GregP_WN

Hi Greg. Thanks for your response the other day. Officially I believe we are moving forward with a divorce. I'm so sad. Thanks for helping me see I'm not the only person who's gone through this. I can see how it would be a caregiver saying I want out. In my case the opposite. It's so sad. My parents have seen him be verbally mean to me but we all thought it was the disease or pain or maybe the meds. Well apparently not. If you know of anyone I should talk with send me over. You've been great. Now "after this is over" according to him we can get on with our lives. Unfortunately I thought this was my life and now that he's cured for the doc to say 85% cured before he had the 35 radiation tx .. Well it's so so sad I don't get to see the next healthy 40 years with him. So so sad. He couldn't eat at thanksgiving so we went nowhere and he isolated himself to football all day alone ... 4 years ago on thanksgiving 2009 he proposed to me. Now it has a different memory. Guess the fairy tale has to end sometime. I just didn't think it would be after all we've been through. So sad.

How did you do eating?
Indigestion would be a good sign.
Happy for you,

Hi, I live in Clarksville. Go to St Thomas for chemo. TN Oncology

Hi. It's taken me a few days to collect myself. My husband decided we are getting divorced again. He got great news from doc on thursday he should do well we go back 12/5. He also got great report from the ENT surgeon Friday but does have a little thrush. In any case he said it will be months before we can deal with our marriage but it's over. I now see he's a runner. His family has been of no support - mine has - and they are all "runners" it's so weird. I'm a stick it out I love you girl. Therein lies this issue. He won't go to flu felling he won't try anything. Doesn't want to he's still angry all the time due to pain ... Does this happen a lot? We had some issues but we're working through them pretty successfully over summer and then this diagnosis happened and he said he can't get past the issues anymore. We've had a tough year. We deserve 40 more together!! And he's going to be just fine. He had tonsil cancer (squamous cell) so left tonsil is gone and the radiation was proactive. As the only person he's seen in weeks is ME and the dog. Anyhow I'm venting but I'm devastated. I know you had this happen to you but this is crazy!!!

Greg, you are a big blessing! Thank you for all your encouraging words!

Hello, Greg -

I'm not sure this should be directed to you or not - but I don't know to whom it should be sent.

On Friday 11/22, MMarie posted a link to Breast Cancer Action (www.bcaction.org). I went to the site, both the link, and their facebook page. It seems to me that it is a very worthwhile organization. But I couldn't find anything that corroborated my opinion. I understand that WN is in some way associated with ACS. Is that the reason why there isn't an endorsement of BCAction here?

Probably there are many organizations that are worthwhile - for various types of cancer, or the disease in general. But I couldn't find a listing here --- only a few that I think were ACS related.

Skeptic here is sure there are many UNworthy organiztions, so I think it would be good to have a listing of those that are worthy.

Thank you. And have a wonderful Thanksgiving.

Greg, I posted a blog about my experience with the top ten worst thing said to me to a cancer patient. I think that it is thought provocative and even though others may have their own list it may be helpful to know others feel the same way. I am not sure I posted it for everyone or just my followers. Please advice. I would like to follow up with the Top ten best things to say shortly.

Dan Schiavello

Dear Greg, I have just realized that whenever somebody post in my wall I receive an email that set apart only posts in my wall without all of this new information that is coming in....Is there a way that when I am in Home I can access only the posts in my wall too? if not I would ask if it is possible to add this link in that tab of "other links" below photos, following and followers.....many thanks in advance for any help in this matter and God bless you and all of us always....

Hi Greg. Thanks for the kind welcome.
Will you please help me with my diagnosis section. The leiomyosarcoma part is correct. I can add the further term "retroperitoneum" to that, but I do not find that as an option.
In some places on this site, there is a required response as to diagnosis that contains only the uterine cancer option.
I see that if I delete my diagnosis to start over, that I lose almost everything.
I appreciate your help.
Karyl

Hi again ... Did my last post to you go through? I don't know how to check it. I was asking about after radiation, etc.

Hi. Just wanted to say I lived in McKenzie/Greenfield area for 7 years before I moved to Michigan. I shopped in Paris all the time and have only been to Big Sandy once. I worked at the walmart in Martin. Just thought I would say Hi! And yes I too wish TN would win more lol. Go Vols. Go Titans lol.

Dear Greg:

The post about an incomplete profile (for me, the thyroid cancer profile) is one of many questions I have sent, as I had the same problem. However, I have not gotten an answer to most of my questions. I don't know what I am doing wrong, but I'd be most grateful if you are able to help me ask questions and get them to the right person/people.

Since I don't have a way to have a copy, I can't even re-send the questions I've not had answers to; but I think it is about 4-5 or more. But this post prompted me to remember that this was one of them.

Thank you! I love this website and the people are great. Please help me to know how to ask questions without posting them on the site. Thank you!!

Linda

Or give them a tattoo and start them on radiation. See how they like putting Aquaphor and burn cream on intimate areas. Make sure the tattoo is placed on an area of the body not unclothed or the tattoo will become a "badge of courage." In order to be good cancer patients they must learn and become able to discuss cancer: learn a new vocabulary and how it is used, know what treatments are given for what conditions, one of us can spot a phony from someone's inability to discuss cancer. These phonies may need psychiatry or, most of them, need a clinical psychologist.

