SullyJackson
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Could I get you to drop in on this new member and offer some encouragement?
@melissa65
i am so afraid and don't know what to do. any advice would be welcome.0October 2014 -
Sorry to hear about your newest diagnosis Sully. I hope that your treatments will get better!!!!! Why are they giving you chemo and radiation at the same time? Did the COPD and the lung cancer stem from your previous breast cancer?0September 2014
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Welcome to the site. I am sure that you will find this a friendly place to come when you need someone to talk to. We are all in the same boat when it comes to emotions and feelings about our health. Just know that no question is to silly to ask and if you need to vent because you are having a bad day, we are here for you. I hope you find this site as helpful to you as it has been for me.0September 2014
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P.S. I am trying to post a Financial Resource list that I have been putting together for this site, it has a few on there for people without health insurance. Please keep us posted on your progress. Prayers and love, Yvette0September 2014
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Hi SullyJackson.Just read your journey and seems to me there should be a statute of limitations on cancer recurrence.I guess we we will be looking over our shoulders the rest of our lives.I am so happy you are able to get the chemo and radiation to fight this ugly disease back into submission.You seem a very upbeat lady and I wish you better days ahead.0August 2014
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Sully, I am new to this, cancer and posting. Is there a way to ask about your journey? What were deciding factors for treatments? I apologize if this is too direct, I do not know the protocol here.0August 2014
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Hi, Sully -- I found these caregiver resources to be very helpful:
http://www.caregiving.com -- very active grassroots network. Holds #carechat tweet chats on alternate Sunday nights. The website has podcasts, webinars, groups, forums, chats, resources, and much more.
http://thecaregiverspace.org/ -- another excellent grassroots network, also with resources, webinars, chats, forums, etc.
http://www.caregiver.com -- more corporate than the other two but also a good source of support. Sponsors one-day Fearless Caregiver Conferences across the US, free to family caregivers.
I wish you and your husband all the best.0July 2014 -
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You are not alone. My husband was diagnosed with stage IV lung cancer with 4 brain mets about 7 months ago. He received a terminal diagnosis 12/27/13 at the hospital on the day he was admitted for an emergency crainotomy to remove an egg sized tumor that was metastasis from a primary 6cm lung tumor. Keep the faith and hang around this group, we've got plenty of help and hope to offer! My husband finished with whole brain radiation, chemo/radiation & follow up chemo treatments that have shrunk the tumors and he is feeling well. Live Each Day ~ Love Each Other! ~Kim0July 2014
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You need to find out if you have any mutations on your tumor pathology testing such as EGFR or ALK. This testing would/should have been done on your biopsy at diagnosis.
If positive there are targeted therapies that may be used.0July 2014 -
Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.
Wishing you the best.
David
Founder, WhatNexter0July 2014