Yvette0516

Thanks for connecting, Yvette!

Yeah, Georgia and NM seem to be at the front of stupid medicine. Right now both states seem to be saddled with models and programs from Stanford that is supposed to address our pain and addiction. I will say that Georgia has ended some of these programs quicker than NM.

One was to address chronic arthuritis and cancer pain that gets up to a 6 by saying the alphabet by flowers: Aster is for A, begonia is for B, Carnation is for C, Daisy is for D. Or subtracting 3 from a 100, 100-3=97, 97-3=94. That is supposed to enable us to get up and vacuum, mop, and wash windows.

I have bad IBS-D, and my dailey generic med is being held hostage. I'm trying to find something for an alternate or that will help stop diarhhea. They are so stupid. Some meds don't work, so they won't try to help me find something that will work, because I'm over the age of 68. They are just stupid---

Thanks so much for the responses. ACS lists a local MM group which met yesterday at the Center for Building Hope. The group meets monthly; so I will try next month thanks so much for your help.

Hey Yvette.....Glad to hear from you. I TOO believe that there are WAY to many Cancer Patients and why that is so is not clear. I do have a few ideas but that's for another day. I think you did the wise thing about reconstruction BUT You can always do it later if you change your mind. I'm now 19 months from my D Day and still ok but the emotional toll of worry and stress is almost overwhelming some days. I go up and down. I've had 3 large lymph nodes in my left groin completely go down but the nodes on the right side of my neck are still in Party Mode.....they make me nervous and I HATE THEM. The other side of my neck is down considerably. SO .....not sure of all the nodes INSIDE like my spleen or abdomen or under arms deep inside or any spread to other organs as I haven't had another Pet Scan in over a year. I still see my original Biopsy Surgeon who agreed to see me as a PCP after I told him I wasn't going to go to an Oncologist for any treatment. He took our one large node in my groin over a year ago and ordered the Pet Scan and a few Cat Scans when I had some symptoms.....but NOW mostly it's mental and emotional.....HE is a wonderful Doc and I go there for some other things like an infection on a finger for antibiotics etc. He told me MOST PCP's wouldn't take me on as a Patient if I had cancer and wasn't under the care of an Oncologist and I'm lucky to find him. Mostly he is caring and holds my hand and is my cheerleader. Still on all plant foods except a piece of salmon and a sweet potato on Saturday Nights out with my wife.....I've added some Whole grain crackers and Manna Bread when I lost too much weight but have gained 7 pounds back and am up to 151...SO that's my story....Have a new pain in my knee and OF COURSE Every new ache or pain I think the cancer has spread there.....lol....Cancer is the gift that keeps giving. I don't know HOW all you guys take the poison and radiation but I admire your grit....Just wasn't right for me as it didn't make sense to put poison in my body when I was sick....I take a green drink everyday and 6 anti cancer supplements....Good Luck and keep in touch. Check me out and like me on Facebook.....Barry b d b u t l e r @ c e n t u r y l i n k . n e t

Yvette, I came across your profile via an answer you gave Barryboomer. Re: the taxol - it's nasty stuff! Glutamine powder should help some. And when you're done with chemo, start on a good detox program. It is amazing what the detox can do in as little as one day! My neuropathy subsided in about 9 months, however, I have found that when my diet is not as clean as it should be, the neuropathy comes back a little (I didn't stay on the detox all 9 months and use it now when I get flare ups). Also, stay strictly with water and herbal tea. They help flush the crap out of your body. I hope you are doing well.

Have you read about Breast Defend? I hear it works!

It's Ok that they are in Questions, it's a little lengthy, but that's ok. You can post an update without restriction on how long it is. Next time you find some good stuff just post an update. Still, no worries, thanks for posting all of those, there's some good stuff there.

Thanks for the Great Comment back to me.
I only wish the best for YOU...
Barry

Hey Yvette....Sounds like you're doing the best you can. Hope everything will work out and keep in touch.
You can check out My Profile and Journey Page if you want.
I'm doing the best I can and I HATE CANCER....lol
Barry

Hi Yvette,
I see where you are having a really bad day and I'm sorry. Hope it gets better and some money comes your way.
Have you ever checked out this site below and his facebook page/
ALSO a wonderful new book called "RADICAL REMISSION" is terrific.
Hope you don't mind me mentioning this but thought it might help a little.
Good Luck!
Barry

http://www.chrisbeatcancer.com/

Thanks for reading my answers. I just try to give some advice that I have learned thru my 63 years! Wishing you well, remember we all are in this "thing" together! Hugs, Barb

I just read one of your posts and noticed that you are triple negative too. I am nearing the end of my treatment - July 3, but who's counting? I wanted to encourage you to give it your all. It's tough, but it may just save your life. Zofran gave me horrible headaches too. What chemo drugs are you taking? Maybe emend would work for you. It's an iv drug for nausea that worked great for me. I did not have any gastric side effects after I got it with my infusion. Losing my hair was really tough for me. Being intellectually ready is not the same as being emotionally ready. I know. It gets easier but at least the itching stops and it isn't falling out all over once it's gone. Grieve when you need to. You are dealing with a lot. Just focus on each day and do the best you can.

Hi Yvette. I see that you've chosen to follow me. If there is anyway I can be of assistance, please let me know. Although I was diagnosed w/a different type of cancer, some experiences are almost universal. My hair hit the floor, too, for instance. Also, please be aware, I sometimes act as comic relief, as my sense of humor got me through treatment. Stage IV but approaching my second anniversary

Yvette,
Thank you. I tell myself those things everyday. Some days I just can't do it. I have a husband that is not supportive. He was when we first married 25 years ago. He has his own health issues too. I so believe in do unto others as you would have them do unto you. But that is me. Hubby does.not agree. Last week was a tough one. If I was not doing my part I would kick myself in the behind. But I push everyday. Thank you for understanding. It meant a lot that you reached out to me. Today is another day and I will push on.

Hugs,

Jane

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Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter

Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/breast-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

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