cam32505

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  • rileybailey
    I think that's a reasonable answer. Depends if the treatment is expected to work. If the prognosis is really bleak, what's the best way out. No treatment and lots of pain med and morphine OR .......
    August 2013
  • rileybailey
    Thanks for the article. Maybe....
    August 2013
  • eyewonder2
    Thank you! :-)
    August 2013
  • avonlea02
    Hi. We have some experiences in common and I wanted to say hello and offer support. I had ovarian cancer, Stage IIIc and massive surgery last Feb (2.2012) followed by chemo that was finished up at the end of August last year. On the PET scan to see how that was going, thyroid cancer was discovered, much to my surprise.

    Thyroid was removed in March, 2013, but the surgery had complications since the tumor was all wrapped up around my nerves/vocal cord, which were severely damaged; one side cord is paralyzed, still. I had to be trached for about 10 weeks which was really hard on me. On top of that, my daughter was getting married on May 5th and I was to sing at her wedding. I could barely talk, and singing - well, that was hard. I used to be a soprano 1, now I am a "bass', I think. I changed the tune, ended up singing a jazz piece (since I sound like a jazz singer, now, with a scratchy voice!), and sang with someone who took the 'high' notes. We pulled it off beautifully, and I felt good about it. Dressmaker made me a choker that hid the trach and collar fairly well.

    I am now without the trach. Had the radioactive iodine treatment; not easy, and that diet was hard...but I lived through it. I do hope that your doc gets your thyroid med dosage right soon for you. It will help you feel better, I'm sure.

    Please know you have support out there! Despite the setbacks, I am very positive, and laugh at cancer as much as I am able! I had my first return chemo on Friday. My daughter (grown) came with me to the chemo room and had brought feather boas and silly Elton John sunglasses. We had fun, being Divas, and the chemo nurse said the energy in our room was so positive! I plan to do even more next time. I make fun of cancer as often as I can. I do silly things (like when I walk down the hall with my infusion pole to go to the bathroom or get some water, I start singing "Me and My Shadow" or, "Stand By Me" - anything to lighten the mood. I will NOT let it get me down.) Of course, there are bad days and days when the reality hits me. But I work hard not to let them overpower me.

    Sorry. This is not about me...it is for you. But I wanted to share what I have done to help. I have lots more tricks that I have used. Actually, when I went into remission last time, my doctor said my attitude saved me. I plan on having the same thing happen again. Cancer schmancer. You goin' DOWN, baby! And leave my new friends ALONE, you big bully!

    Hope you feel better. Please feel free to write anytime. You are in my prayers.

    By the way, I saw this in my doctor's office and love it: "A setback is only a setup for a comeback."


    Linda
    August 2013
  • mjs24
    Thank you for your response it was very helpful! I hope they get your levels under control soon. Good information regarding cooking meals too. All the best to you too.
    July 2013
  • mjs24
    Hi cam32505, I had uterine cancer and hysterectomy 2 + years ago. Plus chemo. Dr found nodules on my thyroid, one biopsy came out ok the other is undetermined as is too small to get accurate reading. Both sides have very large nodules and will most likely need surgery in the future. My decision is to just have the thyroid out or wait. How was the surgery and recovery for you? I'm leaning towards having the surgery now.
    July 2013
  • GregP_WN
    Hello and welcome, we are glad you found us. Your experience as a survivor is valuable to those who are just starting their journey. If you see any questions you can answer, please do, and also please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

    https://www.whatnext.com/conditions/cancer/endometrial-uterine-cancer

    There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

    You may also find our "Beginner's Guide To Cancer" page helpful Click Here for that=> http://bit.ly/10BQKCi

    Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

    Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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    GregP
    3X Survivor
    Team WhatNext Community Mgr.
    June 2013
  • BuckeyeShelby
    Hi Cam. Welcome to What Next. There are lots of great people here. If you have any questions, please use the question tab above -- that way the entire network will have ready access & you'll get a quicker response. Likewise, please feel free to browse the questions, as your experience may help another WhatNexter. I'm glad you found us but sorry for the circumstances that led you here. Wishing you all the best.
    June 2013
  • DeanaBeana
    Hello and welcome to the site! We're happy you found us. If you have any QUESTIONS just post them on the Questions tab so everyone can see. Someone will come along and help you. If you find any conversations that interest you, feel free to jump right in and join them. There are some wonderful people on here just waiting to connect with you. You'll have a great support system on this site.
    June 2013
  • SueRae1
    I have hypothyroidism, which was made worse by chemo. You're right once you get the right dose of sythorid you will be fine. It took several months, after I was diagnosed to find the right amount - they started me on 25 MCG of Levothyroxin, 50 was the right dose for several years. Your thyroid function will be tested every few months to make sure that all is well.

    Best of luck from one IT person to another.
    June 2013
  • dmholt1957
    Thank you for your post. It really doesn't matter what type of cancer it is, it still takes your breath away when they say the word "cancer". I am so sorry that you had to deal with 2 different types of cancer like that.
    I was first diagnosed last Feb. and had surgery in March, i wanted both removed at this time but doc refused to do so. i went thru my chemo and radiation and 3 days later i was in ER with the worst pain in my chest. i had a huge absess come up under my skin where they did radiation and it took 6 months of cleaning, packing and finally graphs to heal because skin was so dead from all radiation. this year in March i was told that i was cancer free and then 1 week later i went in for mammagram and they found something in my right breast they wanted to check out. i had to go thru biopsy again and the docs had to send my specimen to Boston Mass Hospital for specialist to diagnose it because it so small but unfortunately they called me back 2 weeks later and told me that i had cancer again. i was knocked off my feet and was furious with my surgeon because he should have listened to me last year and i wouldn't have been going thru this again. i had my other mastectomy in april this year and then 2 weeks later i was back in hospital with blood clot in my lung and pneumonia. it has been a rough road this past year and half but God has been there every step of the way and held me tight when i felt like i couldn't handle anything else. So was my family.
    Hold on to God and your family and you can handle anything. May God bless you.
    July 2013
  • Joachima
    Hello cam32505, and welcome.
    June 2013
  • Ivy
    Hi Cam,
    It looks like you've had more than your share of bad news and difficult treatments lately. I'll be hoping that this part is behind you and good things start coming your way.
    June 2013
  • DaveWaz

    Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

    Wishing you the best.

    David
    Founder, WhatNexter
    June 2013
  • derbygirl
    Thanks for your response. I tried looking in my area but PA is a bad state to get assistance in because the Governor is cutting assistance to the elderly and the disabled. He took financial assistance away from us and now he wants to cut food assistance as well. Until we elect a new Governor in this state, every one is suffering.
    July 2013
  • smitty3618
    Thanks for your reply. I can not imagine trying to work right now. I can barely get out of bed. I salute you for your ability to keep working. I hope you are now cancer free.
    July 2013
  • smitty3618
    They had to stop the infusion and tried to restart it at a slower pace but I had a sever reaction and was going into bronchospasm so it was stopped. The MD wants to retry it and advised that the second time it should prove easier. I told OK if he stays in the room with me to watch the reaction himself, he agreed. Thanks for the kindly reply.
    July 2013
  • sherrya
    Hi cam32505, Thanks for the information, I appreciate any advice I can get, it has been such a stress reliever.
    July 2013