LiveWithCancer

Live, I am compelled to say that I envy you your new kittens!

Hi, LWC! Just saw that the first topic on tonight's #LCSM chat (8 pm Eastern) is on immunotherapy, within the context of the Cancer Moonshot (this is a cross-cancer chat). Immediately thought of you. Hope you can make it -- I'll post a link to the transcript afterward.

Hi Live. I was do dismayed when you posted about your husband's illness. For crying out loud! Here for you, like many many others. Sending love, hope. Chris

Thank you for responding...The last couple of days have been really tough. My husband has been extremely weak and suffering from mouth sores which is just one more thing to impede his appetite. Today has been a little better.

You mentioned that you might be welcoming a new feline friend to your home. A word of advice about kitties. Dogs are personal trainers. Cats are "nap coaches" be sure to follow their advice
Wishing you many happy times with your new kitty

I am the wife of a current recipient of immunotherapy I am so glad to see how well you have been doing. He is 69 and I am quite a bit younger but not ready to let him go.

Hi LiveWithCancer. Your journey is remarkable. I am so happy for you. I hope you continue your success. I will be praying for you.

Keep up the good fight!! From another stage IV survivor!!

Thanks for responding - am going to seek 2nd opinion and not ready to throw in the towel - I feel so good with no symptoms - I am just stunned as I wasn't expecting such bad news. Need to gather information to know what path if any to take.

LiveWithCancer, just testing how to post on your wall!!! Figured it out....
I see some of you really have high numbers for Goodwill. I am impressed!!

Good to know about immunotherapy. Having CT on Mon. to check lesions found 6 mons. ago on PET scan. Too small to biopsy. ???recurrent Breast Cancer or is it Lung Ca, or neither.

Thank you for being so caring, it goes a long way, especially in tough times.

Livewith cancer-- there is a difference between being stupid, and not being able to access medical care, access a shelter, or even make a phone call for help. Here you need an address to contact a Congressman. The aids won't process anybody without an address. What is a person supposed to give-- The Barela Bridge-West end? Or the Bosque near Montgomery Blvd?

This is where the Homeless man was shot by the police. this was on the national news almost nightly for months. This city has stricter DOJ supervision than any other city. The DOJ says that this city is more troubled than Ferguson. It is the one of 2 American cities that has this direct DOJ supervision because the police murdered so many people- Including home owners.

Also, this is a city, where we don't know if the police will help people or kill people. Last year the police killed a 70 year old man that owned a home. His wife died, and he walked around his neighborhood crying. The neighbors called the police and complained. The police didn't know that his wife just died. They turned a police dog on him, then they called the dog back and gassed the old man. Then they shot him with plastic pellets. He died in a hospital 4 days later. The police officers were charged with murder.

The shelters in my city fill up quickly, and many people can't get a meal and cot, let alone medical care. meyati

Hi Live with Cancer! Congratulations on your 70th Opdivo infusion!! You are an inspiration. Seriously, can't believe is a drug that is now available as a standard of care!!

Phil had his standard 6 month brain MRI on Monday, we go to see our oncologist tomorrow to review results; prayers that we continue in stable remission!

Caring for my brother in hospice last November as he was losing his fight with testicular cancer really scared Phil. Not so much for his own mortality, but dying from advanced testicular cancer was no picnic to witness. It's important we remember no two cancer stories are alike! We enjoy everyday!! Thanks for thinking of us!!

~Kim

Hi, are you getting Whatnext digest or any messages? I think that something might be wrong with the computers or something. I want to check before I bother Greg or anybody. I also worry about him.

Yes i do have a attorney working on the case . Once I turned the case over to someone who knows what they're doing. I was able to let go and stop worrying about it so much. I have done about all I can do.

Hi, I didn't take your answer the wrong way (no worries). Haven't been on this site for a while because I saw no one using natural remedies. I didn't want surgery & only used Femera 10 months. I get very bad side affects from meds. Am managing my cancer now, day by day. Take care . . .

Just ignore anything you don't wish to answer. post right over it like it was never even there. that's what I do

Are you still taking Optivo? How do you feel right after your infusion,

Hi, I have a question. You are pretty good with dogs. My dad worked Indian and Army style with horses. They had to get used to the smell of blood, etc. Some horses and mules were extra sensitive. Anyway, I had a 17 hand Thoroughbred-about 1200 lbs. She didn't like the smell of meds, hoof treatment-nothing. I used the Army-Indian trick of getting her used to the smell- I put vicks, blood on her nose. I'd spread pain killer-antibiotic- hoof treatment in her feeder- bring her in from the pasture after it dried. After a few days, she'd get hungry, and there wasn't any trouble. I did this to all of my horses and mules. They were easy to treat.

What I'm wondering is if this would be good- put some bacon grease on the poor old boy's nose, if he doesn't come around when she (I forgot her name) gets better.

Thanks for the reply. I am planning on October 2016. I am having some other medical problems that have to be addressed before I have the cryosurgery. God Bless.

I just registered for the Hope Summit, waiting to see about the travel grant. Thanks for that heads up!

I hope you are doing well, and if we lived closer I would totally join you in the run.

Wishing you the best in your fight. Cancer sucks!!!

Hi, saw your answer. I still have the same values as I had before cancer. I still have the same temperment-type A, a risk taker, a dedicated pursuit for quality in my life. Quality for me means not being much of a burden, having some dignity. Since I have face cancer-the above signifies that my face doesn't scare small children-- I sometimes wonder if some people hadn't faced a disease before the cancer diagnosis. I just don't know, as we all have conflicts that we change with time and events, but many times the basic being does not change.

Hi, LiveWithCancer. In one of your posts you mentioned going to the White House and speaking on Capitol Hill. Would you mind elaborating on that? That sounds very interesting and like it would be quite the experience.

Hi! I've been thinking about you lately! Great to see you are still doing fantastic on Opdivo!! I haven't been on the boards lately, we set up hospice and cared for my brother at home until he passed on 11/26/15, Thanksgiving morning. It's been hard on family, parents, my kids. We all were involved in Kurt's 2 year battle with testicular cancer and 24/7 caregivers in the last 6 months of his life. However, on the flip side, my husband Phil, with IV NSCLC has remained STABLE since 6/14 after finishing whole brain radiation, chemo, lung radiation and chemo combo! We see our favorite, fantastic local oncologist who is ready with Opdivo if it becomes necessary and get scans every 6 months. You have been an inspiration to us and THE ONLY light of hope when we were diagnosed 12/13. Thank you for your continued posting and involvement in the community.!! Love you! ~Kim

Live with Cancer is the only person that I agree with. Because of the poisoning from Statin, my Achilles don't hold up too well- and anything at all seems to hit my legs first. I do wood work. take pics of my hounds. Tonight I cooked a Hawaiian-Japanese beef dish with Okinawan sticky rice. Any of you that say- Aha- she does eat plant based food----No--it was thinly sliced chuck sauteed with fresh garlic, a small fresh tomato, and a bit of green pepper. It's the sauce for the meat. I can't post this on the question.

Actually we discontinued cable Television .
I found it increased my anxiety. Especially the sensationalism of the news. All the commercials are loud and keep repeating themselves. We have Netflix, and a The New York Times online.
It really is all the news that's fit to print.

Hi Live, Just got back from Tennessee and I have good news. To prevent me from typing this over and over I am going to copy and paste what I have posted on facebook to friends there. "Good news today, Thanks for the prayers everyone. Dr. Spigel said that the main tumor was actually down 1mm, which I could see on the printed report I picked up at the hospital yesterday. The tumor in the left lung per Mt. Carmel radiologist did not show on 1st cat scan here and did show on this last cat scan here which was cause for their concern however Dr. Spigel shows that 6mm tumor on Tn's previous cat scans so actually no change there. The lymph nodes were bigger but that could be swelling, they kind of go back and forth and are not a big concern at this point, many things could cause that. This is a new drug and Tn has been dealing with the changes for 4 years or more and know better what to expect, pleased that Dr. Ahmed acted with caution and so am I.. This drug has only been appproved since May so is new to most doctors. Dr. Spigel has talked with Dr. Ahmed and I had a message when I got home that I can get treatment so will call them in the morning and probably go in tomorrow, only a day late, no big deal. I will get four more treatments here and then go to Tennessee for my next cat scan in eight weeks. Will continue to get Opdivo here. Merry Christmas to me, very pleased with this news."
I am in a very small town and I do think Tennessee Oncology is better equipped to do a more thorough cat scan and more eyes reading the reports and xrays. Tn doctors were not concerned since main tumor was actually smaller and the left lung tumor was not new, has been there and stayed 6mm for quite some time. So happy I can continue on Opdivo. Yea!! more days and weeks without side effects. Big supporter along with you for this drug. Thanks for support and prayers. Ruby Faye hope you also see this.
Love, prayers and hugs to all my fellow survivors, really appreciate this site.