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Celebration | Remission
MRI on 12/5/18, almost a year to the day from diagnosis said NO RESIDUAL SIGN OF DISEASE
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Drug or Chemo Therapy | Chemotherapy
Taxol caused neuropathy in my feet and bevacizumab ate my colon up and I became allergic to Carboplatin
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Decision Point | Change medical care.
I decided in June 2019 to move from University of Michigan Medicine to I Stanford University Healthcare in Stanford, California. My son needed help with his children and I needed to be near close family in my battle. By faith I relocated from my birth state to California. I am thrilled to know I have phenomenal doctors who…
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Drug or Chemo Therapy | Targeted therapy
Crizontinib no longer worked for me after three years. I started Alectinib May 4, 2017. Although my response to treatment improved causing brain metastasis to shrink, the initial side effects were horrible. Muscle aches and lower back pain was so unbearable that I had palliative care for a Chiropractor for six months or so…
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Radiation | External radiation
From 11/22-12/07/16 a XRT 50 Gy to enlarging right infrahilar lymph node was discovered. It caused mass effect on multiple bronchi.
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Clinical Trial | AT13387 (HSP90 inhibitor) × 2 cycles with concurrent Crizontinib.
I simply hated this trial that I participated in from May 15, 2015 to July 10, 2015. My lymphedema became worse, I became dehydrated. Constipation was a nightmare. I was fatigued more. This trial hindered my quality of life.
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Side Effects | Lymphedema
From the beginning lymphedema is a very challenging side effect for me.
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Side Effects | Diarrhea
When taking the carbo/pem/bev intravenous chemotherapy and later a targeted therapy called Crizontinib, diarrhea was terrible for me.
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Drug or Chemo Therapy | Chemotherapy
Immediately while hospitalized I had a carbo/pem/bev intravenous chemotherapy. Around the third cycle I started turning black and blue on the palms of my hands. I became too weak to continue working full-time.
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Procedure or Surgery | Video assisted thoracic surgery
In short, I was a superwoman prior to surgery. Started going down by the head quickly after surgery and chemo.
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Drug or Chemo Therapy | Chemotherapy
Switching to another cocktail: Abraxane and Avastin. 4 more rounds. Day 1, Day 8, Day 15 and Day 28 (new Day 1)
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Drug or Chemo Therapy | Chemotherapy
Chemotherapy Begins Again. Carboplatin and Avastin. Only 3 rounds completed as an allergy to Carboplatin develops. Day 1, Day 8, DAy 15 and Day 28 (becomes the new Day 1)
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Drug or Chemo Therapy | Hormone therapy
Prescribed Letrozole as my previous tumors had markers that indicated the treatment would be successful. And it was...for about 7 months.
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Oh No | Cancer is back/Recurred
September 2018, I was told the cancer had returned again. And again to my liver.
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Side Effects | Nausea/Vomiting
The nausea got to be too much and I quit taking Zejula in May 2018.
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Drug or Chemo Therapy | Maintenance or consolidation chemotherapy
Excited to be able to take Zejula. But wow, did it make me nauseous, even after dose reducing down to 100mg.
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Drug or Chemo Therapy | Chemotherapy
Gemzar and Carboplatin: 6 rounds received. Day 1, Day 8 and Day 21 (new Day 1).
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Procedure or Surgery | Debulking surgery
Laparoscopy, laparotomy, cytoreduction, R0 disease; metastases--perihepatic, peripancreatic, perihilar; lesion greater curvature stomach; cholecystectomy.
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Decision Point | New Chemotherapy or Surgery?
The chemotherapy stopped being effective in January of 2017. I had to decide whether to go the surgical or new chemotherapy route. I ended up selecting the Surgery.
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Procedure or Surgery | Surgery
Umbilical Hernia Repair Surgery - Delays chemotherapy.
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Drug or Chemo Therapy | Chemotherapy
Doxil and Avastin: 7 rounds received. Day 1, Day 8 and then Day 21 (new Day 1).
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Celebration | Finished treatment
July 2015
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Procedure or Surgery | Second look surgery after chemotherapy
Ileostomy Reversal and 2nd look - No Evidence of Disease!
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Drug or Chemo Therapy | Chemotherapy
Carboplatin and Paclitaxel, traditional infusion and done intraperitoneally.
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Oh No | Just Diagnosed
Carrying my briefcase and a book bag to work one wintery day I stopped short of breath and a throb near my heart. A few minutes later, standing in front of the secretary, she says, "You're wheezing...go to the hospital." Two weeks later, after a ton of tests while being hospitalized, I was diagnosed with stage IV ALK…
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Procedure or Surgery | Primary tumor debulking
Surgery on items as follows: laparoscopy converted to laparotomy, total abdominal hysterectomy, bilateral salpingo-oophorectomy, en bloc rectosigmoid resection with end-to-end anastomosis, pelvic and aortic lymphadenectomy, omentectomy, splenectomy, full-thickness diaphragm resection, right appendectomy, precardial tumor…
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Oh No | Just Diagnosed
Diagnosed in February 2015, and to think I thought I was just having an issue with my appendix.
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Oh No | Just Diagnosed
In Oct of 2018. It was found on a routine mamo. i just knew when i got the call to go back something was wrong.
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Celebration | N. E. D.
one yr out, there is no evidence of disease
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Celebration | Finished treatment
just happy to have the daily radiation visits over
