mgm48

Hi Dennis here and I just posted my story - you appear to be further along on this journey - be fun to chat if you are so inclined you can get some additional info about me at my site www.pcaaware.org or at www.theprostatecancercoach.com

He lost the fight June 2014.

Hello,
You sound like you have been through a lot as has my husband.
He was diagnosed in 2009 at the age of 49. Right now he is very miserable as you can see on his profile.
Take Care!!

Where is Michael?

How are you doing?

How long did you have to deal with incontinance after your surgery?

Thanks very much for the info and encouragement. It’s always a help when you’re dealing with the big C. My situation is that I have had prostatitis since my mid-40s with PSA readings from six to the low teens. I have had two biopsies between age 46 and 57. At 55 I also had a microwave treatment for enlarged prostate with urinary problems. Last December, at age 66 I underwent a TURP to correct the returning urinary problem. That is when they found the cancer because of the excessively large prostate and reconnecting the urethra, prostate removal is not an option. That is why the combined treatment six months of hormone blocker and the rapid arc radiation. Rapid arc is a 360° rotating machine pinpointing the tumor and causing less damage to healthy tissue that is why the 43 treatments less than five minutes per treatment.

Diagnosed 2 years ago, did hormone thearpy and Zytiga. Lesions on bones, just found out I have one on vertabrea pressing on spine. Began radiation and pain has eased. Will start chemo when radiation done. You give me hope brother, keep up the fight.

Thanks for your "best answer" To my recent question on the issue of a wife leaving her husband after prostate cancer and 29 yrs. I hope you had the chance to read the blog post I put up addressing the situation in full. All the best to you in your continued recovery. We are in the same boat, as we continue to survive.

I read your blog post. Thank you it was nice.

Enjoyed your piece. Two years ago I was diagnosed with testicular cancer during the holiday season. That's a frustrating time because you want to get in there and fight and all the doctors are off! Best to you. So far I have made it. If I get testicular cancer the third time I'll be famous!

Congratulations on being a survivor. Thank you for sharing your story, particularly about how you are able to stay positive through it all. You are an inspiration to me and many others. My intent is to follow in your footsteps, as I continue to recover, and provide hope for others who are faced with a difficult diagnosis.

Thank you for sharing...you are a true role model!

Thanks Mike for sharing your experiences with us all here. Really appreciate and wishing you all the best.

Hi Michael,
Great meeting with you as usual. Really enjoyed the conversation also as usual. Here is the crazy letter I got which was so off the wall I didn't even know what to say or how to respond. Someone had to sit down and write it but it jumps all over the place. When you want a mind exercise, try and make sense out of this one!

You can find the original letters about 18-20 days ago on my timeline.




lursua


AS I READ YOUR POST TO ME YOU SAID YOUASSUMED BY PICTURE I WAS THE PROVIDER NOTPATIENT.

NO THE PICTURE IS MY DR. SURGEON/PROFESSOR/ROBOTICS DR. JENNIFER A. LINEHA WHO IS ONE OF CITY OFHOPES CANCER PROSTATE CANCER DR. AT CITY OF HOPE, LANCASTER ,CA. OFFICE.SHE OPERATED ON MY STAGE 4 PROSTATE REMOVAL WITH 2 LYMPHNODES ON 3-26-2013, FOLLOWED BY CHEMO. SHOTS AND DAILEY RADATION TREATMENTS FOR ABOUT 6MONTHS UNTIL I WAS INVOLVED IN A ACCIDENT ON 8-23-2013 GOING TO MY LAST5-8 RADATION TREATMENTS. WHICH I HAVE NOT BEEN ABLE TO MAKE FOR NO AUTOMOBILE. DR.PING MYRADATION DR.TOLD ME AFTER SURGERY I WOULDLIVE ANOTHER 10-20 YEARS COMPARED TO DR. LINEHANS 2 YR. DR. PING CANCER DEPT. TREATED ME M-F FOR ABOUT 40 TREATMENTS WHERE HE TOLD ME I BEAT THIS CANCER AND GAVE ME A GREEN LIGHT TO RETURN TO WORK AT MY UNION
PACIFIC RAILROAD JOB OF A LOCOMOTIVE ENGINEER INSTRUCTOR, WHERE I WAS INJURED ON JOB AT FAULT OF UPRR , CO.
ON 8-13-2000. AND ON 2 COURT DEPOSITION HEARINGS. BECAUSE OF MY REQUIRED RULES ON MY WORKING SUBDIVISIONS
RULES KNOWLEDGE I BEAT THE FIRST OR TIED WITH A UPRR CO.ATTORNEY, THE SECOND CT. HEARING,THE UPRR CO.IMPOSTERED A ATTORNEY WITH A CLAIMS AGENT, THAT I HIRED OUT WITH IN YEAR 1978 AT THE SOUTHERN PACIFIC RAILROAD CO. BUT DIFFERENT DEPT'S. MYSELF IN TO TRAIMEN FROM[phone number redacted], TO PRMOTION CONDUCTOR 4-15-1980, TO PROMOTION AND 2 YR TRAINING WITH SPRR CO, STEAM ENGINEERS WHERE THEY OBEREVED ME TRAINED ME ON A MT. GRADE OF 21/2% WITH TRAINS TONNAGE 2000 TONS TO 15,000 TONS WITHTHERE TRAINING THEY HAD TO LEARN FROM THE TRANSITION OF STEAM TO DEISEL ELECTRIC LOCOMOTIVES THAT ALL RAILROADS HAVE AND USE TODAY. AND WITH THERE PERSONAL OPINIONS THEY OBSERVED FROM AS LIKING BECAUSE I TOOK NOTES,LISTEN TO THEM AND FOLLOWED THERE... IF ANY CO. OFFICIAL IS RIDING AND TESTING
YOU, TELL THEM, I WILL ANSWER YOUR TEST QUESTION AFTER I CONTROL MY TRAIN SO SIT DOWN. AND THAT YOU COULD STOP A TRAIN ON A DIME AND GIVE YOU BACK 9 CENTS CHANGE..HUMOR BUT TRUE. SENT TO SPRR CO. SIMULATOR TRAINING CENTER FOR ENGINEERS AT CERRITOS,CA. IN FALL OF 1986 WHERE MYSELF AND 19 OTHER ENGINEERS TRAINEES
