EJK

Activity

  • Chinita
    Hi EJK
    You must be finished taxol now, just checking in to see how you're doing. I've completed 5 and already am SOOO tired, and no appetite. Were you able to eat? I also have developed mouth sores, makes eating even more difficult. Are you done with treatment now?
    March 2014
  • Chinita
    Hi EJK. Just checking in to say I have had three rounds of AC so far and had bad nausea all three rounds even with meds. I am so looking forward to the fourth and final one being over. How have you been doing on the taxol and herceptin? My doc says that shouldn't be as bad, nausea wise, but I understand that numbness of hands and feet are common side effects. I hope you are coping well. Please let me know how you are doing.
    February 2014
  • Chinita
    Hi EJK how long did it take after each treatment for the nausea and tiredness to go away? Does it take longer after every successive treatment?
    January 2014
  • Chinita
    Hi EJK...did you feel nauseated after chemo on the same day? My doc gave me pills to start taking tomorrow but I have heard that I shouldn't wait til I get really bad, and I am already feeling nauseous. I don't think this bodes well!
    December 2013
  • Brielle
    EJK, I am interested in gathering more info about nutrition. Has your nutritionist published any materials that might be shared? When I have cravings, I sometimes wonder if it is to feed the cancer! My oncologist suggested the acs guidelines, but I have tried to eliminate as much sugar, flour and dairy as possible. This is just another way I can fight. Hang in there and thanks.
    December 2013
  • Chinita
    Hi EJK, you commented on my post re PT during chemo and it looks like we have the same chemo regimen. Since you have gone through the AC stage, and I am just starting, would you mind if I inundate you with questions? I am very scared going into this.
    December 2013
  • Teachergirl
    Hi EJK, was just wondering how you are doing? Hope all is well.
    November 2013
  • BubbasMama
    Hi, I figured I could lose weight while I was on chemo, but the nurse told me I might GAIN... I have heard that everything has a sort of metallic taste..

    I plan on cutting my hair a few days after my first treatment.. just shave it off so I don't have to deal with the fall out.. ha ha. I went to the thrift store and found a bunch of stocking hats for the Minnesota Winter...

    I have a chemo class to go to.. think I have asked most questions I have, but I suppose something might come up. I am lucky to be retired, so will be able to rest and come and go as I please.

    Hang in there.. Sheila
    November 2013
  • amyw
    amyw EJK
    You went back to work quickly. I am still off, I go back next week. Be kind to yourself!
    October 2013
  • Lindy
    I have read of this new offering. I am straight her2+++ for me herceptin had minimal side effects. Personally I would not turn down this opportunity to add this to my suitcase of hope. I assume your work up for the trial would include a heart check up, herceptin does carry a risk to the heart but even at my age my heart showed no damage. For me a two thumbs up and God's speed.
    October 2013
  • Teachergirl
    Stopping by to say hi and hope things are going well!
    October 2013
  • Gabba
    Sorry to learn you had to go back in for a revision but hope you are feeling better and home resting by now. Take care.
    October 2013
  • Teachergirl
    Hope you are doing well! Had my surgery today and was thinking about you.
    October 2013
  • evelynburris
    Sorry to here you had to join us. My best advice is to ask the nurses, don't be afraid to call or e-mail them. They are willing to help you, they are full of information! Keep posting!
    September 2013
  • Lynn916
    i posted this morning. yes i am a nervous wreck. Staying busy. This weekend is dragging, sitting here laughing. Tomorrow (Monday) i will be on the phone !! Work is keeping me sane. :O)
    September 2013
  • Lynn916
    thank you EJK, you are in my prayers :o) too. this site is the greatest.
    September 2013
  • Teachergirl
    Hi EJK, Checking in to see how you are doing. The treatment plan changed for me quickly also. I was ready to have a mastectomy and then they started with chemo. Seems like a roller coaster ride some days. Hope you are doing well. Keeping you in my thoughts and sending good karma your way
    September 2013
  • Gabba
    Hello EJK, I was reading your response to Lynn and realized you were recently diagnosed also...just wanted to wish you good luck on your journey...we are here for you so check in often and God bless!
    September 2013
  • Lynn916
    let's stay in touch..we will beat this :o) it still hasnt hit me yet. I just got diagnosed/Pathology report a few days ago Sept 16, 2013.
    September 2013
  • Carool
    EJK, thank you! Keep us posted. Remember that breast cancers are not a death sentence for the majority of us diagnosed with them. Best, Carool.
    September 2013
  • Lisa00
    Glad you found us. The chemo was not as bad as I thought it would be. Hope everything goes good for you.
    September 2013
  • Nonnie917-89591
    I am so sorry about your diagnoses. I know what you must be feeling and going through with your thoughts. As the saying goes "been there, done that," but I would like to welcome to the site. I think that you will find this a friendly place to come when you need to sound off or vent from anger. We are all here to listen and help, if we can, because at some point and time in each of our lives we have been in your situation. Please don't be afraid to ask questions either. No question on this site is silly or dumb. We all have questions we would like other opinions on or answers to. There are so many nice people here that it has helped me get through my fears I had when I was DX'd with DCIS. Good luck in the future.
    September 2013
  • GregP_WN
    Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

    https://www.whatnext.com/conditions/cancer/breast-cancer

    There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

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    Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

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    3X Survivor
    Team WhatNext Community Mgr.
    September 2013
  • DaveWaz

    Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

    Wishing you the best.

    David
    Founder, WhatNexter
    September 2013