geekling

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  • barryboomer
    I'm already eating both cabbage and sour kraut.
    Nothing helps and am going to the Dermatologist Monday. It's an Eczema / Dermatitis of some sort with 3 different types of lesions. This is the Doc I go from My skin cancers ever 3-6 months and am HOPING for something to tamp this down a bit. Tried everything I can over the counter and tried stopping a few new supplements to no avail. I've always had some itchy skin conditions but this is a major outbreak that is really ruining my life. Thanks for the comment and suggestions....How Are YOU?
    March 2014
  • LMM
    Geekling I will be in Tampa for a few days with family. I have no idea how far that is from you. I will be leaving ipad in California so i havent a way to connect with anyone online. Where can I find a filter?
    March 2014
  • LifeIsAGift
    Geekling, my heart goes out to you for how the medical establishment has treated you.

    I was just now re-reading the long string of posts offered to Brendan in the UK, and noted there that you had an external cancerous growth that was poo-poohed and ignored for years. Outrageous!! I had some external growths which were disregarded, also, but blessedly, got myself to a colorectal surgeon after a year of that, who instantly knew what he was seeing (without even doing a biopsy). What doctors don't know is scary, and as you said, often times they lack sufficient curiosity/care for a patient to even be adequately treated.

    I'm so glad you made it through all that you did, despite the battering your body has taken. I am with you on the extreme sensitivity in the genital area from the radiation. Who knew the source of so much former pleasure could now be the source of horrible pain! Also, if I am ever able to use regular toilet tissue again, I'll be amazed.
    March 2014
  • meyati
    Geekling-I do know a cowgirl that got it and it went that quick. Shelly was 17. Bought her prom dress, so her mother was fussing on her back, looking at how the gown fit- her BFFs and cousins. 2 weeks later, she was getting ready for the prom and her mother noticed a small black hole by her spine. The next working day she called up the doc for an appointment, Prom Friday night. The girl began having pain and she was taken into the ER. She had an atypical Queen of the cancers on her back. The doctors figured that when she got thrown earlier from the horse that she was breaking, that it set the cancer off. She was dead in 10 days. All of us were devastated. She was so young and beautiful.

    But that was just an extremely rare case.
    February 2014
  • meyati
    Dear Geekling, I wish you well today. I agree with you on many things, but we know that we'll disagree. Because my face is the site, I'll have an appointment at 2 PM-whatever-I get inside the office and shove my hat into my purse. Somebody will say--Is that skin cancer? Then they tell me that I'm not supposed to be out in the sun and I need to wear a hat. I tell them to talk to the person that schedules appts, so I can start going in at midnight to see the Dr.

    People's minds are closed by fear. Say anything, do anything. I really didn't like that one where she said that a person needs to do what the doctor says. She did say she was sorry that I've had bad doctors-her mind opened a little.

    I live in the Rocky Mountain Indian Country. They had cancers, but usually died from something else-violently. Here many people still take the 'Long Walk" instead of languishing in bed, part of that was to take the bad spirits away from their loved ones.

    Let me share--my husband had a nervous break down or something-became abusive-loud and angry in the village. He'd scream at me in public.

    A young Navajo medicine man came over with a gift for me-a Dream Catcher. He told me that I needed to put it over the bed to protect me-that several medicine men prayed over it-one served under my father before WW II.

    The house became quieter, my husband became less of a hair trigger-he hadn't touched me at that time, or I would have left him. The house was kinder. Then one night, he began screaming that I had cast a spell on him. His anger was disappearing, his unhappiness was melting away. He began sleeping well, and he didn't like it. So, his nasty actions and paranoia ramped up again.

    When he became physical, I left. There's more to tribal life than food and herbs. A Dream Catcher with the smoke of sage and sweet grass was just as powerful-actually more powerful than psychotropic drugs.

    One of the main killers was abscessed teeth - all tribes, My uncle would cut off twigs, especially willow twigs, in Europe. He and his men brushed their teeth twice a day with the splintered twigs. He and his men went through the war without cavities-that's the Cheyenne way, but tribal people still had dental problems, and their lifestyle was conducive to having busted teeth.

    People with a normal cancer can be told with certainty what to do. They go on-line and find confirmation. It never dawns on them that there are people like us, where the doctors really don't know what to do. There really aren't guides for us. These people have closed minds because they don't think for themselves. They are upset that somebody doesn't want a specific type of chemo.

