sue1037

Activity

  • Mikilog
    Congrats! Mine came back curly and I love it! I am keeping it short and it is soooo easy to care for.
    August 2014
  • flamingogirl
    Thought I would pop in and say Hi!! hope things are going well for you. Good Luck on your next treatment (I see you have one coming up). It will be over before you know it!! I can't believe that I'm back to work already. I was off for 7 months. Seems a little surreal. Try to relax over the holiday weekend!!
    August 2013
  • Sidney12
    Hi sue, hairs gone...in one day ! Right after i got home from my 2d chemo. Ran a brush or hand thru it and it came out n wads. Rod shaved my head completely. Not feeling so great today. Tomorrow may be different. Hope ur feeling better than me. I'm thinking of you. Hugs
    August 2013
  • Sidney12
    Morning sue1037, how ya feeling today ? Hope & praying its not too bad. You're n my thoughts & prayers. I had chemo yesterday. Feel good today. Get my lunesta shot today. If I remember right, it was after that shot thay I hit the skids. Felt tired, weak, bitchy...you get the drift lol. We'll see what happens after today. If u feel like it, keep me posted. I'm concerned. Hugs to you
    August 2013
  • Sidney12
    Hi Sue, been thinking about you. Sorry to hear you had some bad days. my chemo was today and all went well but now I can barely keep my eyes open. I will touch base with you tomorrow. I need to crash now. here's a ((hug)) goodnite.
    August 2013
  • Cellkiller
    Thanks for liking my breast cancer prayer. Ny wife has cancer in both breasts occurring a year apart. I hate Breast Cancer. This prayer helped her
    Blessings to you CELLKILLER
    August 2013
  • Sidney12
    Morning sue, yes, feeling better today. Woke up feeling like doing stuff :). I'll go slow & easy. Rod makes me go slow. Haven't heard anyone mention sore throats but I've had one everyday. Not so bad today. So the hairs falling out...u were smart enought to get a jump on it with the buzz cut. I wanted to do that but there is a wedding this Saturday I've been waiting for all year. New dress, shoes, etc. Doc said I can't go. My blood count is so low he said stay home and out of public places. Oh well. I'll survive. I hope things continue to go well for u. I'm thinking of u and sending hugs ur way. Plz keep me posted.
    August 2013
  • Sidney12
    I thought I was getting treatment every wk but I was wrong. It's every other wk.
    August 2013
  • Sidney12
    Hi sue1037, I'm not sure how many I'm getting. But I'm getting 1 every other week. (A-C-T regime) I feel weak & tired, exhausted really...really exhausted. I had my 1st chemo on 8/13. My 2d is 8/27. R u dealing with this being tired & that whipped feeling. ALL THE TME ?
    August 2013
  • StamPurr
    Please let us know if taking Claritan helps with the bone pain from the neulasta/neuprogen. I've never done without and I'd really like to know if it is me or the claritan. Curious.
    August 2013
  • Sidney12
    Sue1037, how often r u rec ur treatments ?
    August 2013
  • Sidney12
    Will do. We can touch base any time. If I don't get right back to u it's probably cuz I'll be feeling bad, but I look forward to hearing from you.
    August 2013
  • Sidney12
    Hi sue1037, my 2d treatment is Tuesday. I wish u luck. I'm wondering when my hair will start to fall out. At ny rate, I'm ready.
    August 2013
  • Sidney12
    I think I'm gonna do the same. You're right, hair will grow back. I'll be thinking of you tomorrow. Yes, we can share this journey. It will help. Good luck.
    August 2013
  • wainwrong117
    Hi Sue my name is Noella and I had triple negative breast cancer still in Duct, stage 1. I tried lumpectomy as well, but developed staff infection that took 3 months to cure. During that time I was told my margins were not clear. Before my surgery I went through chemo to kill all the cancer cells that may have moved out of the chest. When I was considering surgery I talked with many women. I opted for both breasts to be removed and then flap reconstruction to be done at the same time. My surgery was over 10 hours with 3 months recovery time. But I am still cancer free since 2010 and that is a miracle. I still get yearly mammogram because I have some breast material on chest wall. I go to Gilda's for my cancer support on Wednesday 6 pm. It is on Alexander street and their is childcare at Noogieland. Come join us anytime.
    August 2013
  • Sidney12
    Hi. I started last wk. same affect except the 4th day after my lunesta shot, I was in real pain. Good luck. Lets hope it stays mils for both of us. :)
    August 2013
  • tuwood
    Dear Sue, I too, was diagnosed with TNBC last year. I had surgery in June, followed by eight rounds of chemo. I remember how overwhelming it was in the beginning. There were so many well-meaning friends who suggested that I should make a "radical change" in my lifestyle - diet, exercise, supplements, vitamins, etc. - and consider alternate treatment, less harsh alternatives to chemotherapy (that seem to be working for other cancer patients). The biggest problem with that is the fact that there are so many different kinds of cancer. I learned to trust the medical professionals who have traveled this path with me, who have made this battle their life's work, who know me personally and know all of the details of my cancer. I pray that you, too, will get the support and encouragement you need from those around you. You are and will continue to be in my prayers.
    July 2013
  • meggieg
    sue1037 this will be a long journey. I also have triple negative cancer. have completed 4 treatments dose dense adriamycin/cytoxan - I called it the red death because the infusion is bright red and it made me feel really awful for almost the whole 2 weeks before next treatment. Nausea the worst. I found the effects cumulative - by the 4th treatment my taste was way off, couldn't taste salt at all and turned off by many fatty foods. I was exhausted and found it hard to accomplish small chores. Nausea meds help make sure your provider gives you some. Now have completed the 1st of 4 dose dense taxol - much better than the ac. No nausea, tingling in hands, lips, gums, cheeks, but way more energy. I expect that the effects from this will also be cumulative, but so far it is sooo much easier. I'm bald as a baby and it does bother me to be out in public without a scarf or hat. I have a wig but have only worn it once. Will need radiation after taxol treatment. So this is easilly a 6 month fight for me just to complete treatments.

