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Loss | Body part/function
I am having a hard time dealing with the chronicity of UC. It's a real downer. Covid-19 is also hard to deal with in the midst of my UC issues. I am thinking about seeing the mental health counselor at my oncologist's office
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Side Effects | Hair loss (alopecia)
Once on the immunologics I had rash on my extremities, treated with a topical cream. Hair loss was to be expected and I handled it well. The diarrhea from the Keytruda was horrible--I lost 42# in 4 months, had some rectal bleeding and absolutely NO energy.
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Side Effects | Allergic reaction
rash on extremities, anemia, chemo brain, diarrhea, fatigue
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Oh No | Cancer is back/Recurred
Two years later another bronchoscopy revealed adenocarcinoma of the same lung. The first time it was squamous cell. What do we do now?
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Drug or Chemo Therapy | Chemotherapy
I had difficulty with the steroids that accompanied my chemo treatments. After adjuvant chemo I lost my hair, which I handled well with hats and scarves. I was a walking ad for "take care of yourself" and "you could survive this, as well."
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Drug or Chemo Therapy | Chemotherapy and radiation combined
I was diagnosed two weeks prior to my planned retirement date. Now I really had to adjust to a new schedule.
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Oh No | Just Diagnosed
It was more of an "I should have known" since I was a smoker for 27 years and had been off of cigarettes for 27 years. I have also had emphysema for 10 years.
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Procedure or Surgery | Full lymph node dissection
the lymph node biopsy went well.
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Drug or Chemo Therapy | Immunotherapy
I have only had 1 treatment so far with minimal side effects. I will update post after each treatment which will be monthly.
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Cant go through the treatment again. Will see...
Cant go through the treatment again. Will see if there is different treatment from 7 years ago. But I don't know.
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Drug or Chemo Therapy | Rituxan - & on Imbruvica Daily 420 mg
Minor issues with both. Luckily, handled well & tolerable.
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Oh No | Thought it was pneumonia. NOPE.
Needed 6 blood transfusions as blood levels at 4.1 super low. Secondary cold agglutinins doing the PacMan thing w/my blood cells.
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Drug or Chemo Therapy | Rituxan (1-IV infusion) & 3 Sub-Q Hycela & Imbruvica 420 mg day capsule
Infusion & sub-q went well. Minor issue with each, but physically handled with no extreme measures. Imbruvica--minor side effects that are manageable.
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Procedure or Surgery | bone marrow biopsy
For formal diagnosis, had bone marrow biopsy. Dr. thankfully set me to radiation for outpatient surgery. Pretty much complete 'active' WM in bone marrow. Just enough for all required tests.
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Drug or Chemo Therapy | Immunotherapy therapy - Rituxan and daily Imbruvica capsule 420 mg
For me: it's been pretty uneventful. Drugs are working and am currently in remission (don't know how far, but apparently pretty good levels per Dr.).
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Decision Point | treatment
Dr. started off with Benda/Rit 4x over 4 months. 2d Opinion and he discussed and decided in end to go Rituxan & Imbruvica.
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Oh No | Just Diagnosed
Had unknown pneumonia. Found out cold agglutinins (secondary) w/WM within month of 6 heated transfusions for low HGB (4.1 at start). Hello 65 yrs! Keep the gift!
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Celebration | Remission
I am still in remisssion!
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Decision Point | Type of surgeon?
My wife has been diagnosed with hurthle cell carcinoma. It was discovered during the removal of left node of thyroid. It was performed by ENT. The ENT wants to remove the other half immediately. We dont have an endocrinologist yet. Need advice on whether we should have a specialist surgeon do the rest of the surgery or let…
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Oh No | Relationship issues
I just told my siblings I'm having surgery and may have cancer. I haven't heard from 2 siblings for over a year except for family business calls. Now one sibling's spouse texted and wants to chat about how I am. How do I deal with all the hurt feelings? This person has always considered me the black sheep of the family and…
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Celebration | Anniversary
Three years and still above ground ... There's hope!
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Decision Point | treatment
Treat this 1st or breast cancer
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Decision Point | Other
Well, my mom just got diagnosed with stage 4 lung cancer. Radiation treatment is the treatment plan everyday for 2 weeks. S please send advice how to love her well? .
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Decision Point | I have had progression on my current TKI
After 4 years on the oral targeted therapy drug I am on I developed olioprogression and had to undergo radiation treatment. I am waiting for my next set of scans to determine if the radiation worked and I can remain on my current medication.
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Loss | Ability to perform certain task
Due to extreme shortness of breath especially on exertion it is very difficult to walk up stairs or any incline and causes limitations that were not there before I got cancer.
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Celebration | Cancer is shrinking
I am five years post diagnosis for stage 4 NSCLC and have had no progression at this point while on oral targeted therapy. Hooray!!!
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Side Effects | Diarrhea
I had severe diarrhea caused by the targeted therapy drugs, Xalkori and Alecensa. A probiotic recommended by my oncologist has worked very well for me.
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Other Care | organic diet
I decided to try natural alternative measures.
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Celebration | Anniversary
3 years cancer free but I worry constantly about it coming back somewhere else and that we don't find it until it's too late. Iwas told that they'd be checking me every three months but it has only been every 6 months and that makes me nervous. I am getting an infusion of Zometa at each appointment to keep it from going…
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Side Effects | Nerve damage (peripheral neuropathy)
9 years out lost lots hair, not bald. No cancer though.
