helenrosen

Activity

  • Carol-Charlie
    Hello Helen - I'm so glad you're doing so well. I was also Stage IV and given six months. That was Jan. 25th 2006,,,, and here I am in 2014 and doing well. God has blessed us both just one foot in front of the other and we're off towards 90... I've only got 19 years to go.... But God is good and loves us... we'll both make it.
    June 2014
  • meyati
    Hi Helen--I wish you well.
    June 2014
  • limbomom
    Strangely enough, I didn't have this problem. The surgeon told my family and my husband told me that it was ovarian Stage IV and I had 6 months to live. My 2 children and their spouses were in the room but I knew something was up because the grandchildren were NOT there. That was September 30, 2011 and here it is June 12, 2014. As hard as it is right now, it is important to remember that ovarian does not carry the death sentence that it used to. Your family loves you and will want to support you. It's OK to be pampered sometimes. Keep us posted and Good luck!

    PS - I worked in Washington DC for years and loved the Silver Spring area.
    June 2014
  • Diansky
    Helenrosen, wishing you the best. Surgery is painful at that immediate moment of getting up, walking, etc, but it is not impossible and improves quickly. Once your improvement starts, you begin to forget. Be an advocate for yourself, your comfort and pain. They will understand and try to relieve you. I found that trying to understand the nurses' limits of what they can authorize and voicing that to them helped us all. The pillow on your abdomen suggestion was a good one. It will give you more confidence in your movements. The suggestion to allow pampering was excellent. Just say thank you. Hang in there.
    June 2014
  • DaveWaz

    Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

    Wishing you the best.

    David
    Founder, WhatNexter
    June 2014
  • kalindria
    Hi Helen,
    I have a similar diagnosis to yours and just wanted to welcome you to the site but also to say that you're in a terrific place for information, resources and connecting with great people who are only to happy to share their stories and experiences. If you have any questions, I'm happy to tell you about my experiences as is everyone else here. And don't be shy, we talk about almost everything here.

    Hope your treatment has started or will start soon and is going well. Take care!
    June 2014
  • GregP_WN
    Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

    https://www.whatnext.com/conditions/cancer/ovarian-and-fallopian-tube-cancer

    There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

    Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

    Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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    GregP 3X Survivor
    Team WhatNext Community Mgr
    June 2014
  • SueRae1
    I am honored that you have chosen to follow me and would like to welcome you to WhatNext. I'm sorry you needed to find us, but now that you are here you will find the greatest bunch of supportive people whose combined knowledge is awesome. We can answer your questions, hear you vent and celebrate good news with you.

    I see you have begun exploring our site and look forward to learning more about you and your journey
    June 2014
  • Lynne-I-Am
    Yes,it was hard to tell my family also and my friends.For me I somehow felt I let people down,sounds silly now.I have a very strong husband who told me from the beginning we were in this together. Once everyone knew I was surrounded by caring concerned family and friends.My primary physician diagnosed me with depression and placed me on a mild antidepressant and to my surprise it helped. EVerything. happens so quickly once you are diagnosed.Wishing you all the best on your surgery.You and your gyn/onc will find out what stage you are and a game plan can be made.Don't hesitate to communicate with the What Nexters about anything you are feeling.or want to know.We are all here for each other.Keep us updated.
    June 2014
  • carm
    Welcome to the WhatNext family. I am an oncology nurse and I am always available to answer any questions you may have. There are many here with similar circumstances willing to share their experiences with you. Best of luck to you, Carm RN.
    June 2014
  • Lynne-I-Am
    Hi, welcome to the site.My family found this site for me last year when I was blindsided by a diagnosis of cancer,stage IIIC ovarian.I know when I first found out couldn't stop crying and was placed on a very mild antidepressant by my primary physician.The med. helped. Everything moves quickly after diagnosis.I had a chest port put in,chemo to shrink the tumors then more chemo and reached remission.I have been in remission now for three months.Very important you get a good gyn/onc to treat you.You have to have confidence in your medical team.Thr journey is not easy but as several ladies told me when I joined this site,IT IS DOABLE.Ask questions,share experiences,we are all here for each other.Take care,talk anytime.
    June 2014
  • ROSEMARY-142131
    HI, I AM SORRY YOU HAD TO GET THIS DIAGNOSIS. THERE WILL BE SO MUCH INFORMATION AND SO MANY THINGS TO DO. TAKE EACH STEP - SURGERY, CHEMO WHATEVER AND LOOK AT IT AS JUST THAT - A STEP TO HELP YOU FIGHT THIS DISEASE. I HAVE BEEN FIGHTING FOR ALMOST 2 1/2 YEARS. I SEEM TO BE ONE THAT HAS TO HAVE CHEMO TO STAY IN REMISSION. SO - THAT IS WHAT I DO. AND I TRY TO KEEP LIVING AS NORMAL AS POSSIBLE. STAY STRONG AND YOU WILL BE IN MY PRAYERS.
    June 2014
  • AnnieS
    Dear One,
    I am fairly new to this site, but any time I can read others experiences it is comforting to know I am not alone in my journey. You are not alone. If it takes chemo to stay in remission, that is hard, but it is an option. I love options. For me, changing my eating habits, exercise (and lots of days I want to skip this one but doing it is huge in how I feel), avoiding stress as much as I can, and ten minutes of deep breathing a day all play a major part in how I feel. It empowers me to know there are things I can do that make me feel better. God bless your journey, give you peace, and fill you with wisdom.
    June 2014