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Celebration | Cancer is shrinking
I am five years post diagnosis for stage 4 NSCLC and have had no progression at this point while on oral targeted therapy. Hooray!!!
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Side Effects | Diarrhea
I had severe diarrhea caused by the targeted therapy drugs, Xalkori and Alecensa. A probiotic recommended by my oncologist has worked very well for me.
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Other Care | organic diet
I decided to try natural alternative measures.
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Celebration | Anniversary
3 years cancer free but I worry constantly about it coming back somewhere else and that we don't find it until it's too late. Iwas told that they'd be checking me every three months but it has only been every 6 months and that makes me nervous. I am getting an infusion of Zometa at each appointment to keep it from going…
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Side Effects | Nerve damage (peripheral neuropathy)
9 years out lost lots hair, not bald. No cancer though.
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Side Effects | Near death experience
Right hemicolonectomy. Followed by Folfox. Only side effect was neuropathy which persists. Reoccurrence in liver with surgery and resection of right lobe plus more. Surgeon did not leave enough liver to regenerate.. Reoccurrence of cancer in remaining liver. Lesions removed with SBRT at UF. No side effects. Have a liver…
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Loss | Job
Musician. Can't work during a pandemic
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Procedure or Surgery | Removal of bladder tor
I have a recurring internal bladder tumor that had.to be removed. It 2as outpatient and although the area still lights up.in pet scans it seems to be under control with chemotherapy.
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Other Care | Hospitalization
Hospitalized numerous times due to acites.
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Celebration | Remission
Remission but surgeon killed my liver.
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Radiation | SBRT
Cancer in liver reoccurred. Removed at UF by SBRT. Cancer free for the moment.
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Procedure or Surgery | Surgery
Surgeon removed too much liver and can’t regenerate. Lost 80 pounds.
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Drug or Chemo Therapy | Chemotherapy
Folfox..only side effect was neuropathy.which persists 3 years later.
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Radiation | SBRT
Cancer free after treatment and at 6 month follow up.
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Radiation | SBRT
Had SBRT radiation due to reoccurrence after liver surgery.
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Drug or Chemo Therapy | Chemotherapy
FOLFIRI almost killed me.
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Procedure or Surgery | Surgery
Liver surgery ...resection of right lobe of liver.
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Oh No | Cancer has spread/Metastasized
Spread to liver.
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Oh No | Cancer is back/Recurred
cancer back stage iv
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Procedure or Surgery | Lobectomy
cancer was stuck to chest wall took hours longer. they didnt get it all. tried to remove chest tube without cutting the stitches so very painful. lasting nerve damage in arm chest area and stomach and in constant pain still
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Oh No | Just Diagnosed
Well I went from thinking the outcome of my mammogram would be the same benign diagnosis to just being numb. I am still numb with disbelief. Invasive Ductal Carcinoma grade 3 stage 2b. Er+ Pr+ Her- I’ve had so many appts since the diagnosis. So hard to keep them straight. I admit that I’m a little afraid but I have to roll…
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Other Care | Naturopath
Working with two Naturopaths with one being a cancer specialists. We started with alternative treatments 2 weeks ago with a lot more to come. Radiation and possibly chemo are coming soon also.
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Oh No | Problem with doctor
Radiology Oncologist told me that my cancer is incurable and there are no alternatives.
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Oh No | Just Diagnosed
Found lump myself, had to wait 3 weeks for a mammogram. Had mammogram, ultrasound and biopsy all in one day. 3 days later was told I have breast cancer and 3 days after that I met with the surgeon and was told I have two different types of breast cancer. It's been a whirlwind of doctors appointments and information. I…
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Other Care | Home care
home care helpful in keeping up with my vitals and draining pleurex catheter. May need to have IV fluids.
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Decision Point | next treatment
nervous that I'm having difficulty with current treatment and afraid of the next possible treatment if available.
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Clinical Trial | TAK-788
Feel sick with vomiting and diarrhea; depressed from not sleeping well. tired.
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Side Effects | Diarrhea
Feel sick with vomiting and diarrhea; depressed from not sleeping well. tired.
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Drug or Chemo Therapy | Chemotherapy
Feeling sick to stomach; vomiting and diarrhea.
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Oh No | Just Diagnosed
scared and panicked
