lujos

Hi hope you are ok

Hey there ! Just a quick hello .How are you ?

Hey there - just a quick hello how are you doing ?
Deb x

Hi there ! Just a quick hello ! How are you ?

Hi there ! Just a quick hello . How are you ?

I’m sorry for putting this on your wall but I don’t know where to respond to you. I was taking what you are and I couldn’t deal with the bone and joint pain. And now what good does it really do?

Hi there just a quick hello . Hope all is well and that you have a lovely Easter x

Hi there ! Just thought I’d catch up with you and see how you are . Hope all is well xx

Hi there ! Hope you are well just thought I’d let you know that The headaches I’ve been getting are being caused by a lesion - really sucks but not much I can do

@lujos, I am so sorry to read about your recurrence. You are in my thoughts and prayers.

@lijos, good luck with your procedure tomorrow. Good luck. Take care.

Thank you for your support. I will be on the identical chemo plan as you. How are you doing I see you have recurrence? I am so sorry. The mastectomy wasnt as bad as I had thought it might be, dont be afraid, they can reconstruct your breast, you however are magnificent and irreplaceable.

Thank you so much for sharing your experience wth me. While getting the chemo did they do any scans to see if the chemo was shrinking the tumor or did they wait chemo was completed. What type of surgery did you have if you don't mind me asking, and did you receive radiation? God bless

Hey there ! Just thought I’d drop you a line and catch up. I’m fine still get a bit tired and still not happy with tamoxifen but having a fantastic time (mostly) How are you ?

lujos, thank you so much for your comment in response to my cancer scare. Yes, logic goes into hiding at these times - or else it works to affirm the worst possibility. Whatever I mean by that.

I hope you're doing well. Hugs, Carol

Hi ! Have been thinking about you - how are you ?
I'm ok - my hair is still curly though I think it may be straightening now , the tamoxifen is making me feel quite unwell at times but hey it's not as bad as chemo ( not far off it on some days)

Hi, that's what caused the edict that I should leave America and I'm unAmerican-It was strongly put that I am destroying America.

I live in a state that has great difficulty in recruiting and retaining doctors. Long waiting times for an appointment if you are an established person.. Big Pharma stopped making an inexpensive med for my stomach in Nov, and the replacement is about $1,200 a month-every month for the rest of a patient's life-and that's with a GoodRX coupon. No help for people on Medicare.

Anyway-this person and her cronies never served -not even as police officers or prison guards. They never married any military person. They never had a child that served. They never had a parent that served. My father and his brothers were Army. I had 6 cousins in the 101st Airborne that died at St. Lo, France on D-Day, others that were Marines in the Pacific. Obviously they were older cousins--I was just told about them.

My son is a disabled vet-one that was disabled while on duty-not a drunken accident, my deceased husband was an advisor in Viet Nam. My brother was a career Marine officer, and I have a pic of him at Khe Son. I will add that my family-German immigrants-fought in New York for the freedom and safety of American colonies during the French-Indian War and the Revolutionary War. The women and children on the small farms were at great physical risk, and they had to protect themselves.

Then this woman went around and told others to leave America--I posted my history-about my husband-father-and son--and the pics on the pinboard. Her like minded friends had the sense to shut up, and be nice to to me. of course this woman that never served-probably never knew anybody that served--said that I should still leave America.

Anyway---this person thinks that anybody using medicare, etc is a drain on her finances. She's interrupted conversasions about medical care for homeless and poor with horribly cruel comments.

I don't know if you and I have even heard from the same person or persons. Cancer is bad enough---

I like your new picture - you look well and happy! Good for you!!!!

Hi ! How are you ? I am ok still fatigued though !

GM, I just wanted to say thank you your answer in helping me about my port. To answer your question, the only ones that use it to draw blood is the oncologists otherwise no one wants to touch it. I was reluctant in the beginning to get but glad I did and very HAPPY FOR IT TO BE GOING Bye- Bye LOL My last chemo is on St. Patty's Day and the following day the port is out. Excited for it to be coming to a end. Feel good and God Bless you in good health

Hey there - just thought I'd say hello and see how you are doing !
I'm at work full time and its exhausting !! Spent 45 mins in an mri machine to determine why I had severe back ache - herniated disc - so now have added a rheumatologist to my list of doctors . Have been doing pilates to build up the muscles that chemo weakened so far so good as no longer in pain-though I did think the rheumatologist was quite mad when he suggested it !

Just a quick hello ! How are you getting on ? I now find fatigue has crept in ( taken the day off work today ) my hair is super curly - dead straight before and I look awful but it's just hair. Not sure I'm going to stick with teaching Its really exhausting ! hope you are well !

Hey there ,how are you ? Well I had my follow up today - just a physical exam and all is normal - Hooray !!! I have a follow up with the surgeon in November (breast MRI- oh the joy of that weird machine ) then another follow up with my oncologist January (full body CT and various blood tests ).

Are you feeling more like you and have the side effects of the taxol worn off ? I asked about neuropathy and was told the pins and needle thing (though yesterday I thought my foot was trying to electrocute me ) last for around six months (Hmmmm)

Hey - just thought I would touch base and see how you are getting on. I'm still in the land of hot flushes but getting used to it . Still tired but able to do more :-)
Have you found out about getting the port out ?

Hey there !! Just thought I'd stop and say hello !! How are you ?
I'm living in the land of hot flushes - oh the joy !

Hey there just thought I'd stop say hello.How are you getting on ? I finish tomorrow - hooray- port came out yesterday. Have you found out when you can get your port removed ?
Do you know what happens at the follow ups ? I forgot to ask !!!! I think I was just in a rush to get out and leave - I am a bored of hospitals and really looking forward to going to a meeting where I don't have to take my clothes off !

hi again, lujos, I don't exactly mistrust my oncologist, I just don't understand her negativity. I feel that it bothers her that by my feeling positive, she thinks I don't understand the seriousness of the situation. She believes I'm delusional? Or in denial. And that is absolutely not true. I have felt since the beginning that I can beat this, and getting morose and depressed has never been my MO. You look so sweet, and kind, and "brave" in your photo. Do you ever wear a wig? I am trying to decide which way to go with that. If I may ask, did you shave your head before, or after hair loss? What was that like?

The cancer stages were standardized in the 1930s. There wasn't any Internet---- The standards have not changed- Stage one is still "in situ" which means in place, there are not hardly any cancer cells-maybe a half dozen or less. I know people "in Situ" that had only 3 cells, but they were monitored, had check ups.---because cancer is still cancer.

You can go to a university medical library, one of the big cancer clinics like Sloan-Kettering, MD Anderson, etc. and find these stages in books- books with paper, and the first editions were written and published by the NIH in the 1930s. NIH- National Institute of Health, which researches and sets standards for medical care, definitions of disease, records that more American women die from lung cancer than any other way in the US. You are free to go to NYC to see hard copy-books with paper pages at Sloan-Kettering. SK is known for the easiest access to medical journals, text books, epidemiology, etc. Or go to Bethesda, Maryland.

You can do a YAHOO/GOOGLE search for NIH, they have 27 campuses across America. They have a link where a person can request literature. I'm sure that they would mail you the stages of cancer.

Good luck on your journey----

Hey there ! How was the radiation treatment ? I start next week- not sure I can keep still for any period of time !!

Hey there ! Well I saw my oncologist today as last Abraxane is later this week - can't get excited about it as I know the side effects that follow- and i think I'm going to start Tamoxifen at some point during the radiation ( I have another appointment with her - she's really nice but I long to no longer have oncology appointments - not going to happen but no harm in hoping.) how are you getting on ?