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Celebration | Remission
Not total. 2 months b4 treatment is finished.
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Oh No | Cancer has spread/Metastasized
Dr.seems nonchalant. Wasn't in beginning Very frustrating
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Drug or Chemo Therapy | Chemotherapy
After radiation my oncologist scheduled me to have a port placed in order to start first chemo meds. I received Abraxene & a immunotherapy drug. After 8 months I developed painful colitis from the immunotherapy drug so had to stop it. After 2 more months of just Abraxene my scan showed spots on my liver. I am now on a…
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Radiation | External radiation
My first course of treatment was radiation.
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Clinical Trial | I received a 3 part dose of drugs Revlimed, Dexamethasone, Valcaid
I was part of a research study at Northwestern Medical Center. It involved a stem cell transplant then heavy doses of Steroids and Chemo. I did this twice, once in 2019 and again in 2020 along with a 3 week hospital stay to watch my white blood cells return to normal. The first time was pretty rough the second week. I had…
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Radiation | External radiation
could have been worse but was bad enough
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I have not purchased the drug yet...still doi...
I have not purchased the drug yet...still doing research.
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Oh No | Cancer has spread/Metastasized
Some symptoms were diarrhea, loss of appetite. Went for a scan & was told on 11-16-21 that cancer was terminal. With chemo I had 2 years.
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Procedure or Surgery | Double Mastectomy
Surgery scheduled for the beginning of December 2021. Double Mastectomy with Reconstruction
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I don't know yet...
I don't know yet
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I have not taken any drugs yet...Doing lots o...
I have not taken any drugs yet...Doing lots of research don't agree with estrogen blocker pills.
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Procedure or Surgery | PET
Checking to see where else the cancer may have traveled.
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Oh No | Cancer is back/Recurred
After 13 years, tumor at site of initial diagnosis. However, stage 1 and grade 2 (first was grade 3), but this time Pr-negative (ER pos, HER2 neg)
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Side Effects | Rash
Starting to see some side effects: Fatigue, mouth dryness and sores and skin rashes.
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Drug or Chemo Therapy | Keytruda
I'm two rounds of immunotherapy in. Starting to feel some side effects.
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Side Effects | Chemo brain
Brain frogs. Loopy loopy loopy.
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Side Effects | Depression/Anxiety
I have had two chemo treatments so far. I had a panic attack during both.I had racing heart and trembling all over. They say it's from the taxol but I'm suspicious of the Benadryl.
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Procedure or Surgery | Debulking surgery
I had a giant tumor (35cm)(almost 14 inchs) Creepy! Now I have a giant scar to match. Also creepy.
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Procedure or Surgery | Hysterectomy
I'm 37 and going through menopause. I don't know anything about menopause. I don't have any women in my life I can talk to. Any advice would be greatly appreciated.
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Oh No | Health insurance issue
I didn't have health insurance the day of my diagnosis. I had to jump right on that. Lots of phone calls. It turned out really well though thanks to Medicaid and Affordable Health Care Act. I haven't payed a dime.
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Oh No | Work problems
I got fired from my job the day they found out I'm sick. The HR person called me right before my surgery to let me know. I'm not eligible for family medical leave because I hadn't been with the company a year. I'm a machinist. I've been working as a machinist for 12 years but rarely get to work in the same machine shop for…
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Procedure or Surgery | Surgery
Surgery went well. Removed my left kidney and recovery wasn’t bad at all.
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Celebration | Anniversary
Joined 5 year survivor club at Cancer Center.
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Celebration | Finished treatment
Oct.21,2021 ringing the bell for final treatment!!
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Side Effects | Hair loss (alopecia)
Mouth sores so couldn't eat only mashed potatoes,cottage cheese, soft foods, dehydrated real bad after each treatment of " Red Devil", received fluids for 3 days after treatments!!
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Oh No | Took 2.5 months from time of diagnosis to get an endocrinologist appointment despite pancrea
There should be an endocrinologist on the cancer team.
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Drug or Chemo Therapy | Chemotherapy
About someone I know who has cancer, Chemo is still challenging despite meds given for usual side effects but does not cover other symptoms that could be managed with OTC meds.
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Drug or Chemo Therapy | Chemotherapy
Tafinlar/Mekinist difficult schedule with moderate side effects and so much monitoring for damage to other systems
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Drug or Chemo Therapy | Immunotherapy
After his first round of combo immunotherapy (Opdivo & Yervoy), my husband developed Grade 3 drug induced pneumonitis. This resolved with steroid treatment, but meant he could no longer take the combo treatment. The one treatment alone, however, has stimulated his immune system enough to have shrunken the tumour in his…
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Other Care | radiation and chemo surgery chemo now immunotherapy
on immunotherapy after 2 years of treatment
