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Symptom Management | Physical therapy
Very helpful. Gave me techniques to manage my severe fatigue.
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Drug or Chemo Therapy | Chemotherapy
This was my second round of TC chemo, after a recurrence 13 years post initial diagnosis. I actually think it was easier this time, and attribute that to exercise and knowing what to expect
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Radiation | External radiation
It was easy and painless.
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Drug or Chemo Therapy | Chemotherapy
It was definitely a life-altering experience.
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Procedure or Surgery | Lumpectomy
I was still numb and outside myself and not really getting what was happening to me.
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Oh No | Just Diagnosed
I was Numb.
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Other Care | Palliative care
I work for a wonderful company that gave me 26 weeks off with pay. I have ran all my "keep my job" time off that there is available, and have started back to work part time. My new FEAR is making my bills each month, as I am single and have always worked hard to save and look forward to retirement...that's way down the…
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Decision Point | LEGAL SUIT
Please if anyone reads this and would like to help. I think that I must file a lawsuit if only to save others from the pain and suffering that I was/am still subjected to. I have read many others experience with breast cancer, and have not ever read that this is a common practice of doctors. I fear that I now have PTSD. IT…
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Procedure or Surgery | Mastectomy
Recovery wasn’t horrible- but I wish someone had told me your nerves wake up about two weeks later and that hurts!
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Drug or Chemo Therapy | Chemotherapy
haven't started yet
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Oh No | Just Diagnosed
Total shock
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Side Effects | neuropathy, neutropenia, digestive system, hair loss, mouth sores, chemo brain
I had many...can't believe I have to do this again after only 18 months.
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Drug or Chemo Therapy | Chemotherapy
Couldn't tolerate Adriamycin/Cytoxin, was hospitalized; went to Taxol, that was okay caused neutropenia and neuropathy; had additional CMF. Now have to have it again due to recurrence...Trodelvy.
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Radiation | External radiation
it was okay; ended up with burns on my skin.
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Clinical Trial | CAR-T November 2018
2019 in remission
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Side Effects | Fatigue (tiredness)
Post chemotherapy, I struggled with fatigue and overall coordination
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my healthy sister started this wild cancer ri...
my healthy sister started this wild cancer ride on May 1 of this year with blood in her urine. The doctor's say it's a high risk cancer and they have begun treating it with high risk chemotherapy. She had her ureter and 1 kidney removed and has had 1 round of chemo. They will need to adjust her chemo cocktail so it's not…
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Loss | Body part/function
Dealing with long-term side effects: neuropathy, pain, fatigue, hair loss and regrowth, nail damage and pain, cognitive deficits from chemo
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Celebration | Breakthrough
Finished chemo 3/31/21
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Drug or Chemo Therapy | Chemotherapy
R-CHOP
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Oh No | Just Diagnosed
I was in shock! I'm not an emotional person, but during the phone call with my PCP, and hearing the words that; "you have Cancer!" I started to cry. Not because I was sad, or why me, or that I was going to die; I was just shocked!
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Other Care | Other
Since I am young, and at high risk; I currently am taking an injection in my stomach once a month (Zoladex-Goserelin) and a pill once a day. Both for five years, three more to go. I started off having hot flashes. I no longer do. Now, I'm having bone pain.
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Side Effects | Fatigue (tiredness)
I was tired after my Infusions. I started to lose my hair (so I had my nephew to shave it for me). After a while I got the metallic taste in my mouth (I still ate lol). I also lost muscle mass because I wasn't able to work out after my breast procedures. Also, my periods were stopped during Chemo (Two years now).
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Celebration | Remission
im now two years remission.
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Drug or Chemo Therapy | Chemotherapy
currently doing chemo/immunotherapy
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Radiation | External radiation
30 treatments of radiation.
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Side Effects | Diarrhea
Carboplatin, Taxotere, Herceptin, and/or Perjeta I assume caused diarrhea
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Side Effects | Random joint pain
This was mainly from the Neublasta on-pro that I received at each treatment. Day 2 after treatment to day 4 were the hardest. I would have random pain in joints, neck, back and extreme fatigue.
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Side Effects | Nerve damage (peripheral neuropathy)
Have it in my fingertips and toes that started after my 5th of six chemo treatments. I did do icing of my hands and feet, but I still have neuropathy. Additionally, my fingernails are all deteriorating and regrowing at the same time.
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Procedure or Surgery | Lumpectomy
My mass had about 90% cancer gone, so chemo was working. However, I was hoping the cancer was all gone. Also, cancer was found in 2 or 4 lymph nodes extracted. One was macro-metastasis and one was micro-metastasis. I did have a drain. My surgery was on July 30, 2021, and I am still recovering.
