parank

I have also been bullied by her. She's very angry and has a right to be, but at the same time doesn't have the right to be such a know-it-all and bully to the rest of us. She's been wrong in her statics time and time again but I don't debat her. Energy is vital to our recovery and it appears she goes around to alot of people on this site and bullies them. I'm looking into what to do. Sympathy only goes so far. You have all my support Parank.

Welcome back Parank. I used to post often but I am through the worst of treatment and in recovery mode thank goodness. This site was my lifeline and I struggled through treatment. I am sorry for the treatment you received. I know we all have different opinions and I cherish that but we should all at least be kind to one another. I hope you are feeling well and I look forward to reading your posts.

Jane

Hi, I didn't know you before. It's nice to have different opinions and experiences, but the same thing doesn't work for all types of cancers or places where the cancers are. Sometimes I feel bullied. While you were gone, we had an interesting person that really ticked me off. She was a nurse that worked in a clinic that treated head cancers. A discussion came, and she told everyone that they had to do certain things-no matter what type of cancer they had. She called me names. She looked at my Journey-then she said that we should be the authority on head cancers on WhatsNext, and people should say why they have the authority to answer questions-and I should list my qualifications as a patient.
I'm laughing now, but I told her that anybody could decide what to do. Nobody can say -DO THIS-- and reliving my journey each time is depressing to me. I have nothing to prove. I told her that saying- Gee that's bad-- hugs and love is the best.

Nice to see you posting again...you have been missed. Grace

I had dbl mastectomy. A/C Herceptin with Taxol and 28 rads. Doing Herceptin every three weeks til September. Just weak and tired. Any other side effects you had? Cheryl. Topeka Ks

Hi parank, thanks so much for " following" me...you went through quite a bit in your journey this past year and on this site the past few days...glad both are behind you now. Let me know if I can ever help with something....enjoy the rest of the weekend. Grace

Hello; sadly you have the statistrics incorrect .. 20% of any group of professionals (including doctors) make 80% of the correct moves. The rest simply follow and bumble along as best as they are able which, in the case of health care, isn't good enough.

Best wishes for a full recovery

I'm right behind you sister! My last Herceptin is Feb 27! How long after you finished did they do a pet scan?

Understand how you feel. Well said. I have also been subjected to this person's anger and vitriol.

Big happy dance for your clean scan!

Parank, thank you for your comment. I am a bit bewildered at the response I got from her, as I meant no harm. You have a joyful holiday, too! Best, Carol

Hi, I just went to my high school 45th reunion & met (again) 2 sisters who both had Her2+. One had treatment 14 years ago & is fine. That was good news to me, I felt like I could take a deep breath again. The sister in my class had had her chemo & was starting her radiation soon. The older sister was in the clinical trials for Herceptin back about 10-12 years ago.
I will try to find where I read about taking Herceptin another year. I read every word of all the cancer magazines from the cancer center & have even subscribed to a few!
I am ER negative also PR negative. Her2+ is very aggressive, which has me worried. Everyone's treatment is different & medical research has certainly helped. Have to wait until April or so & re-beg for a few scans. Dr. assured me he would order, even with no symptoms. Not really keen on waiting. Feeling better after radiation almost a month ago. Will return to work on Monday. Hope you are doing well. Hugs, Barb

Hi parank, how are you? Did the reaction from the port clear up? And how is the treatments treating you? Hope this finds you well and in high spirits. Just had some time to reach out a bit. Casserole in the oven.

Welcome to the site. I think that you will find this a friendly place to come when you need to sound off or vent from anger. We are all here to listen and help, if we can, because at some point and time in each of our lives we have been in your situation. Please don't be afraid to ask questions either. No question on this site is silly or dumb. We all have questions we would like other opinions on or answers to. There are so many nice people here that it has helped me get through my fears I had when I was DX'd with DCIS. Good luck in the future.

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter