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Radiation | Internal radiation
I radiation on my pelvis
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Oh No | Health insurance issue
Insurance company I had when I was diagnosed refused to pay anything towards hospital bill, surgery or the cancer scans. So stressful and has financially ruined me.
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Side Effects | Pain
I had R-CHOP for DLBCL and finished in early jan of 2020. I was NED after 4 treatments but my doctor wanted me to have the full 6. I had hit an inguinal lympth node with the corner of a large table I was moving, I hit it hard and thought I had seriously injuured myself. I felt the area for several days and comapred to the…
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Procedure or Surgery | Surgery
Coulple weeks off work turned into three months. Horrible yeast infection, nausea like morning sickness with estrogen cream, no baths sucked, trying to stay clean and keep house spotless was really hard sharing a bathroom with my family. Couldn’t sit without horrible pain for months, prolapse made excercise almost…
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Celebration | Remission
It's been almost 7 years since my last radiation treatment (August 2015 to be exact) and I am still in remission!! All by the grace of God!! He sure is good to me! Don't stop fighting; all life is precious to God and yours won't end until He says so! And even then, if you've accepted Jesus as your Savior and ask to be…
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Side Effects | Memory issues, arthritis really painful now,almost unbearable at times.
I find myself stumbling and having trouble focusing on tasks. On 200 mg Keytruda every 3 weeks, started in October
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Drug or Chemo Therapy | Immunotherapy
Medications also prescribed for mental assistance
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Procedure or Surgery | Surgery
Had long needle biopsy done by X-ray and ct scan for lesion on liver. The melanomas was in 7 areas inside of me, shin bone, back, liver, ribs.
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Procedure or Surgery | Sentinel lymph node biopsy
Had a full body pet ct scan
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Procedure or Surgery | Surgery to remove cancer that has spread
Went immediately to MUSC 3days after biopsy results that were positive
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Oh No | Just Diagnosed
Mole on side exponentially grew and turned colors in a couple of weeks
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Oh No | Cancer has spread/Metastasized
Currently not in my liver but my lymph nodes.
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Side Effects | Cough
Drug induced pneumonitis developed after first treatment of combo immunotherapy along with extreme fatigue. Resolved with steroids.
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Drug or Chemo Therapy | Chemotherapy
He was scared his, Dad takes him to treatment, trouble adjusting to all meds, can't do anything no energy
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Procedure or Surgery | Long-term catheter
Didn't really know what to expect, but his Mom had been through it
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Oh No | found out on his own due to Covid-19 protocols
his wife was in hospital with GBS, 2 children 11 &10, no job, can't pay bills no money coming in
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Side Effects | Nerve damage (peripheral neuropathy)
I have lost dexterity and strength in my legs and my hands. I am 2 months past chemo (r-epoch) and wondering if/when this side effect will lessen or if it will
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The effects of radiation were not so much ins...
The effects of radiation were not so much instantly felt but appeared later in the journey.
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Drug or Chemo Therapy | Chemotherapy
Covid had just exploded on the scene so I was somewhat on my own through this leg. Also my boyfriend of 10 years left me and my dog died.
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Oh No | Just Diagnosed
On vacation I was hospitalized after a near drowning experience. Due to trouble regaining my ability to breathe I was given a CT scan and an X-ray that revealed the cancer. Such a blessing to have discovered it before it became more advanced.
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Celebration | Anniversary
12/17/2021 I am SO blessed & thankful! My last chemo after 1st recurrence was 12/2018. Then I tried a PARP- Zejula- which after 2 weeks, crashed my platelets & caused me to be hospitalized for 2 weeks! My onc & I agreed, no more Zejula- my body's reaction was so extreme & it took SO long to recover, they thought I was…
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Celebration | Remission
CA125 went from 4200 before hysterectomy to 8 Pelvic CT scan is clear blood counts back to normal
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Side Effects | Chemo brain
A little Chemo Brain seems to be subsiding use the Dignicap system was able to keep 80 Slight Chemo Brain seems to be subsiding no other side effects I used the Digni Cap I keep 90% of my hair 5
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Drug or Chemo Therapy | Chemotherapy
Adjuvant Carbo/Taxol 6 rounds
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Procedure or Surgery | Debulking surgery
Great Gyno Onc
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Other Care | PET every three months
my remission has been over 3 years with PET scans suggested by MD Anderson every 3 months as became sensitive/allergic to Rituxin I did the first six month course but a year later was told to do just Rituxin once every few months-got way too sick -so just watching by PETSCAN MDAnderson is tops on Mantle cell but local…
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Oh No | Cancer has spread/Metastasized
Spring 20021 Radiologist suggested surgery after last PET/CT scan showed recurrence. Met w/ ent surgeon who wanted to slice & dice. I chose NOT to do surgery. The "possible" side effects might be some loss of motion in right arm and I am WAY TO ACTIVE (swimming 3000yds/day, surfing, yoga, all around VERY active to take…
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Clinical Trial | Auto stem cell transplant/ high dose chemo to address aggressive protein
Before agreeing to the trial, i have to share having bone marrow biopsies freaked me out- the pain was intense for me.I responded very well to the initial rounds of chemo and was in remission. However, with more in depth testing as part of the trial i had a choice to either go directly to maintence treatment or have the…
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Drug or Chemo Therapy | Chemotherapy
Initial six rounds of chemo was frightening as it was unknown. But it didnt interfere too much in my life- i missed 2-3 days from work per month mostly for fatigue. That was the only side effect i experienced
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Oh No | Just Diagnosed
I was informed I had cancer a few days after my mom died. I was in shock and immediately compartmentalized and kept it to myself until i completed all testing
