Powerofhope

HELP Brain literally hurts... How is cns different, as a far as symptoms, from NH lymphoma? I am concerned due to constant headaches... pounding, especially at the base of my skull (for years, with some good days)... Any input would be greatly appreciated. Also developed visual disturbances just on the peripheral field of vision, in both eyes but definitely more on my L eye... which just started less than 3 weeks ago. Sigh, thx in advance for your help... best wishes

I was diagnosed with NHL, Stage IV in May of 1996 and had six rounds of CHOP. I was in remission for about 18 months and had a recurrence in 1998. At that time I had an outpatient autologous stem cell transplant. I have been in total remission since that time. I am sure you will do just as well! If you need moral support, let me know...I was working full time in a hospital at the time (and part time for my oncologist!) so I had plenty of support. I wish the same for you. My name is Liz.

Check this site out....

http://nutritionfacts.org/topics/cancer/

I think I mentioned CHRIS BEAT CANCER

and The Book ...The China Study

Let me know what you think?

Hey Power of Hope....like that.
This is what I'm doing and Praying a lot. ALSO sending info around so people will know there are other options to try.


I was diagnosed 4 months ago but had small swollen nodes in my neck and
left groin area for awhile.
I decided to go to a General Surgeon and just have a biopsy and it came back
Marginal Zone Nodular Non Hodgkin's Lymphoma.
I have seen HORROR SHOWS with people taking Chemo and Radiation and told the
Surgeon that I won't go to an Oncologist and
I asked if he had any other ideas. He asked "WILL YOU ACCEPT THE
CHALLENGE"...I didn't know what he was referring to but he said
only Juicing and ALL RAW FOODS and NO BREADS OR GRAINS AND CEREALS....
SO....had a PET SCAN and it lit up the nodes in 5 places so it's spread
around but not to any Major organs except a little in the Spleen.
NOW......3 months on my Protocol. My BP is 110/70 and I'm 68 and it was much
higher. My weight dropped from 170 to 154 and holding steady.
My anti oxidant level went from 16,000 ( worst is 10,000 and the best 50,000
plus is 47,000.
SO My body IS responding in some ways. I don't have any symptoms except the
nodes I can fee. Actually I feel Great.
I Juice for 3-4 drinks a day with carrot, granny apple, celery, brocolli,
ginger and cabbage. Also a lemon lime drink...I use stevia also
I take Reishi and Green Tea Extract, ginger, soy/genistein complex,
curcumin, resveratrol, dandelion extract and others.
I eat lots of strawberries, pineapple, blueberries, melons, bananas and
other fruits and pumpkin seeds, almonds, raisins and sunflower seeds for my
first meal everyday. For dinner I eat Huge salad with broccoli sprouts and
many other vegetables and nuts and apples and cranberries and walnuts etc.
I munch on the nuts all day and LOVE them all. My taste buds changed and a
little sunflower seed is sweet. I take a powdered green drink once a day and
take apple cider vinegar every morning and some whey protein powder and
syllium seeds.
I deep breath all day and walk twice a day. I also PRAY a LOT and Dry Skin
Brush.
I took on my own Nutritionist.....GOD....
AND Hoping for the best.
Hope that helps. GOOD LUCK!!!!!!!!!!!!!!!
Barry

Powerofhope,a good handle for you. Finished reading your journey and it was very inspirational. I am a female 67 with IIIC ovarian cancer. Have a very close family and a lot of support but reading stories like yours feeds our strength and determination. Thanks for sharing.

I just read your FB post and wanted to say how moving it is. I am a WhatNexter, too (and a MSKCC survivor-patient; had breast cancer fourteen years ago but still go to Memorial annually for checkups - easy for me, as I live in Brooklyn). I had a fairly "easy" cancer thus far, though I did need chemo and rads. Anyway, I wish you and your lovely family all the best and good health. You are doing so much to help yourself and others. Thank you!

So loved your inspirational story. I have triple negative BRCA 1 (hereditary gene) breast cancer. My first stop on web sites was the TNBC site which was so depressing, too many stories of people not making it. I spoke to my oncologist about it and she told me to not use the site and stay as positive as possible. Am six year survivor now, just living instead of worrying about dying.

what an inapiration u are, im a 2 time survivor of breast cancer

i mean inspiration

You always amaze me! I love you all so much
Jennifer

Scott, thank you for sharing your story of hope. What an inspiration you are! Deep peace to you and your family during these beautiful holidays. ~ Rich

Thank you for sharing your story of survival, faith, and hope. I was truly inspired by you tonight and immediately searched PNET survivors. I think I will find amazing people tonight to give my husband that same hope you had. Thank you!

You're awesome, Scott!

Thank You for sharing your story. God bless you and your family.

You Rock!!!
XXXOOOO

Thank you for posting on my wall. You're hanging in there as well. What type of CNS/brain issue did you have?

Welcome to WhatNext! Truly inspiring that you have beaten four cancers. Congratulations! Prayers for you and your family!

Hello and welcome, we are glad you found us. Your experience as a survivor is valuable to those who are just starting, you can help them by answering a few questions. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/non-hodgkin-lymphoma-nhl
There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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GregP 3X Survivor
Team WhatNext Community Mgr.

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter

Hello and welcome to the site! Lots of wonderful and informative people on here just waiting to connect with you. If you have any questions feel free to ask. If you see any conversations that interest you jump right in and join them