HAD TO ATTEND AND PASS A COURSES IN 1.RULES 2MECHAICAL&TROUBLESHOOTING 3.ENGINES KNOWLEDGE AND 4. SIMULATOR
TRAIN TRIPS CONTROLLED BY A REAL LOCOMOTIVE TRAIN SIMULATOR WHERE IN THE BACK OF CAB I INSTRUCTORS CONTROLLED REAL SCENERIOS OF OPERATING ANY TYPE OF TRAIN, WHICH I SCORED THE HIGHEST BUT THE INSTRUCTORS DISBELIEF THEY DID NOT GIVE ME A MANATORY SCORE. THEY TURNED ME OVER TO MY UNION LOCAL CHAIRMAN, THE SUPT., TRAINMASTER, & MY BOSS ROADFOREMAN OF ENGINES.
THEY GOT TOGETHER AND DEMANDED I WITH ALL 4 ABOARD, TAKE A TRAIN FROM MY HOME TERMINAL OF BAKERSFIELD, CA
TO UP THE GRADE TO TEHACHAPI, CA. TO DOWN THE GRADE TO MOJAVE,CA. SPRR YARD 60MILES ONE WAY.
PREPARED TO BE CALLED ON A TRAIN OF 15,0000 TONS, THEY GAVE ME A 4,000 TON TRAIN WITH 4 LOCOMOTIVES WHICH
TOOK WITH ALL ABOARD TO MOJAVE,CA. AND WHERE WE ALL GATHERED WITH MOJAVE, CA. TRAINMASTERS OFFICE FOR MY FATE AND SCORE OF SENIORITY DATE OF 11-26-1986 AND PASS OR FAIL STATUS AT THERE COMPANY DECISIONS.
I CAME IN AFTER WASHING HANDS TO ROOM, AND TO MY SUPRISE ALL THESE COMPANY OFFICIALS & MY UNION MAN WERE STANDING SMILING WITH THERE HANDS OUT FOR A 1 APOLIGY 2. CONGRADULATION HAND SHAKES THEY ADMITTED THE SIMULATOR WAS WRONG FOR THIS DISCRIMANATION ACT. BECAUSE THIS MADE ME THE 3RD ONLY HISPANIC ENGINEER AT A
VERY PREJUDICE CITY OF BAKERSFIELD AND RAILROAD. FROM THIS DAY FORWARD I WAS ACCEPTED INTO THE BAKERSFIELD
COWBOYS RAILROAD AT A TERMINAL THAT COVERED SUBDIVISIONS SOUTH TO L.A., TO W.COLTON TO YERMO, CA. AND MOJAVE SUBDIVISIONS OF THE BNSF FROM MOJAVE THRUBARSTOW TO DAGGET JCT. WHERE WE INTERCHANGED BACK INTO THE UPRR CO. RAILWAY LINES. ALSO NORTH THRU FRESNO,STOCKTON,SACRAMENTO,TO ROSEVILLE CA. UPRR CO. LARGEST TERMINAL IN CA. ALSO THE COASTAL AMTRAK SHARED LINE FROM L.A. TO SAN LUIS OPISBO,CA. THEN THE UPRR CO
BOUGHT THE SPRR CO. IN1990. WITH UPRR CO BEING A VERY BIG RAILROAD AND THEY HAD MINIMAL TRAINING STAFF TO TRAIN ENGINEERS TRAINEES. THEY SENT 25 PRIOR

RIGHT SENIORITY ENGINEERS BACK TO THE SAME SIMULATOR TRAINING CENTER CERRITOS,CA. WHERE WE WERE TRAINED, EDUCATED,AND GIVEN A A.A. DEGREE, AS NOW WHERE WE WERE CALLED TO SUPERVISE,TRAIN,& EVALUTE NEW TRAINEES ON REAL TRAINS BECAUSE THEY NEEDED SO MANYPILOT SERVICE
TRIPS BEFORE THEY COULD ATTEND THE ENGINEERS SIMULATOR AT CERRITOS,CA.I WAS ALWAYS BEING CALLED BY CREWDISPATCHER & ASKED WHY DO THESE STUDENT TRAINEES ALWAYS REQUEST YOU. I COULD ONLY SAY THAT I TRAIN MY
TRAINEES THE WAY THE STEAM ENGINEERS TAUGHT ME. HE SAID I WILL PUT THIS IN YOUR PERSONAL FILE.
THEN GOINGBACK TO 2ND CT. HEARING, I TOLD SUPERIOR CT. JUDGE THIS IS A FELONY & MR.MAX ANDERSON WANTS ME
TO RETIRE AT AGE 50. NO, MY BACK INJURY AND HEART STENT IMPLANT IN 2001, MADE ME 100% EXCELLENT HEALTH.
WITH PROSTATE CANCER I HAD TO GO PASS HEART NUCULEAR TESTS WITH CITY OF CANCER HEART SECIALIST WHERE AS BEFORE MY 2007STOMACH CANCER THAT WENT TO PROSTATE.I ALWAYS PASS WITHA VERY STRONG HEART AND BACK SURGERY WITH HARDWARE IN 2004, I HAVE NEVER HAD PAIN OR PROBLEMS.
I WENT THRU A BITTER DIVORCE OF 35YRS FROM2009-7-26-2011 WHERE SHE COMMITED ADULTERY WITH 2 COPS. SHE HAD 1
AND 3RD HAND KNOWLEDGE OF LAWS. WHERE OUR PVT. DR. TOLD ME TO SEND HER FLOWERS ON A RESTRAINING ORDER THEY ARRESTED ME, OUR PASTOR SAID SENT HER A EASTER CARD ARRESTED, FACEBOOK.COM AND ATT RECORDS PROVED I NEVER TRIED OR CONTACTED HER ARRESTED, SHE LIED SAID I CALLED HER JOB FALSE AND ARRESTED, AND AT A RESTRAINING ORDER EXTENSION WHICH I WASREQUIRED TO ATTEND SHE TOLD D.A. OF ESPHONGED MISDEAMEANER VIOLATION THAT I HAD
ATTORNEY REPRESENTATION AND HE WENT TO COURT TO HAVE THIS EPHAUNGED OFF MY RECORD AND GRANTED.
THE D.A.ARRESTED ME THAT DAY WITH A$100,000.00 BOND. I SPENT ABOUT 2 WEEKS INJAILS FOR LAWS SHE HAD HELP WITH AND ME PAYING OVER$170,000.00 IN LEGAL FEES, GOING THRU THERE DOMESTIC, AAA &AA, AND OTHER COURT HORDERED PROGRAMS WHICH I DID AND WITH PROBATION THAT WAS ALL ESPHAUNGED BY MY DIVORCE ATTORNEY I FIRED FOR
ILLEGALLY HELPING AND COLLABRATING WITH MY EX WIFE, I FIRED AFTER ARREST OF$100,000.00.
NO ONE IN KERN COUNTY ATTORNEYS WOULD HELP OR TAKE CASE. L.A. YES, JUDGE WOULD NOT ALLOW.SO I WAS ORDERED TO TURN HER INTO CA. BAR BUT SHE SUCCESSFULLY HAD EVERYTHING TAKEN OFF MY RECORD THRU EMBARRASMENT AND LEGSLITY. 2 KERN COUNTY SHERRIFF DEPUTYS BEAT ME UP, MAZED ME TO WHERE THERE BOSS SHERIFF YOUNGBLOOD ISSUED ME A LETTER OF PROTECTION ON FIRST BEATING AND I REFUSED TO CONTACT HIM OR ATTORNEYAGAINST THESEDEPUTIES IN FEAR OF RETAILIATION.
I WAS DROPPED BY EXWIFES PART B,D, BLUESHIELD INSURANCE 30 DAYS EARLY THAN DIVORCE DATE 7-26-2011. AND PUT ON R.R.MEDICARE INSURANCE PART B,D, ON 11-1-2011, WITH PART A I WAS ENROLLED ON2-1-2003.
I HAVE A EEOC,R.R.AGENCIES DOT AND FRA OF RULING ON FELONY REPRESENTATION/LIFETIME JOB WITH UPRR CO.
DR. PING GAVE ME AUTHORIZATION TO GO BACK TO WORK, I HAVE ENCOUNTERED PROBLEMS WITH UPRR CO. LAW AND WESTERN DIVISION LABOR RELATIONS GENEVA RUSSO,1-888-870-8777 AND MY TEAMSTERS UNION B.L.E.T.1-216-241-2630
V.P. PRESIDENT E.L. PRUITTAND MANY OTHERDEPTS. WITH NO HELP. BEING A MEMBER OF THIS UNION SINCE 1984I KNOW THE BYAWS.
NO ONE WILL HELP ME GO BACK TO WORK, ONLY 2 MANAGERS FROM MOJAVE&W.COLTON CA.WHO WERE ENGINEERS I TRAINED
AND NOW MANAGERS. INTERVIEWED ME IN YR.2011 AND DRILLED ME OF REQUIREMENTS I SHOULD STILL KNOW? THERE FINDINGS WERE, LOUIE YOU MAY BE 61YRS OLD BUT YOU STILL THINK LIKE 51,THEY GAVE MEREENIGHT TO BID ON A JOB
AND THEN A PHYSICAL WOULD COME. I DID A POSITION OF MANAGER OF CONTRACT TRAINS BECAUSE I QUALIFY AND A $10,000.00 MONTH JOB. I DID AND IT TOOK THE UPRR CO. A MONTH TO RESPOND TO ME AND DENIED ALL BIDDING RIGHTS.WITH THEM TELLING ME TOCONTACT LABOR RELATIONS AND UNION. I DID. NO HELP.
I NEED THIS JOB AND BACKPAY BENEFITS AND MY #16 SENIORITY DATE OF 11-26-1986 REINSTATED THRU DOCUMENTS I HAVE FROM SUPRIOR CT. JUDGE A.WALLACE WHO HEARD MY CASEAND ORDERED THE UPRR CO.ATTORNEY AND MY RAILROAD
REQUIRED ATTORNEY JACK SEAVEY FROM CROW LAW FIRM,SACRAMENTO,CA. BACK TO HIS COURT WITHOUT ME ON CERTAIN DATE WHERE THE 2 WERE NO SHOWS. SO THRU REPORTER TRANSCRIPTS BY JUDGE WALLACE, HE AWARDED ME LOUIE URSUA VS
UPRR CO. THE WIN AND COURT DOCUMENTS HE SENT TO ME AND THEM. BUT THE MS.GENEVA IS ONLY TELLING ME THAT IMPOSTER MAX ANDERSON RESIGNED ME AT AGE 50. A FALSE DOCUMENT BY A FELONY EMPLOYEE THAT MUST FACE JUSTICE ACCORDING TO DR. WALKER,SUPT. OF ALL R.R.,F.R.A. AND D.O.T., HE TOLD ME TOFIGHT THIS AND INCLUDE MY VIETNAM
DISCHARGE SERVICE INTO MY FILE I NEVER DID DUE TO SIMULATOR INCIDENT. THEN GET WHAT IS ENTITLED TO YOU FROM UPRR CO.
AND IF I NEED A F.R.A.ENGINE AND TRAINV INSPECTOR FEDERAL JOB IN L.A. AREA CLOSE TO CITY OF HOPE TO CALL HIM, I AM WELL QUALIFIED FOR THIS JOB WITHOUT ANY TRAINING FROM F.R.A.
I ASK YOU NOW MY CANCER FRIEND, WHAT SHOULD I DO? CITY OF HOPE SUPERVISOR DR.TRYSAL[phone number redacted],TOLD ME MONTHS AGO THAT ALL CITY OF HOPECANCER TEAM DEPTS. AND ANTELOPE VALLEY HOSPITAL WRITE OFF CO PAYMENTS I CANNOT AFFORD OF MY 20% OBLIGOLLECTIONATIONS AS R.R. MEDICARE PAYS ONLY 80%, AND EVERYONE IS KNOCKING AT MY DOOR WITH COLLECTION THREATS. NOW AFTER BEATING THIS CANCER I HAVE NO MORE DRS OR PVT.DRHORIWITZ KICKED ME OUT O OR BACKN CHARGES MY EZWIFE IS RESPONSIBLE BY TAKING ME OFF 30 DAYS EARLY.
I ASK EVERYONE FOR PATIENTS WHILE I GET MY UPRR CO 100% BENIFITS BACK OR BACK PAY OR RETIREMENT SEVERANCE
OR ANY HELP FROM THE UPRR CO I BEAT BUT THEY REMAIN SILENT BECAUSE OF THE PILL THEY MUST SWALLOW. EMBARRASMENT LIKE DAVID AND GOLIATH, OF A 2TIME SURVIVOR OF CANCER AND EXCELLENT EMPLOYEE BEAT THEM THE AMERICAN WAY OF LIFE...IN A COURT OF LAW..
SORRY THIS SUMS UP MOST PROBLEMS, CAN YOU HELP OR BEREFFERAL?
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18 days ago

