GregP_WN

Activity

  • geekling
    er, XXX-o is hello
    July 2015
  • IronMom45
    How is Whatnext Facebook and Whatnext here different? If at all? I see on fb version real names etc.
    July 2015
  • Anonmouse
    Hello Greg, I need to completely unsubscribe or change user name.
    Thank you for all your help on this site.
    June 2015
  • Ps8285
    Greg, I'd like to exchange emails with KrisWalker
    June 2015
  • geekling
    Hi;

    How are you, Greg? Hope all is well.

    Have you news about lilymadeline, by chance?
    June 2015
  • pfcresearch
    hi, greg. i hope all is well with you. you and i discussed a study i was fielding, about two years ago, on the subject of bladder cancer. well, we have another client for the same subject, and it has been absolutely impossible for us to find anyone. do you think you can help? we are hoping to invite 7 people to participate in a one-hour telephone interview. each participant will be paid $150, as a thank you for their time. of course, i would be pleased to make a donation to your support group, as a token of my appreciation.

    i can be reached anytime at 212.289.0087, or via email, of course, at pfcresearch@verizon.net.

    best regards,
    david
    March 2015
  • meyati
    It posted---If my son passes before me, I'm headed to Mexico, where I can walk into a lab and have my thyroid checked- get a strep test-instead of having strep for 5 months like I did after radiation. I can go to a farmacia and buy my own antibiotic and thyroid. I can go to a doctor-and say- please cut this funny looking thing out and they will or would have. As long as you avoid a border town, you get pretty good care. A bad doctor is a dead doctor.
    June 2015
  • meyati
    For some reason- there are times when the link is dead--I try later, etc. Nonnie got hold of me-she thought that I was blocking her or something wrong with her computer. So, we'll if this is a live link. I am so frustrated. I saw mt dermatologist- and my skin is not prone to skin cancer. I should have had other BCC hit me by now. The only conclusion he and the oncologists can come to is that fishing, and wearing a floppy hat reflected the UV rays to my nose. And doctors looked at it for about 30 years. I had it absolutely for sure iby 1990. One grandson was born in 1986- and i'm pretty sure that I had it then. So is my family. I pull weeds in a tank top with out a hat- Sunblock gives me rashes, sores, pores oozing blood. i hate sweaty shirts. My doctors just say- why didn't someone remove it for you? You saw some of the best dermatologists in the nation--so here I go- with my post.

    90% of my health problems have been caused by American doctors. I think that there is something wrong with them. RSD from a botched breast biopsy-I tried to get them to amputate my fingers. They were black and flopped. Incredible pain-the NIH and AMA call it the suicide disease Then Statin Toxicity from PREVENTION for cholesterol control. It even attacked my Achilles tendons-one ruptured. Everyone is surprised that I'm not on a walker and not having kidney dialysis. That gave me neuropathy too. At least that doctor put on my drug allergy list that I get seizures from that. I just got tired of being nagged, I thought that I'd get a rash or something- not permanent tendon damage and have constant BUN-CREATININE to monitor my kidneys. I've had hypo-thyroid for years-and these modern doctors can't read labs and overdosing me- then instead of adjusting-lowering my thyroid, they wanted to put me on BP meds. Then they ignored my cancer that sat on my face for 30 years. Now it's incurable rare.
    My oncologists agree that I would have had better care in Mexico. I've had a bad stomach since I was a kid-but avoiding sugar, fat, vegetables and fruit keeps me out of the hospital and ER. I've been bent over and scoped so many times, it's not funny. The statin left me with dehydration problems, so I eat a handful of potato chips each day. A French doctor that I dated told me to do that. I was going into the ER all of the time-and the jerks told me to drink water. How stupid is that? Medically, it's called hydration salts. Should a person that has IVs all of the time for dehydration really need to consult with a French Medic Sans Frontiers in the Sudan to solve this health problem? They snarl- Medics and I snarl, I dated just one- not all of them
    June 2015
  • living1963
    I have not been receiving my what next digest. My old email account is closed and I don't know how to change the settings to insure I am still connectect. Can you help a brotrher out
    June 2015
  • gonewest
    Hi Greg. I have not received any notifications since the 18th. Help.
    June 2015
  • shadow
    When it comes to the "right to die" laws, I am in favor of it and it should be allowed in all states. As a person we have no say in when we are born! But when a person is suffering from extreme conditions such as pain and there is no cure but the administration of drugs, that person should have the right to decide how to end their own life peacefully and in dignity.
    I watched my mother die in slow pain for months which resulted in a morphine death.
    All she wanted was to end her life quickly from the beginning!
    June 2015
  • Nonnie917-89591
    Greg, could you please give my email address to TXhills. I asked for her pancake recipe. Thank you. How are you?
    June 2015
  • adf3
    Greg...I'm responding to your request re: Stage III/IV disease at DC.
    In July 2013, at 59 y.o. I had reached a point where combined symptoms of dry cough, decreased ability to run/walk, multiple areas of pain (mostly in areas where I'd had pain for years), easier fatigue and rapid weight loss drove me to see a Rheumotologist friend. After his exam he told me to get a CT of the chest. He diagnosed me with polymyalgia rheumatica but, advised me other things cause PMR.
    By the way, I am an oncology physician assistant.
    2 days later I had a chest CT....showed two right lung tumors and diffuse bone mets in spine, and ribs. By the way, I read my own CT report on the computer....not a good idea. My supervising physician had just gotten off the phone with the radiologist and ran up the hall to my office to see me in shock from just learning I had Stage IV lung cancer.
    Fast forward....biopsy 2-3 days later...NSCLC. About 5-6 days later I got a cycle of Alimta/carboplatin. A few days later my oncologist ( Dr. David Spigel ) called advising me my genomic tests showed I was EGFR+ !!! I was on Tarceva for over 21months with very good response to that point. About 2 months ago my CT chest showed recurrence in the right lung. Dr Spigel put me on a study drug ( CO 1686...,Roeciletinib, a third generation TKI ). I've been on it for 4+ weeks and feeling great!!! All of my symptoms of fatigue, cough (with blood in sputum) and diffuse aches have totally disappeared. I have my first CT scans in 4 weeks. I'm guardedly optimistic looking forward to good results.