    Check out the American Cancer Society Look Good Feel Better program, they provided me with a free wig, and a session on makeup and moisturizers with free cosmetics donated by many companies. It was fun to be with others who are going thru the same experience.

    Feel free to get back to me to tell me how you are doing, and good luck, take care of yourself and get plenty of rest. God bless.
    July 2013
  • 22601
    Hi Sue1037. I was diagnosed with triple negative, ducal, stage 1 in early March. Surgery done and half way thru treatments. I am 62.
    July 2013
  • Bug
    Hi, sue1037. I see you're new to the web site. You have found a great resource here. There are a lot of really wonderful people on this web site - very kind, helpful, and supportive. I hope you find as much support here as I have. I bet you will. Take care.
    July 2013
  • Nonnie917-89591
    Welcome to the site. I think that you will find this a friendly place to come when you want to vent or sound off because you are having a bad day. Most of us have been there done that and used this as a sounding board. Everyone has been so nice to me and so helpful with information and just letting me sound off. You can also ask any kind of question you want because no question is silly or dumb when it comes to our disease. You have friends on this board who are ready, willing and able to help you with whatever advice or question you need answered. So don't be afraid to ask. One thing more. Why have they not started treatment on you yet. Two months is a long time to wait to take care of a disease that is nothing to mess around with. I would be seeking a second opinion if I were you because that is just too long to wait. I hope that you get your treatment soon and that everything comes out okay for you. I will keep you in my thoughts so please keep me posted on your care. I will follow you so that when you post I will know you have posted an update. Take care and stay strong.
    July 2013
  • Giraffe
    You will find What Next most helpful. Visit often, we are all on the journey. Best wishes to you.
    July 2013
  • barbaraanne
    Hi Sue, I am also a TNBC patient. You will find lots of helpful info on the website. I was diagnosed last Oct at 50 yrs old. I was stage 1 when I started, had the lumpectomy, 4 rounds of chemo, and started rads when I felt a small ball by my incision area, cancer in one lymph node, removed it, continued radiation. I am now getting ready to start chemo again on Tues. Don't want to scare you, just be diligent w/your treatments, it's tough but we can do it! I'm praying for all of us to beat this...Stay strong & in touch:)
    July 2013
  • cris
    Hi Sue1037"s glad you found the site, you will find alot of wonderful people on here, ask anything we are all here for you. thinking of you cris
    July 2013
  • GregP_WN
    Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

    https://www.whatnext.com/conditions/cancer/breast-cancer

    There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

    You may also find our "Beginner's Guide To Cancer" page helpful Click Here for that=> http://bit.ly/10BQKCi

    Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

    Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

    Follow Us on Twitter Click Here =>http://bit.ly/XExkce
    Find Us on Facebook Click Here =>http://on.fb.me/zjBAPl

    GregP
    3X Survivor
    Team WhatNext Community Mgr.
    July 2013
  • DaveWaz

    Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

    Wishing you the best.

    David
    Founder, WhatNexter
    July 2013
  • DeanaBeana
    Welcome to the site! We're happy you found us. If you find any conversations that interest you, feel free to jump right in and join them. There are some wonderful people on here just waiting to connect with you. You'll have a great support system on this site. I hope today is a good day for you.
    July 2013
  • SueRae1
    welcome to WhatNext. I'm sorry you needed to find us, but now that you are here you will find the greatest bunch of supportive people whose combined knowledge is awesome. We can answer your questions, hear you vent and celebrate good news with you.
    July 2013