mgm48 - Good to hear that you could work through the chemo. I may get to that point and I agree that sitting at home is not good for my attitude. I will be watching this site, I already have learned some valuable things from the folks here.

Very interesting about the PSA numbers, I had no idea that folks could have such a high number. Also I am taking the zytiga 1000 mg on an empty stomach and you commented that you are now taking it in a smaller dose on food. Just more information. I see that you are still working and that is one of my concerns. I work in an industry where contracting is quite common and while I have good health insurance there is now such thing as disability leave, so If I have to undergo chemo it could wipe out my savings. There is a good possibility of a perminate job coming along and the questing have is would it be dishonorable to take a job knowing that I might have to turn around and go on disability? Comments?

How are you doing Michael?

My husband's PSA is high and the doctor has scheduled a CT and bone scan. He was diagnosed in 1999 and had radiation upon diagnosis, did the cryosurgery (freezing) when it came back about six years ago, and now it looks like it might be back. However, we are praying that it is not. I am taking inspiration from you...you are quite a fighter!! I myself am in remission from Non-Hodgkin's Lymphoma. Just had a clean scan last Tuesday making me 1 year and 8 months cancer-free!

Thinking of you today.

Have you heard anything of Michael?

sorries ..try www.hifu.com or www.hifu.ca if the first link doesn't work ...

Hi mgm48. If/when you've time, why not check this out:

www.hifu.to

Best wishes for recovered good health

Have not heard much from you lately. You have been so prolific the last few years I am wondering if you are OK? I had to go on Taxotere as you know and the first time I ended up in the ER 4 days later. The second time things went a lot better and it has been 5 days and with the help of some super steroids, I have had no pain or ill feelings this time. When you have time, let me hear from to let me know you are OK. Have a great weekend.

Keep up the positive attitude. When I went onto the Zytiga, my PSA went up for two months and then slowly started coming down. As you and I know, it is such a crap shoot, we are all individuals and we all respond differently to each treatment. Hang in there with your positive attitude. My thoughts are with you. Michael

Hi! I was wondering if you might be able to help me. My dad was diagnosed with prostate cancer and had his prostate removed 15 years ago. Recently (past 4-6 months) his PSA has gone from 8.5 to 12. Have you heard of this? How can his prostate rise when he doesn't have one?? Frustrating...

Hello mgm48 hope you are doing well. I read you have a busy tax season and I do remember those well but not fondly LOL. I left public accounting 6 yrs ago and went to the industry I love it and accounting however year end is just as bad as tax season everyone wants everything yesterday. LOL

Hang in there April 15th will be here and gone before you know it!!!!

Have a GREAT day and God bless

Thanks for sharing your journey as WhatNexter of the week. I hope the trial continues to go well for you. All the best!

Sounds like the trials are working for you, this is great, and I know you are too. No pain meds, that is amazing. Fingers crossed it stays this way for you for a long, long time.

Hi mgm48, I really appreciated your answer to my question about "if after tumor becomes hormone resistant, chemo is the only way".

My father has no symptons, but for the third time, after lupron, bicalutamide an ketoconazole, his PSA has increased (It´s 70 now, the highest level in his journey), so, I think his doctor will prescribe chemo to him in his next consult, in december,17. I suppose that after a third PSA increase he can be considered a hormone refractary.

He had exams done this week (blood, xray, mri, etc...) and i took a look on them (As a curious, of course...) and understood that this psa increase is perhaps being caused by the increasing in the volume of his prostate gland (It´s weightening 80 grames against 50 grames in the last exam in september) more than because of the three mets/nodes in spine, wich are the same, not more, not less, only the same in the same places. His energy is good as always and doesn´t have any sympton.

You said, that your psa was reduced after the chemos from 99 to 36 (It was in september/october?), but what happened after this, it increased again and then you were applied to this trial or both things are not linked ?

What is the clinical trial you have been participating ?

I understood that your doctors say that 12% of the people receiving this medicine becomes tumor free/cured. Am I sure ? It sounds wonderful.

Do you think my father could be approved for a trial like this as well, before chemo ?

If you prefer to answer direct to me, may mail is:
crpolimax@hotmail.com

The best for you, your comments and inputs have been very helpful to me.

You keep it up and your going to be my new hero! Keep it going, sounds like it's good so far.

Keep the updates coming.

Greg P