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Procedure or Surgery | Debulking surgery
Great Gyno Onc
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Other Care | PET every three months
my remission has been over 3 years with PET scans suggested by MD Anderson every 3 months as became sensitive/allergic to Rituxin I did the first six month course but a year later was told to do just Rituxin once every few months-got way too sick -so just watching by PETSCAN MDAnderson is tops on Mantle cell but local…
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Oh No | Cancer has spread/Metastasized
Spring 20021 Radiologist suggested surgery after last PET/CT scan showed recurrence. Met w/ ent surgeon who wanted to slice & dice. I chose NOT to do surgery. The "possible" side effects might be some loss of motion in right arm and I am WAY TO ACTIVE (swimming 3000yds/day, surfing, yoga, all around VERY active to take…
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Clinical Trial | Auto stem cell transplant/ high dose chemo to address aggressive protein
Before agreeing to the trial, i have to share having bone marrow biopsies freaked me out- the pain was intense for me.I responded very well to the initial rounds of chemo and was in remission. However, with more in depth testing as part of the trial i had a choice to either go directly to maintence treatment or have the…
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Drug or Chemo Therapy | Chemotherapy
Initial six rounds of chemo was frightening as it was unknown. But it didnt interfere too much in my life- i missed 2-3 days from work per month mostly for fatigue. That was the only side effect i experienced
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Oh No | Just Diagnosed
I was informed I had cancer a few days after my mom died. I was in shock and immediately compartmentalized and kept it to myself until i completed all testing
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Celebration | Remission
Not total. 2 months b4 treatment is finished.
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Oh No | Cancer has spread/Metastasized
Dr.seems nonchalant. Wasn't in beginning Very frustrating
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Drug or Chemo Therapy | Chemotherapy
After radiation my oncologist scheduled me to have a port placed in order to start first chemo meds. I received Abraxene & a immunotherapy drug. After 8 months I developed painful colitis from the immunotherapy drug so had to stop it. After 2 more months of just Abraxene my scan showed spots on my liver. I am now on a…
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Radiation | External radiation
My first course of treatment was radiation.
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Clinical Trial | I received a 3 part dose of drugs Revlimed, Dexamethasone, Valcaid
I was part of a research study at Northwestern Medical Center. It involved a stem cell transplant then heavy doses of Steroids and Chemo. I did this twice, once in 2019 and again in 2020 along with a 3 week hospital stay to watch my white blood cells return to normal. The first time was pretty rough the second week. I had…
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Radiation | External radiation
could have been worse but was bad enough
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I have not purchased the drug yet...still doi...
I have not purchased the drug yet...still doing research.
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Oh No | Cancer has spread/Metastasized
Some symptoms were diarrhea, loss of appetite. Went for a scan & was told on 11-16-21 that cancer was terminal. With chemo I had 2 years.
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Procedure or Surgery | Double Mastectomy
Surgery scheduled for the beginning of December 2021. Double Mastectomy with Reconstruction
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I don't know yet...
I don't know yet
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I have not taken any drugs yet...Doing lots o...
I have not taken any drugs yet...Doing lots of research don't agree with estrogen blocker pills.
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Procedure or Surgery | PET
Checking to see where else the cancer may have traveled.
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Oh No | Cancer is back/Recurred
After 13 years, tumor at site of initial diagnosis. However, stage 1 and grade 2 (first was grade 3), but this time Pr-negative (ER pos, HER2 neg)
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Side Effects | Rash
Starting to see some side effects: Fatigue, mouth dryness and sores and skin rashes.
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Drug or Chemo Therapy | Keytruda
I'm two rounds of immunotherapy in. Starting to feel some side effects.
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Side Effects | Chemo brain
Brain frogs. Loopy loopy loopy.
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Side Effects | Depression/Anxiety
I have had two chemo treatments so far. I had a panic attack during both.I had racing heart and trembling all over. They say it's from the taxol but I'm suspicious of the Benadryl.
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Procedure or Surgery | Debulking surgery
I had a giant tumor (35cm)(almost 14 inchs) Creepy! Now I have a giant scar to match. Also creepy.
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Procedure or Surgery | Hysterectomy
I'm 37 and going through menopause. I don't know anything about menopause. I don't have any women in my life I can talk to. Any advice would be greatly appreciated.
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Oh No | Health insurance issue
I didn't have health insurance the day of my diagnosis. I had to jump right on that. Lots of phone calls. It turned out really well though thanks to Medicaid and Affordable Health Care Act. I haven't payed a dime.
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Oh No | Work problems
I got fired from my job the day they found out I'm sick. The HR person called me right before my surgery to let me know. I'm not eligible for family medical leave because I hadn't been with the company a year. I'm a machinist. I've been working as a machinist for 12 years but rarely get to work in the same machine shop for…
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Procedure or Surgery | Surgery
Surgery went well. Removed my left kidney and recovery wasn’t bad at all.
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Celebration | Anniversary
Joined 5 year survivor club at Cancer Center.
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Celebration | Finished treatment
Oct.21,2021 ringing the bell for final treatment!!
