AnnyKay

Hello how are you doing

Curious about your stage and location if you dont mind sharing? Is it squamous non small cell? Did you have any mutations?

Curious about your experience wiith this med. My mom could start taking it.

Was nivolumab only approved for squamous cell? I'm looking for trial for adenocarcinoma. How are you doing on it since you posted last?

Hi AnnyKay, Could you please provide more details about the immunotherapy that you are doing? Thank you so much

My lung cancer is non operatable also what type of trial drug are you on can you tell me more?????

Hi AnnyKay, I noticed you are receiving treatments for Lung Cancer. I was wondering what type of treatments you are receiving. How long did it take for you to feel better? I've been taking Gilotrif because I have EGFR marker. Its been a week and I guess I naively was hoping to feel a lot better already! Thanks, Rob

Hi AnnyKay, I just saw your response and so happy to hear your good news. My onc said if the Tarceva stops working, there are some really good trials. The first thing would be Gamma Knife as long as there is nothing new in my body. She mentioned the Immune one also.

I registered a few months back but have not had time to read or post. I checked in today to see how this site works and there you are. So glad to hear, your doing well.
I will post a quick summary of myself and get back later.
I will be 70 on the 30th. A little or 2 yrs ago, diagnosed with Stage 4 NSCLC. Had a large 9cm tumor removed along with my lower left lobe. Was going to start radiation and found out, it had metastized to my brain. Three spots and I do have the EGFR so I was able to take Tarceva orally everyday. During the first 6 months, my spots shrank but now they are stable. Doctor's gave me 1-2 years and could only offer "quality of life".
Must go for now.

I have a question for you. I was just diagnosed at the end of September wth non-small cell lung cancer stage 4 very aggressive. Mine seems to be just causing a ton of pain, new one all the time. Wass that how yours was?

Hi, AnnyKay. I go to TN Oncology at St. Thomas, NED serous uterine. Just wanted to touch base. I feel fortunate to be under their care.

I wanted to ask you how your clinical trial is and how you got on this clinical trial ? Did u first do chemo? My dad has non small cell stage IV he did 16 rounds of chemo that shrunk the cancer now after 6 months it's growing the oncologist wants him to do chemo once every three weeks I'm not sure which chemo they will use this time. I am trying to find out more on these new immune drugs any info is appreciated thank you

AnnyKay, did you get thw results of your CAT scan yet?

Hi AnnyKay Ive read your journey and I wish you well. So far so good for me. I never lost my hair(different chemo drugs) so I dont know how that feels .But I can tell you it is such a joy to meet people like you along the way We dont have to make excuses or pretend when we get together. I am from Australia and this connection is great to have..Cheers Maree

how does the cancer affect the COPD do you cough a lot...I never coughed at all until the last two months now I go into coughing jags .My oncologist said nothing on my ct scan would show a cause of the cough so I put down to allergies that seem to be getting worse...I do take allergy pills that seem to stop the cough till I forget to take them

Thanks for following me. Unlike you, I am at the end of the road, or at least I hope I am. I finished up of my cancer treatments end of June this year.

We just found out a dear friend of ours has Stage 4 Lung Cancer.

So glad that you are still around and fighting.

Best wishes on your healing journey.

I want to welcome you to WhatNext.....a great place to meet individuals like yourself who are asking questions...sharing their experience...and looking for hope! Feel free to jump right in...

Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/lung-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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Welcome to WhatNext! It is a place that is made up of some of the kindest and most supportive patients, survivors, and caregivers you will find on the Net. We are here to answer questions you may have, offer hugs when called for, listen to frustrations and vents, and to celebrate victories, big and small! We look forward to hearing more from you!

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

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