Kebohs

Just read your post about numbness from parotid gland surgery.
I have the same problem, and it was about 8 years ago. My surgeon did a very poor job, and my numbness is in my jaw, neck, and part of my ear. I had all sorts of problems eating certain foods for a long time, especially tart things like berries.
This numbness is permanent as you now have ascertained!
It drives me nuts sometimes, I can't stand to be lightly touched in those areas & getting my hair done is a chore. I never wear earring or necklaces either.
Just thought you would like to know about my experiences.

"Rejoice in hope, endure in affliction, persevere in prayer" You're strong. I'll be praying for you.

Surgery Monday morning. My understanding is tissue removal (biopsy?) and possible tonsillectomy (palatine?). Is this similar to your experience? What can we expect?

Thank you Kebohs.

hi i am 64 too with same cancer...didn't take care of myself and just got out of hospital with pnemoniq

Hi, our paths haven't crossed lately, and I'm wondering how your nose is doing-really how you are doing.

This has been an interesting year to say the least. I was sitting in a waiting room, and a nice old lady sat down. She asked me if I had cancer, or was I waiting for someone. I told her that I had cancer. She asked, where? I said "My nose" She grabbed my nose and pinched and twisted it. She's an Alzheimer's patient-and i guess the word 'nose' set her off.

I went to Japan. The plane was torn up by rich fraternity brats in Colo. tore everything up they could. We changed gates 4 times, had 3 different pilots-they can fly only so many hours. I'll put it this way-my brother waited 24 hours at the airport, and he didn't know if the plane crashed or what. A 30 hour trip took over 50 hours.

In Japan it was wonderful. Everybody was so nice. I got about 3 types of flu on the way home. Gave one strain to my family. The good news is that I was able to fight it all off without going to a doctor or anything. I just ate lots of chicken noodle soup, drank water and Coke Cola. To me that was a big step, my system is getting better.

Well, I'm going to bed. tomorrow, I'm cleaning some weeds out of the alley---

Hi, hang in there about your scan results. I hope that you get piece of mind after seeing the ENT. I hope that this is a good weekend for you.

I read a report about the future of cancer care by ASCO. The worst problem for patients and doctors is "REFERRALS". To prevent fraud, Obamacare is demanding that doctors personally care for referrals to prevent fraud. Then there's more paperwork. But you already know that.

Let us know what your ENT says. I'm sure it will be good news. Take care---

Happy First birthday.

What a great picture!

Hi. Just checking in... Any news about your PET scan authorization yet?

Glad to have you aboard and HOPE I don't drive you crazy.
Barry

Hi, I just read your answer about a dietician. My radiologist told me to try to get 5 to 15 lbs. on and I had about 2 and a half weeks to do so. I also was told to back in protein. He and the regular oncologist are managing my weight. I gained 10 lbs, and got through radiation without losing any. Both of my doctors are telling me to keep the weight on, and making sure that I'm still eating eggs, whole milk, fatty cheeses, cream soups wit dry milk powder. Any way you see from Greg's answer that he needed to have weight on him for the second go-around (as my oncologists put it). You might think of adding some weight-or eating more cheese and crackers or something.

Hi, my nose and sinus seem to be doing good. My doctors are starting to express the thought that this might not come up again or be so slow that it can be treated with less trauma. I'm 73, after all. I don't have any other problems. I was up on the roof again. Pretty good for a treatment that the ACS said wouldn't work. and Nobody is talking about cutting my nose out anymore. When everybody says that nothing will work, I think that the patient has the absolute right to try what their gut tells them to do. There's nothing to lose.

My immune system is improving, but I take tons of vitamin C, B12, and Folic Acid. I carry masks with me too.

I hope that your nose and sinus settles down, and problems become rarer and rarer. I know that I'll do better, but will still have problems off and on. I mostly hope off. I'll let you know how 24 hours of flying one way affects my ears and nose. I've done lots of flying, so I know if anything is worse. It should be OK with my saline nose spray. I'm just hoping that my plane isn't diverted to Malaysia. ha, ha,

Hi, I want to wish you a Happy New Year. I'm doing OK. My nose is stable, and my immune system is getting better.

I have a nutcase that's reading my scans-I don't know whether to laugh or shoot him. When he read my first scan, I guess he was so overwhelmed by the cancers that he didn't call that I have a tonsil stub left over from my tonsillectomy in 1948.

After treatment he noticed that I had a tonsil stub and he labeled it as a cancer. I have a permanent bit of swelling inside that side of the throat from an earlier medical problem. So I go into my ENT, who removes the tonsil stub, and does biopsies on several site inside my throat. All negative. This radiologist keeps saying that area is cancerous. I went to his boss in Sept. and told them they hired a real loser. For me and the doctors, he doesn't even sign his name. That put my oncologists in a tizzy, thinking that several radiologists think that the tonsiless area and the side of my throat is cancerous. Then this time, he called suspicious spots-dots in my lymph glands. He doesn't say which side or both, how dense-- just a little bit- or a whole lot. Since he hasn't figured out a tonsil stub,

My grandson showed up for the football game, and brought his dirty laundry-----Take care

Hi, I got back from the Endo. She says that thyroid is probably causing these things. I'm going to try a synthetic thyroid and see if it works. I tried one in the 1980s, and it put me in rages-I went crazy. I explained this to her, and she said that meds have changed, and she'd make herself available for any side effects.

My thyroid screen at the ER already showed a change since feb. .

How are you doing?

Hi, how are your ears, etc. doing?
I'm sorry about the lymphedema. Before my RSD was treated- found a workable treatment-my hand was almost black, the hair fell out, the skin looked slimey, and I didn't have any control of most of my fingers- they just flopped around. I still have some trouble with swallowing on that side. The specialists told me that I'd end up on a breathing machine like a paralyzed person, as it was affecting my inner chest muscles. My lymph glands in my arm pit are still somewhat swollen, but stable. My hand looks OK now- it's strong but I still have trouble with fine motor control.
What you have is different, but I think that I understand some of what you are going though. I'm so sorry.

Hi,
Thank you for "liking" ha my response. Like i said i have never actually chatted with anyone here. It is kinda hard to figure out, lol I am on Facebook tho. I am Ally Hill blue springs, mo.

Kebohs...I wish you well and full recovery...sounds like you're on top of your treatment. I can't say the dry mouth goes away but it gets better.....I am 1yr 9 mo out of treatment and cancer free and still have side effects....but it's worth it all to be cancer free. Try to keep your spirits high and eat, eat eat....they say that is what helped me the most I kept eating....hungry a lot...lol and even though I lost 90 pounds I am still eating.....

I am honored that you have chosen to follow me.

"Belief is biology," Went through the same treatments. They work!

I'm a good flosser, but my mouth got so tender that I did it very gingerly-just enough to have a clean mouth. I was very superstitious-and I was scared that even a small piece of a split pea between my teeth would make my mouth explode or something during a treatment. I was 71, now 72, and I still have all of my teeth. Like you, I don't know how high the dosage was, but I was told it was extremely high. Good luck-let us know how it's going.

Hello and welcome, we are glad you found us.Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/head-neck-throat-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

Follow Us on Twitter Click Here =>http://bit.ly/XExkce
Find Us on Facebook Click Here =>http://on.fb.me/zjBAPl
Our Pinterest Page with Resources=>http://bit.ly/12qVtEs
Our Help Page with instructions for the site->http://bit.ly/1aR5165
GregP 3X Survivor
Team WhatNext Community Mgr

We are hear if you need us

Good luck and prayers are with you

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter