Hello from WHATNEXT!

Njames (STAFF)
Njames (STAFF) Unconfirmed, Member, Administrator Posts: 7

Hello WHATNEXT community! We are Nicole & Nia Maya, Advocacy & Recruitment Specialists here at WHATNEXT. We wanted to pop in to introduce ourselves and give a quick update regarding our revamp. We've been working hard behind the scenes to build back a vibrant, supportive, and inclusive community! Please take a minute to look around the website and follow us on social media. Also, keep an eye out for our new WHATNEXT newsletter.

The process of building interest and engagement with our forums may take some time, but we are committed to getting the conversations going again, and we'd love your help! Please invite your friends, families, and community members to join the conversation. Are you in a support group on another social media platform?

Share our link with them! It takes a village to build one!

We are looking forward to great things here at WHATNEXT, but we can't do it without you! While we will be monitoring the forums to make sure everyone is playing nice, we will also be sharing the latest cancer news and topics of interest, as well as opportunities to share your story. We encourage you to share your journey with us all, the good stuff as well as the bad. Let's be a source of encouragement and empowerment for each other!

Comments

  • LowcountryJen1969
    LowcountryJen1969 Member Posts: 14

    Thank you for this post. I hope that this platform can grow again and be helpful. I will follow on social media, tag you all, whatever it takes to get this place up and running.

  • omaalyce
    omaalyce Member Posts: 48

    I am excited to see this new site. I originally found this site when I was diagnosed with DCIS & IDC breast cancer in 2016. The support and information I found here was invaluable. I told many people about this site and Greg. I was diagnosed in December 2023 with Metastatic Breast Cancer after seven years of being NED (No Evidence of Disease). It has metastasized to my bones and lungs. I have had 6 months of treatment and will see the doctor on the 20th of June to see if the medications are still working. I am on Ibrance, Fulvestrant, and Xgeva (for my bones). If there are original members here my user name is omaalyce. I look forward to reconnecting to others who have rejoined as well as meeting new members.

  • beachbum5817
    beachbum5817 Member Posts: 238

    omaalyce, I am so sorry for your latest news. I remember you from "the old days". Good luck with your meeting with your doctor on the 20th. I hope that you get good news. Let us know how you make out when you can. I will keep you in my thoughts and prayers.

  • LowcountryJen1969
    LowcountryJen1969 Member Posts: 14

    I am sorry for being away so long. I hope Omaalyce is still doing okay. Please check in with us and let us know if you are okay. I am so sorry to hear about your recurrence. I hope that the medications and any other therapies are making progress.

    I was legaljen1969 in the "good old days" and maybe I even went by other names. I sort of lost my "identity" when the site starting slowing down.

    I sort of "lost my identity" trying to be all things to all people in the last year. My supervisor got very ill mid-year and spent the better part of the summer hospitalized for a malady of his own making, precipitated by his own choices and he still denied for months that they found anything wrong with him. He is still pretending that he spent months in the hospital and they have no idea what is wrong with him. I couldn't live with the lies any more. I couldn't live with the way I was treated in those last several months, and I had to break myself free.

    It saddens me when someone has to fight like heck and do all they can to fight a disease over which they have no control, a disease that they did nothing to invite into their lives. It inspires me when so many of you have the courage to fight, and the tenacity to continue on in your fight. I wish you all the best. Know I stand beside you in the fight and I will petition a hedge of protection around you, and hope that arms of comfort wrap you tight and you know you are loved.