | Lost loved one
My father passed of BRCA2 related prostate cancer.
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Decision Point | Stop oral chemo or continue
I chose to continue with the oral chemotherapy, Xeloda.
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Celebration | Anniversary
8 years out from 1st diagnosis and surgeon says looks great.
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Side Effects | Fatigue (tiredness)
and some anal leakage everyday - but a small price to pay for not having to have a colostomy bag
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Drug or Chemo Therapy | Avastin Treatments
Only painful and enlarged tongue after sessions
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Oh No | Cancer has spread/Metastasized
disbelief