    February 2014
  • Carool
    Geekling, thank you for responding. I want to add that I tend to be argumentative (too?), but (as other Whatnexters said) this isn't the venue (I'm not telling this to you - I am cautioning myself). Anyway, best to you, too - Carool
    February 2014
  • Fusionera
    I'm still waiting for your e-mail. Try Yahoo....where I am still Fusionera! My username here is because of my intense love of jazz fusion. :-) Music tends to keep me upright!
    January 2014
  • Fusionera
    I apologize that I did not see your earlier post on my wall. I would love to help with editing your work. Send me a message at fusionera@yahoo.com so we an exchange contact info. FYI - I am very much a computer geek, and I earned my MBA (Master's Degree in Business) after my first two craniotomies in 1995 and 1996. Why I decided on B-school instead of a trip around the globe, I don't know. LOL
    January 2014
  • barryboomer
    Hey Geekling (what is your name) ? lol
    I am NOT near the ocean and Can't afford ONE MORE Item.
    I have a LOT of energy and feel Great!
    Just have worry periods that this won't work or I learned of my cancer too late for it to work.
    BUT I still think it offers me the best chance. I go back to my Doc in 4 weeks but he only talks to me and is looking for more symptoms. He feels this will work and I am grateful to have a supportive Surgeon in my camp. He says he is Very interested in my case to see if it works I guess...lol....I'm like his guinea pig. He's had other patients have success but only after the regular treatment stopped working. Maybe HE and I can help others IF this slows down or stops the growth. I pray that it just goes away but am not greedy. God will do what he will do and that is that. THY WILL BE DONE....but I'm using the mind he sent me to try creative things.
    Barry
    January 2014
  • HOBO
    You mention eating sprouts. What kind? Raw? From grocery store? I used to put bean spouts in soup BUT do you mean more of the micro greens?
    January 2014
  • baridirects
    Good morning!

    I just wanted to send you holiday greetings, and let you know that I honor you for your posts. I don't always agree with your approach or your paradigm, but I've come to recognize that whenever you say something, it's clearly well thought out and entirely sincere. Thank you for that.

    Sending you positive energy to support your journey-

    Namaste,
    Christine
    December 2013
  • MichaelV
    Thank you so much for your concern. I am way past that point and have had my cancer reoccurred 3 years later, 2005, after having the prostrate removed. When it was removed I was told the cancer was COMPLETELY contain and there was no sign in any of the lymph nodes they removes. I have been a Stage IV ever since and it is in a lot of my bones. I posted my scans, one done in Mar.2013 and one done in Nov 2013.

    I am so glad that you have beaten it, It makes me feel good to see others who have had success. Thanks for the advice and my you and yours have a happy, healthy and joyous holiday season.
    December 2013
  • banditwalker
    Hey girl, how ya doin'? Wanted to see if you have ever heard of this, Artemisinin. A girlfriend just emailed me the info about it and it looks very interesting. I will have to do a little more research on it as to where and safely to buy. Perhaps call around to see who utilized it and could advise on a safe way to use.
    OK, just always wanting to get your perspective on new herbs. Hope all is well and you are getting ready for the holidays.

    http://www.naturalnews.com/033182_artemisinin_cancer.html
    December 2013
  • barryboomer
    Hi Geekling,
    I'm the guy not doing treatment.
    I am juicing 4 times a day with carrot, apple, broccoli, ginger, celery and cabbage. I'm taking green tea and reishi mushroom extract....curcumin, ginger and soy/genistein complex as well as a bunch of others. I eat Dark Colored fruit AND pineapple and lots of sunflower seeds, almonds, walnuts and pumpkin seeds. I take a GREEN Drink daily, do deep breathing, dry skin brushing, and numerous veggies for dinner.

    Doing all I can do. Don't feel that chemo and radiation is good for ME or this slow growing lymphoma.

    What did YOU DO ?

    Barry.....contact me at bdbutler@centurylink.net
    Sebring, Florida
    November 2013
  • robinhood91107
    Thank you. Best advice yet.
    Good news is that I was "fired" by my last doctor. More
    good news is that I have a new doctor on the way. I am a veteran with a disability and can have a VA GP. Also I am in the market for another GP to continue my monitoring of my PSA until my appointment with my VA doctor, who will get blood work done the same day.
    My last PSA reading, one month after my Radiation Therapy, was 67 which went up from 59 during the treatment.
    Looks like my "yellow brick road" might take me where I want to go, SURVIVORSHIP. Let's keep in touch.
    Robinhood - Ted
    December 2013
  • Clyde
    So.......... whats the name of the herb?
    November 2013
  • mkjetset
    Thanks so much for your response to my chemobrain question! The information you gave and your attitude toward recovery are extremely helpful. I started a diet overhaul about 3 weeks ago. I found a site called peertrainer.com that really works to get you detoxified and move your diet to raw veggies, healthy protein and foods that support healthy gut flora. Also cutting out anything processed, gluten, soy, dairy, and other foods that create an inflammatory response. I feel ten times better already!

