bcompton
Activity
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Hi Bcompton,
I have read what you posted and you may find my journey of interest to you. I have been fighting this insidious disease for almost 11 years come this November. I decided to post my journey in as much detail as I could remember as I hope that it helps to make other people smarter and to not make the same mistakes that I have. I was on Zytiga for about 15 months with out any side effects except for its cost!!!! :-) I have found the best thing is to get more than one opinion and to find a good oncologist which was harder than I thought. My of them and stuck at whatever level they began a normal life and ceased to "go at it" like they did when they were younger. I can well understand this and for myself I needed someone who I could talk frankly to and who had a good sense of humor. For it is humor that has gotten me this far. There are many helpful people on this site who can offer up their own experiences which you can use to shape your journey. It is a journey and you must believe in the direction you are going and the people you are going with. Above call, keep that sense of humor, it will get you through to dark days. All of my best wishes and "stuff" to you and please feel free to ask any questions. If I don't know that answer I will tell you and If I know someone who might know, I will refer you. Have a great weekend and keep smiling. Michael0October 2013 -
So sorry you have this problem. I wish my husband would correspond with another man on the same therapy. Have you had any problems with the Zytiga? K. is starting back on it tomorrow after being off with infections in a tooth and bladder.
If you read my posts, I think I described the problems we had when he was on it before. ( I always say "we." Cancer is a family disease. It affects the life of the family.) Prayers from TX.0October 2013 -
Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.
https://www.whatnext.com/conditions/cancer/prostate-cancer
There are also subtypes listed on this page to narrow down the type of cancer to match your dx.
You may also find our "Beginner's Guide To Cancer" page helpful Click Here for that=> http://bit.ly/10BQKCi Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.
Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend
Follow Us on Twitter Click Here =>http://bit.ly/XExkce
Find Us on Facebook Click Here =>http://on.fb.me/zjBAPl
Our Pinterest Page with Resources=>http://bit.ly/12qVtEs
Our Help Page with instructions for the site->http://bit.ly/1aR5165
GregP 3X Survivor
Team WhatNext Community Mgr.0October 2013 -
I was dignosed and treated 12 years ago. My PSA was zero for 10 years and then slowly increased to 3.5 Last spring my urologist prescribed external beam radiation to kill the microscopic cancer cells in my prostate bed. It worked really well on me and my PSA is now back down close to zero. I have an appointment next week and expect a PSA of zero. I'm 70 now and if the cancer recurs, I'm going to try proton therapy.0October 2013
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Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.
https://www.whatnext.com/conditions/cancer/prostate-cancer
There are also subtypes listed on this page to narrow down the type of cancer to match your dx.
You may also find our "Beginner's Guide To Cancer" page helpful Click Here for that=> http://bit.ly/10BQKCi Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.
Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend
Follow Us on Twitter Click Here =>http://bit.ly/XExkce
Find Us on Facebook Click Here =>http://on.fb.me/zjBAPl
Our Pinterest Page with Resources=>http://bit.ly/12qVtEs
Our Help Page with instructions for the site->http://bit.ly/1aR5165
GregP 3X Survivor
Team WhatNext Community Mgr.0October 2013 -
Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.
Wishing you the best.
David
Founder, WhatNexter0October 2013