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Radiation | Proton Radiation
Had to stop treatment for 8 days because burns were so bad. The good news is that skin recovers quickly!
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Drug or Chemo Therapy | Chemotherapy and HerceptinProjeta target treatments
Few side effects until the last 2 infusions. The 6th infusion was awful - wiped me out and it took nearly 8 weeks to recover
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Celebration | Finished treatment
February 2019
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Drug or Chemo Therapy | Chemotherapy
Weight loss 17lbs. Hair loss. Loss of appetite, diarrhea for a week after each treatment. Food had a metallic or super sweet taste.
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Radiation | External radiation (Proton beam)
43 radiation treatments likened to a bad sunburn
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Drug or Chemo Therapy | Hormone therapy
Loss of muscle tone and strength. More emotional
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Side Effects | Mouth sores
His mouth is still so sore and his tongue feels huge. He is having a hard time getting enough in him to maintain his weight.
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Side Effects | Pain
My husband has been in pain since the surgery in August. He is at a constant three at all times. He doesn't sleep much all; a couple hours at a time day and night.
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Side Effects | Nerve damage (peripheral neuropathy)
My 14 year old daughter has been cancer free for 8 years now. About every 3 months she has massive nerve pain where her portacath was located in her chest. It hurts and bothers her so much that she doesn't sleep much at all for the entire week. We are wondering if there is anyone else who has dealt with this. Not sure if…
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Celebration | Remission
tumors pretty much gone. PSA # very very low. Not going back to dr for this one.
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Radiation | External radiation
six treatments at specific locations in spine, hips and ribs. Easy no problem.
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Drug or Chemo Therapy | Chemotherapy
Did taxol and cisplatin. No hair, lost weight, neuropathy in feet and hands. Stopped treatment on doctors recommendation due to side effects. Hair returned but weird, weight back, neuropathy stayed.
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Radiation | Internal radiation
Even though I seemed to have mild affects, I still had burning sensations in my butt and girlie parts and a nice one on the right side of my pelvic.
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Whilst the procedure is painless the aftermat...
Whilst the procedure is painless the aftermath is red raw both phsically and mentally
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Had to accept the "new normal" which is now t...
Had to accept the "new normal" which is now the norm
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Oh No | Just Diagnosed
Having no one going to an ER and within 15 minutes being told I have cancer
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Side Effects | Fatigue (tiredness)
Did not feel like doing much. Although I know I should exercise, I have little energy to do it.
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Drug or Chemo Therapy | Chemotherapy
Gemzar and cisplatin...split 2 Thursdays then a week off...I so looked forward to the week off. No vomiting but did use the nausea drugs. Did not wait to feel nauseous to take nausea meds.
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Drug or Chemo Therapy | Chemotherapy
After severe reactions to the first chemo drugs I was put on Gemcitabine and carboplatin, except for the itchies at infusion time, they were very easy to tolerate and very few sides....minimal fatigue and nausea
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Celebration | Hair is back
When I could no longer take taxol and bevacizumab, the drugs they gave me didn't make me lose my hair and it has been back now since September, except for armpit and leg hair, YAY
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Other Care | Home care
I had 6 weeks of home health after being in hospital for 31 days and for a wound that would not heal
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Procedure or Surgery | Surgery
Robotic laparascopic radical right nephrectomy.
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Other Care | Home care
I had about 6 weeks of home health after being in hospital 31 days
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Loss | Lost loved one
The day I got my port I had my head shaved. When we got home late that day our 14 year old cat was very ill and had to be put down the next day. I spent 31 days in the hospital and my favorite aunt died while I was in there and a very good friend died, also.
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Celebration | Remission
MRI on 12/5/18, almost a year to the day from diagnosis said NO RESIDUAL SIGN OF DISEASE
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Drug or Chemo Therapy | Chemotherapy
Taxol caused neuropathy in my feet and bevacizumab ate my colon up and I became allergic to Carboplatin
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Decision Point | Change medical care.
I decided in June 2019 to move from University of Michigan Medicine to I Stanford University Healthcare in Stanford, California. My son needed help with his children and I needed to be near close family in my battle. By faith I relocated from my birth state to California. I am thrilled to know I have phenomenal doctors who…
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Drug or Chemo Therapy | Targeted therapy
Crizontinib no longer worked for me after three years. I started Alectinib May 4, 2017. Although my response to treatment improved causing brain metastasis to shrink, the initial side effects were horrible. Muscle aches and lower back pain was so unbearable that I had palliative care for a Chiropractor for six months or so…
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Radiation | External radiation
From 11/22-12/07/16 a XRT 50 Gy to enlarging right infrahilar lymph node was discovered. It caused mass effect on multiple bronchi.
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Clinical Trial | AT13387 (HSP90 inhibitor) × 2 cycles with concurrent Crizontinib.
I simply hated this trial that I participated in from May 15, 2015 to July 10, 2015. My lymphedema became worse, I became dehydrated. Constipation was a nightmare. I was fatigued more. This trial hindered my quality of life.
