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Oh No | Cancer has spread/Metastasized
Got radiology/pathology results back on Monday 1/27/2020. Doctor very discouraging/discouraged- seems absolutely stunned that invasive is now in picture. Told me again about larger margins- much larger- but no longer contained In Situ. It has become more invasive. Will schedule me for PET Scan/MRI. I am current waiting for…
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Procedure or Surgery | Lumpectomy
Surgery 1/22/2020. Knew lumpectomy for removal of calcifications- know there are two areas so know margins will be larger than initially planned. Apparently quite a bit larger margins than anticipated according to surgeon's post-op discussion (very minimal since I was under anesthesia).
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Procedure or Surgery | Savi Scout Transmitter implant.
Went in 1/20/2020 to have Savi Scout implant to track appropriate incision site. Waiting and waiting for radiologist and surgeon to discuss implanting site. Find out maybe place between "two areas." What? Two areas- this is news to me. Breast care nurses show me images and tell me "long way apart in surgical terms"-…
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Oh No | Just Diagnosed
12/16/19 found out I definitely have DCIS. Plan is to do lumpectomy, then radiation (5x/week for 6 weeks)Then a course of Tamoxifen. All sounds pretty simple. Ready to go. Scheduled surgery for 1/22/2020. Will be done with Savi scout. Have to get Savi scout markers placed pre-surgery. Scheduled for 1/20/2020.
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Procedure or Surgery | Stereotactic Biopsy
Had stereotactic biopsy and had marker placed.
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Oh No | Just Diagnosed
Calcifications detected on mammogram. Had two more follow up mammos to verify. Got referral to surgeon who will schedule biopsy and get care team together (apparently that's the normal protocol here in this area). Got a referral to do a stereotactic biopsy on 12/10/19.
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Side Effects | Nausea/Vomiting
Still have daily nausea and anxiety Meds don't seem to be helping.
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Oh No | Cancer is back/Recurred
5 years to the day colon cancer returned
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Drug or Chemo Therapy | Chemotherapy
2nd rounds of chemo
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Procedure or Surgery | Surgery
Liver surgery 0ct 2014 it had spread from my colon
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Oh No | Cancer is back/Recurred
Cancer first diagnosed Feb 2014
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Other Care | Dealing with basal cell carcinoma since 2017.
2 biopsies on my back, 1 on my chest and 1 on my middle ear which required a skin graft after removal. Still having basal cells as of 2020.
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Milestones | Other
I was diagnosed Nov 2011, Stage 3, Incurable Non-Hodgkin's Follicular Lymphoma (NHFL). I did 2.5 years chemo Bendamustin & Rituxan every 28 days for six months, Rituxan every other month for 2 years. After last chemo, it took two years for my oncologist to use the word, Remission. Last visit with my oncologist - she told…
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Side Effects | Bone thinning (osteoporosis)
I have a chemo fog constipation severe migraines extremely tired sleep a lot depression fear the unknown. Excessively dry mouth hot flashes anxiety.
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Loss | Body part/function
Lung damage, skin rash & joint pain from transplant.
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Celebration | Birthday
I have celebrated 3 years of my re-birthday! I am 100% donor cells 3 years later.
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Side Effects | Bone thinning (osteoporosis)
There are at least ten side effects on the list of side effects. I experienced side effects of chemotherapy, the stem cell transplant (neutropenic), idiopathic thrombocytopenia; weight loss, anemia, dry eyes, mouth sores, constipation, bone pain, osteoporosis from steroids, weakness & inability to walk unassisted. All…
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Oh No | Just Diagnosed
Diagnosed with a very rare bone cancer; Myeloproliferative Neoplasm that was Myelofibrosis.
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Decision Point | Had to decide to have a stem cell transplant or not. Given a 50/50 chance of survi
It was going to be a long arduous recovery and I was warned of it's difficult recovery. It took at least a year to regain my strength but chemo brain stayed with me for about 2 years.
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Procedure or Surgery | Other
Stem cell transplant left me incapacitated for about 1 year.
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Drug or Chemo Therapy | Chemotherapy
Lost 50 lbs & the ability to walk normally due to weakness in 2016. I had to have chemo for a stem cell transplant.
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Side Effects | Weight loss
How do I get my husband to try to eat? He started out at 157 pounds and is now down to 113 pounds. We go to the doctor in a couple days and I'm go to push to get a feeding tube. Does anyone have any advice?
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I have metastatic NSCL adenocarcinoma I have ...
I have metastatic NSCL adenocarcinoma I have had Carboplatin Altima and Keytruda it's holding off lung modules but not lympnodes I have a rare EGFR mutation
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Oh No | Just Diagnosed
Breast cancer stage 1a. Lumpectomy preformed, 6 nodes removed. Waiting for results about radiation/chemo.
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Oh No | Cancer is back/Recurred
Our MEK-inhibitor trial has come to an end after about 4 years. BUT, we are about 9 years into the Ovarian Cancer diagnosis, meaning we are doing very well. On our last 2 visits to our trial clinic, two tumors had grown a little and the CA-125 was up. So we had to drop out of the trial. (Pat was the only person left i the…
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Side Effects | Diarrhea
Constant after Whipple. Heavily medicated on hydrocodone and elixir of opium to slow down digestion. Losing weight plus chemo issues.
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Drug or Chemo Therapy | Chemotherapy
No bueno.
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Procedure or Surgery | Surgery
Whipple, Northside Hospital staff not well trained for patients after this surgery. Dietician not trained.
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Oh No | Cancer has spread/Metastasized
Waiting to hear if I will get my PET Scan. Very frustrating.
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Oh No | death
My sister has passed away 09/31/19
