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Oh No | Took 2.5 months from time of diagnosis to get an endocrinologist appointment despite pancrea
There should be an endocrinologist on the cancer team.
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Drug or Chemo Therapy | Chemotherapy
About someone I know who has cancer, Chemo is still challenging despite meds given for usual side effects but does not cover other symptoms that could be managed with OTC meds.
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Drug or Chemo Therapy | Chemotherapy
Tafinlar/Mekinist difficult schedule with moderate side effects and so much monitoring for damage to other systems
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Drug or Chemo Therapy | Immunotherapy
After his first round of combo immunotherapy (Opdivo & Yervoy), my husband developed Grade 3 drug induced pneumonitis. This resolved with steroid treatment, but meant he could no longer take the combo treatment. The one treatment alone, however, has stimulated his immune system enough to have shrunken the tumour in his…
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Other Care | radiation and chemo surgery chemo now immunotherapy
on immunotherapy after 2 years of treatment
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Symptom Management | Physical therapy
Very helpful. Gave me techniques to manage my severe fatigue.
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Drug or Chemo Therapy | Chemotherapy
This was my second round of TC chemo, after a recurrence 13 years post initial diagnosis. I actually think it was easier this time, and attribute that to exercise and knowing what to expect
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Radiation | External radiation
It was easy and painless.
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Drug or Chemo Therapy | Chemotherapy
It was definitely a life-altering experience.
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Procedure or Surgery | Lumpectomy
I was still numb and outside myself and not really getting what was happening to me.
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Oh No | Just Diagnosed
I was Numb.
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Other Care | Palliative care
I work for a wonderful company that gave me 26 weeks off with pay. I have ran all my "keep my job" time off that there is available, and have started back to work part time. My new FEAR is making my bills each month, as I am single and have always worked hard to save and look forward to retirement...that's way down the…
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Decision Point | LEGAL SUIT
Please if anyone reads this and would like to help. I think that I must file a lawsuit if only to save others from the pain and suffering that I was/am still subjected to. I have read many others experience with breast cancer, and have not ever read that this is a common practice of doctors. I fear that I now have PTSD. IT…
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Procedure or Surgery | Mastectomy
Recovery wasn’t horrible- but I wish someone had told me your nerves wake up about two weeks later and that hurts!
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Drug or Chemo Therapy | Chemotherapy
haven't started yet
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Oh No | Just Diagnosed
Total shock
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Side Effects | neuropathy, neutropenia, digestive system, hair loss, mouth sores, chemo brain
I had many...can't believe I have to do this again after only 18 months.
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Drug or Chemo Therapy | Chemotherapy
Couldn't tolerate Adriamycin/Cytoxin, was hospitalized; went to Taxol, that was okay caused neutropenia and neuropathy; had additional CMF. Now have to have it again due to recurrence...Trodelvy.
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Radiation | External radiation
it was okay; ended up with burns on my skin.
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Clinical Trial | CAR-T November 2018
2019 in remission
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Side Effects | Fatigue (tiredness)
Post chemotherapy, I struggled with fatigue and overall coordination
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my healthy sister started this wild cancer ri...
my healthy sister started this wild cancer ride on May 1 of this year with blood in her urine. The doctor's say it's a high risk cancer and they have begun treating it with high risk chemotherapy. She had her ureter and 1 kidney removed and has had 1 round of chemo. They will need to adjust her chemo cocktail so it's not…
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Loss | Body part/function
Dealing with long-term side effects: neuropathy, pain, fatigue, hair loss and regrowth, nail damage and pain, cognitive deficits from chemo
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Celebration | Breakthrough
Finished chemo 3/31/21
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Drug or Chemo Therapy | Chemotherapy
R-CHOP
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Oh No | Just Diagnosed
I was in shock! I'm not an emotional person, but during the phone call with my PCP, and hearing the words that; "you have Cancer!" I started to cry. Not because I was sad, or why me, or that I was going to die; I was just shocked!
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Other Care | Other
Since I am young, and at high risk; I currently am taking an injection in my stomach once a month (Zoladex-Goserelin) and a pill once a day. Both for five years, three more to go. I started off having hot flashes. I no longer do. Now, I'm having bone pain.
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Side Effects | Fatigue (tiredness)
I was tired after my Infusions. I started to lose my hair (so I had my nephew to shave it for me). After a while I got the metallic taste in my mouth (I still ate lol). I also lost muscle mass because I wasn't able to work out after my breast procedures. Also, my periods were stopped during Chemo (Two years now).
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Celebration | Remission
im now two years remission.
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Drug or Chemo Therapy | Chemotherapy
currently doing chemo/immunotherapy