    May 2015
  • shadow
    Hello Greg,
    Thank you for writing me. I will use the web sites to help with my condition.
    Steve
    May 2015
  • concernedchild
    Please unsubscribe me. Thank you.
    May 2015
  • timetolive
    THANK YOU <GREG!!
    May 2015
  • meyati
    Greg, I clicked stop following about that question by AudreyRose and her quest for info- I did that yesterday, but I'm still getting notifications. I've successfully done this before, where the basic answers are given, and not the same people, but everyone is basically saying the same thing.
    May 2015
  • meyati
    Hi Greg, is there anyway to remove my Journey? I'm on of the people that told AudreyRose that she can use my info. I should have asked you about this, but I didn't. I blocked her from my home page and journey a few minutes ago, and I stopped following her question. This got me thinking about whom I want to share with.

    One person said that AR contacted her and asked questions, but some of us- like BarryBoomer are wondering-and asking questions.

    I often think that the person is doing a sociology or mental health research on how gullible cancer patients are. I expressed this POV on AR's asking for help.

    Thank you for trying to take care of us. Your admirer--Meyati.
    May 2015
  • DorisT
    Thank you so much for you reaching out to me. I contacted the site you suggested and they do have volunteers if I need a ride for treatments. They are also going to set me up with a volunteer In my area a there are no support groups. This will help me make an informed decision about further treatments. You are my angel today.
    May 2015
  • BobStewart412
    I emailed you back. will you help me with finding T-cell Acute Lymphoblastic Lymphoma? i only see "Precursor T-Lymphoblastic Lymphoma/Leukemia" mine was full blown.... and i see "Acute Lymphocytic Leukemia (ALL)" so i see ALL's just not the one i suffered through....
    May 2015
  • audreyrose
    Hello, I'm new to this website and I was instructed by multiple people to have you "connect" our account or exchange our emails. Is this how it works?
    May 2015
  • timetolive
    Greg, I heard there is a credit card specifically for cancer patients. Have you heard ? For expenses and other bills? Connie
    May 2015
  • thestarr
    Okay now I got the ribbon but I don't know how to put it on my FB page. I downloaded it to save it but I don't know what to do from here. Is this something you can help with?
    May 2015
  • nonnie917-98021
    Greg, I am having problems signing in with my information that I have been using since I signed up with this site. Can you contact at my email address and tell what is wrong? I had to sign in through FB in order to get in.
    May 2015
  • razewalk
    Hi Greg
    It's not clear to me how to make a media post. Perhaps only you can? At any rate - I just LOVE these cards that came to my attention tonight. I searched high and low for different cards when my daughter was in treatment and just couldn't find decent cards. Funny that you just asked about giving cards and if that was a dying custom. Check out the cards here:
    http://emilymcdowell.com/collections/cards/Empathy-Cards
    May 2015
  • thestarr
    Greg, I know I asked you before, but I can't find the link for the ribbon that represents throat cancer. Could you please repost?
    Thanks so much.
    April 2015
  • Viking
    Thank you for the amazing job you do on this site. I'm glad you liked my post this morning. Sometimes people are "frozen" when they first get a diagnosis and just need someone who has been through it to motivate them.
    April 2015
  • proudmary
    Hey Greg - really good advice!! I found your "wall" right away. Thank you.
    Mary
    April 2015
  • Ydnar2xer
    How are you doing, Greg? I hope you are doing terrifically well! Am hanging in there, myself. Since my second diagnosis, (now almost THREE years ago), I've been working to scratch those things off my bucket list. Last summer, PUERTO RICO! And always trying to refine & improve the Ydnar! (Impossible though it may be, LOL!)
    April 2015
  • timetolive
    Greg -here's a link for you. Stronhold Ministry.org. If you know someone battling cancer ,that would love to receive a gift basket. Please access their web page to see.
    April 2015