    As far as the physical symptoms go, I do continue to have some "gifties" as well. I had really good pelvic physical therapy for 6 months after treatment. It vastly improved my problem with receiving a little gift every I time passed gas. I don"t have to wear panty liners anymore. I do, however, still have a problem getting completely clean after a BM. The lady parts issues remain. The instant menopause is a bonus. But I feel like it is all moving in the right direction. Thanks, again! It's time to get out my yoga dvds!
    December 2013
  • reggaetime
    OMG i laughed so hard reading your comments! I thought I was the only person in the world that has a colostomy.My friends think it's ridiculous that I have to worry about crap all over me, and scared to go anywhere, for fear of leaking. I have changed products so much, but nothing seems to work. It's one thing to lie on a table and have an ostomy nurse do it. But a whole 'nuther thing to stand and apply it in a mirror.now I have two hernia's,so i go for surgery in a few days. I just want it to be over. argggh!!!
    November 2013
  • tam4givin
    Hi geekling, I live in TN' far enough south that I totally understand your feeling about doctors/medical people!
    My friends that live up north are so totally shocked at what goes on here. My sister was here a week and said it wrecked her mentally to just see me try to deal with them.
    I have been blessed with a nurse friend who goes with me to appointments and had to take care of me in the hospital.
    There was one "tech" trying to take care of 12 people who had just had surgery!
    There were some very nice employees at the hospital, but they can not give any where close to the care that is needed when they are responsible for the care of 12 people each.
    November 2013
  • LORDSIVA
    CANCER HAS BEATEN. INDIA'S HISTORICAL LIVING LEGEND KNOW EXACT MEDICINE FOR CANCER BECAUSE LORDSHIVA SUPREME OF ALL GODS SPEAKING WITH HIM.

    RESEARCHERS ARE INVITED.CANCER PATIENTS FACING PAIN AND DEATH ARE INVITED TO CONTACT HIM BEFORE HE IS GETTING WORLD FAMOUS
    November 2013
  • Clyde
    Nice Rant. We need more of those.
    November 2013
  • sherryhalpert
    I am not the person who asked the question about depression but you sure helped me today. I guess I have been depressed too and not realized it. I have to remember that there is always hope and the answer I am looking for is out there somewhere and I just haven't found it. Thank you for brightening more than one person's day today.
    October 2013
  • banditwalker
    Hi geekling, how are you today? It's beautiful here and actually got down to the mid 50's this A.M. Brrrrrrr! We are not use to this yet. But, the tourists have gone home and we can have our beach and parking spaces back!!

    A friend of mine just brought over "Chlorella". I put some in a smoothie and have been reading all about it online as I drink. Have you ever used this? My friend explained it to me as it helps to "corral" the chemo and helps flush it. And not only that but has many other health benefits as well for someone going thru' chemo & cancer. Was just wondering if you had heard of it and tried it. It tastes like grass but my body is telling me it tastes rather good so I always listen to my body.

    Hope you're having a good, relaxing day!
    October 2013
  • EdB
    Thank you so much for responding to my questions, I really appreciate you take the time to answer.
    October 2013
  • msiam281
    my name is michelle and I live in Southern CA.
    My Mom was recently diagnosed with Anal cancer. We are in the stage of just finding out. There is so much unanswered questions. My Mom lives is Easley, SC. She is seeing her doctor on Wednesday to find out where we go from her. I know they are doing an Urgent CT Scan to determine if the cancer has spread through her cells to other parts of her body. We are not sure what stage cancer and we are not sure her prognoses yet either..... I have so many questions and I'm full of fear and the unknown.... I appreciate you being on this website. I hope we can chat soon. Thank you!
    October 2013
  • Rowrow
    Hi thank you geekling! Funny that you mentioned adoption , I was staring to look into it. I am not physically ready for it but definitely in my horizon. I would love to give a child a deserving home and I am not particular in race, color or age so my chances should be pretty good :)
    October 2013
  • erikalong
    did I offend you by my question if so of well
    October 2013
  • cassie_1076
    i'm not sure all the details . my Dr said that the test on my tumor that they took out of my breast showed a small touch of cancer in it . so she wants to do a MRI on my breast to see if it had spread or not .
    October 2013
  • Ydnar2xer
    You said, "Because you are ruined..." in a response and I immediately thought, "OUCH! How NEGATIVE!" I read the rest of your post though and thought it was sensitively written. The only part that still bothers me is the first line, because I think it implies there is no hope--or fixing it, whereas I think you might have meant "Because you are injured" ("exhausted", "spent", etc.) It IS quite a trip, eh? I am just past my one year dx date and am still trying to recover, although I think this just might be the new me! :-(
    September 2013
  • banditwalker
    Hi geekling, Just me.

    I see you may be living a raw food lifestyle. I may not be saying it right. I am very interested in eating healthy and was wondering if you knew of any books, videos, articles, etc... that I could get my hands on. I have heard of this way of eating through different TV shows, advertisements, and headlines.
    I hope I'm not out of line but you seem very knowledgeable.
    October 2013