reggaetime

I only had an ileostomy for 6 months, but I also had some adventures with it....hint, don't eat spaghetti sauce right before you are due to change your seal . I really liked the Hollister seals, as they were smaller & more comfortable, but sadly, their adhesive was lacking adhesiveness, leading to more than one unhappy incident, so I ended up with Convatec, which worked quite well. A couple of helpful tips... I used a foam tape made by Nexcare, that you can find in the supermarket or drugstore, to seal the edges if I was going swimming, or wanted some extra protection. I was told is that you have to be kind of religious about changing the seal...it was every three days for me, just like clockwork. And I had squirt bottles in my bathrooms & purse, so that I could just rinse out the bag & edge, rather than having to wipe everything out. Also, that liquid stuff that goes in the bag really does help with the odor. I was blessed with a nurse friend who does a lot of ostomy care & she gave me a lot of tips, so I really didn't have a lot of difficulty. If you are really having a lot of problems, see if there is someone at your hospital, or possibly an ostomy group who can help you out. I know it sucks, but given the alternative...Good luck... and am available if you need to chat.

I have had allot of experinces, some good, some not so much, Convatech seems like a decent company with strong customer support,,, feel free to reach out / vent to me if ya need to.....

Hello and welcome, we are glad you found us. Your experience as a survivor and a repeat patient is very valuable to those who are just starting their journey, you can help by answering a few questions. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/kidney-cancer
There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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GregP 3X Survivor
Team WhatNext Community Mgr.

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter

To respond to someone's comment on your page here, just click on the comment link that is under the post. Then a box will pop up that allows you to write/type in that box. That's it. Another way is to click on the questions link at the top of this or any page and look through the questions. You can talk to someone by clicking on the answer/comment links on those too. That's all there is to it. Let me know if you need some help. Happy to help!
Hope you're doing well.