Hello Greg, I was diagnosed with P-16 tonsil cancer in Oct 2013, so far I've had my biopsy which sucked afterwards, then went and meet surgeon, radiation doc then chemo doc. I had my port put in 11-18 and starting chemo and radiation on 11-18. Doc's are saying no surgery to remove tonsil, that chemo and rad shown take care of me. Thank you for sharing your story and look forward to more of your post's

Hey, GregP...hope you are doing well...we are doin ok....I have a question that has been bothering me since we last saw the onc. She had additional tests done on my husband's liver biopsy to see which kind of neuroendocrine cancer it was...high grade or low grade. She told us the "line" between the 2 was at 20%...of whatever they test for....and although she tried to kinda mask her reaction, it was evident that his number was scary...she said his tested at 75%...I dunno for sure what that means as far as how chemo will work or not and it's driving me crazy. It just sounds like this is very aggressive? Do you know what this 75% means? I know I can ask her but I was hoping to get an idea before we meet with her again and my husband, David, is present. With him there, I may not want to ask her in front of him. Thanks for your help...hope this is not too confusing for you! I get so rattled sometimes that I can't even think straight!!

Hi Greg,
Thank you for your information! I have bad no healing problems ever! My face flap healed fine and had lipo on the flap in June to reduce a little swelling and that all healed fine! I had radiation a year ago this past October and have no residual side affects except for the loss of my saliva! The doctors were amazed how fast I healed and never had any infections at all! I guess ?I am pretty lucky so far in that respect on healing! I hope my teeth stay okay! I see my prosthetic dentist Monday and he will be developing a plan if my teeth do start to come out! I only have about ten on the bottom and two molars on top because of the flap! Not fun eating but I am managing! Thanks again. Joe

have you heard from cellkiller lately? I'm worried about him

I'm thankful to for being able to share life with family and friends but I do have feeling like you that this all sucks. We do adjust but with sacrifices. Some of the things that were normal will never be again. I do realize it could be worse than what I'm going through. Many of our fellow cancer survivors are having bigger issues than I am. I am thankful and pray for them!!

When I'm talking about $1,800 plus multiplied-that was the ER visits.

STEMCELL RESEARCH IS A HEAVY SINFUL CRIME.GOD SAID TO ME.
"FINGERS WILL GROW ON MOUTH.IS THIS NEEDED?"
"FIRST I WILL ENCOURAGE THEM.THEY EILL FALL ON TRAP"
TOTALLY STEMCELL RESEARCH IS A DISASTER FOR MANKIND. I AM THE FIRST PERSON WHO REALIZED THIS

ALL CANCER PATIENTS ARE INVITED FOR START A MOVEMENT AGAINST STEMCELL RESEARCH.
THIS ALSO A SIMPLE WAY TO GET GODS BLESSINGS AND AFFECTIONATE LOVE TOWARDS YOUR FAMILY.

GOD WILL BE MORE HAPPY AND GIVE CANCER MEDICINE
TO MANKIND

I STRONGLY CONDEMN STEMCELL RESEARCH

STEMCELL RESEARCH IS A HEAVY SINFUL CRIME.GOD SAID TO ME.
"FINGERS WILL GROW ON MOUTH.IS THIS NEEDED?"
"FIRST I WILL ENCOURAGE THEM.THEY EILL FALL ON TRAP"
TOTALLY STEMCELL RESEARCH IS A DISASTER FOR MANKIND. I AM THE FIRST PERSON WHO REALIZED THIS

ALL CANCER PATIENTS ARE INVITED FOR START A MOVEMENT AGAINST STEMCELL RESEARCH.
THIS ALSO A SIMPLE WAY TO GET GODS BLESSINGS AND AFFECTIONATE LOVE TOWARDS YOUR FAMILY.

GOD WILL BE MORE HAPPY AND GIVE CANCER MEDICINE
TO MANKIND

THIS WAS NOT A SPAM.

Hi greg can you send me Zoe's email - we are trying to met on Thursday as we both have appointments with our oncologists that day.

we are being treat an NY Presbyterian - 168th Street in NYC

Hi Greg,

Having a problem updating my info. It says that it's incomplete and I can't figure out how to update my stage of treatment. I finished active treatment last Friday, so I still consider myself a patient. Or have I moved to survivor?!

Perhaps you could take a look at what someone sent to me. It is all in caps and asks for money assistance. I can not believe the story as the man mentions that he was operated on for Stage IV cancer. His letter goes on and on and I just got the feeling that it was something less than truthful. I think you can find it by going to my page, if not, I can copy and paste it here. Thanks for your help in this matter. Michael

Hi Greg - can you give reggaetime my e-mail address? We have so much in common, I think we could really help each other out. Thanks! Bonnie

Care givers, friends, and family, have opinions that can drive you nuts. They mean well. I just listen politely and know only fellow cancer patients and doctors are the care givers opinions that count.

Thank you for all the Likes.

Thanks - loving my TRAN creative poster, courtesy of your referral!

Good morning Greg! Hope you are having a blessed weekend...thank you for all you do here. I know I speak for everyone! Question...November is PANCREATIC CANCER AWARENESS MONTH. I'm on the committee for the Houston affiliate. There are upcoming events and I would like to share updates with everyone. Is this okay? It is through PANCAN. Just some info that might be helpful to those friends who this has affected in some way. Thanks, Donna