Things have been quiet lately

JaneA

Donna, thank you so much for the update. I am grateful that Greg got to come home and see family and friends and his furry friends. There are no rule books for learning how to live without a loved one. Each of us finds what is right for us. Best wishes in finding peace of mind and comfort.

andreacha

Donna, like the others I appreciate you joining us for a few. I know you miss Greg terribly and I'm sorry that there is no way to take that hurt away from you. You were the best partner any man could ask for and Greg never hesitated to let us know that. We are all at a loss on the site and I pray we can salvage it for Greg. I know he would want us to. Please take good care of yourself and pop in whenever you feel like it. We will always love to hear from you.

KB2013

Well, I had two separate surgeries back to back over the past 2 days. Dr. said I must have been living in terrible pain for some time (local doc doesn’t believe in pain meds) and I was nearing a sepsis crisis. I’m pissed. My bp was dangerously high. I would like to find real help for serious pain mgmt so I don’t have to wait for crisis to put me in hospital.
If anyone needs answers re: bowel or bladder surgery, let me know and I’ll share my experiences thus far (lifetime gut pt with surgical interventions and urological with interventions) What upset me while in hospital was having to share bathroom with male pt who peed with the seat down! Take care peeps.

Teachertina

Oh my goodness BP2013, that sounds awful! I hate to hear of such a terrible experience. Sounds like your local doctor isn’t willing to manage your pain. I hope you can find a new doctor somewhere close by. I fired a doctor that almost got me killed. Remember that they work for YOU! The hospital situation was unacceptable also. I hope you are doing better soon. I’m also happy you found us here at WhatNext. You’ll find lots of support here. Let us know how you are doing. Wishing you well!

Teachertina

KB2013, sorry about getting name wrong!

legaljen1969

I want to respond to several responses.
@Pauline, I have always loved writing. It has always been one of my passions, and when I finally settle down and get my heart and soul in the right place- the words come a little more easily. I have heard from someone else on the site that you are an amazing woman with a very battle tested back story. I cannot recall who told me, but if you ever care to share with me- write on my wall and I will give you an email address.
@LivingWithCancer- I know it puts you in a quandary wanting to have family together for a holiday but knowing the DIL is not too careful. I am sure she understands if you keep it small, especially this year. Maybe you all can do a Zoom session or something similar and share some part of your Thanksgiving virtually. My neighbor tested positive a couple of weeks ago but has since tested negative three times so I think she is past it. My husband and I have been tested, even though we have been asymptomic. With my father having heart issues and being 80 years old, I wasn't leaving anything to chance. I wish you all a happy Thanksgiving holiday.
@KB- how frustrating that your "roommate" was an inconsiderate slob. I am pretty shocked they had people set up two to a room. I guess they were pressed for bed space? I would have been so upset to have to share with someone who wasn't very hygienic . Yuck.
Many good thoughts for speedy healing (relatively speedy) and for you to find a doctor who is more willing to manage your pain. So many doctors are walking such a fine line these days- so afraid to lose their license for overprescribing medication- becoming known as a "pill doctor." That fear is so great that they undertreat the people who really need help. If he or she is not comfortable, he/she needs to confer with other members of your care team and let one be the "gateway" for your pain. They really need a pain management specialist, perhaps. Sounds like the potential sepsis situation was getting pretty dire. There is NO reason you should have to wait for a crisis to put you in the hospital. You definitely need a pain specialist.
@Teachertina- glad you fired the doctor who almost got you killed,
@andreacha- I think we have all done pretty well keeping each other supported since Greg's loss. I do not believe the site needs to be "salvaged." I don't really think it has come apart. We have all done pretty well keeping up and keeping things moving forward in a way that is honoring to Greg. That's my perception, at least. Maybe others see it differently.

PaulineJ

@legaljen1969 I almost didn't want to respond,but I have a habit of not letting others hang more or less.I'm done explaining don't take it personal.But I thank you .

Carool

KB2013, I’m so sorry you are suffering, and I hope you get the proper pain management you need. That “local doctor” needs some empathy-injections ASAP (if only). Let HIM see how it is to live with terrible (or any) pain, and I bet he’ll become a “believer” at the first twinge.

Lorie

KB2013,
I had a procedure in October that is left me unable to walk any distance. At that point it is painful so I kind of know what you're going through. My only hope is going to a bunch of different doctors to find out why have to keep advocating for yourself. I'm not going to give in and you don't either ok?

BuckeyeShelby

I was in the hospital 3 times over the summer, then 3 weeks in skilled nursing. Didn't have major stupid-surgeonitis. Just minor. He sent me home with a drain, wound vac and I live alone. Hence that 3rd hospital visit and vacay in skilled nursing. KB, are you still in the hospital or have you been sprung? Regardless, hope you feel better.

Bengal

I too have been dealing with long term pain issues. It is frustrating when you cannot get a timely appointment, when you finally do it's much talk, little action and when I finally got something going my insurance denied the procedure. I do not wish suffering on anyone but I think doctors (AND INSURANCE DECISION MAKERS) would be far more empathetic if they actually got to experience some of this stuff for themselves. KB and Lorie, I commiserate and hope you are able to find relief.

KB2013

Buckeye, I got sprung, yes but, no pain relief at home. I am glad that doctor didn’t ignore my symptoms as I had no idea how sick I was. I only go to that hospital as a cancer patient but now I learned I was on the cusp of sepsis and the local doc had not ordered intervention despite lab results showing infection. Like you, I live alone and it can get scary. I’m glad you are doing better and hope you recover nicely. Glad they at least allowed skilled nursing to provide proper after care.

legaljen1969

@BuckeyeShelby and @KB2013- I cannot imagine how scary and frustrating it must be to have to undergo things when you live alone. Sometimes we rely on another set of eyes or someone else's judgment- especially when we are not feeling well. We seem to need someone else to confirm we aren't completely losing it and the symptoms and pain we feel are all too real.

I am glad both of you have been sprung from the hospital and inpatient care.

Best wishes for continued event free recovery for you both.

legaljen1969

@Pauline- I wasn't requesting or expecting an explanation or an answer. Obviously you know this, but you are under no obligation to answer or explain anything to me. I was merely offering to be a sounding board if you ever need someone to talk to or you would like to discuss anything further or privately off the board. No expectations dear, just an offer (and a sincere one at that).

PaulineJ

I know .It was just a general answer from me.Nothing personal to you personally.I have a bad habit of explaining things on circumstance and not a individual.I guess it's a problem since others take it otherwise.I wish I knew how to say things like you.LOL!