GregP_WN

morning,

could you please resend me the link to answer the prostrate question

jim

Hi Greg,

Hope your Friday has been going well.

I've had some decisions to make today so here's the score... results of PET scan shows I'll need surgery to remove recurrent SCC from base of right tongue and soft palate area and remove lymph neck Levels I-III. Stage II
After surgery I'll need chemo-radiation to tongue base and soft palate area. (not sure how much treatment)

Just needed to tell someone who has has a journey too. I'm ready and hoping for the best.

Thanks for listening. Carlie

would be more than glad to answer the prostate cancer question
you asked about
give me some time to get it done for you.

Do you know why my question disappeared?

Thank you, Greg, for your kind words.

Oh, yes, I just saw the post about the scan appearing to be good but waiting on the "official" word. (I had already "liked" it. Where is my mind...? :-/ ) Anyway, have you received the official word yet?

Hi, would you believe that I got 2 letters from the complaint department about Urgent Care not being urgent? One said that this is a concern and many other people complained, and the other letter said that I need to get with the program. Urgent Care will strictly be appointment only. I hate the word allow-- If you walk in WE ALLOW YOU TO RETURN HOME UNTIL YOUR APPOINTMENT--That was my complaint-they tried to force me to return home. If I wasn't sick, I would not have gone there.

Hi, would you believe that I got 2 letters from the complaint department? One said that this is a concern and many other people complained, and the other letter said that I need to get with the program I hate the word-- If you walk in WE ALLOW YOU TO RETURN HOME UNTIL YOUR APPOINTMENT--That was my complaint-they tried to force me to return home. If I wasn't sick, I would not have gone there.

I'm a bit behind on posts... You had a scan recently, yes? How did it go? Do you have the results yet? Thinking of you.

Greg definatley get a second opinion. I will add as the mother of a spine injury disabled vet, that degenerative bone disease often causes pinched nerves, new strain on muscles, etc.

Try to get a back or pain specialist for that pain.

I know what you mean about droning on and on about what you already know, like all about the heart pumping blood.. I have a deal with my PCP--I nod, and she happily goes to the next step-she just skips the brain numbing lectures. I make a deal with them that if they skip the baby talk- I'll give them great patient satisfaction scores---

Urgent Care. The oncology nurses asked me how I managed to get 'walk in' in Urgent Care. They treid to get an elderly patient into Urgent Care. She needed Urgent Care. She couldn't see her primary care. She wasn't sick or rich enough for hospitalization. She didn't have the money for ER visits. I didn't ask what happened. I told them that I showed up, and I told them that I was sick-and I was there at that moment check me in.

Greg, you are the only one that gets it about Urgent Care.

I have some mental problem where I don't want to go to a doctor when I have pnuemonia or something really bad. Then yesterday my temp was 97.7, which is normal for me. That makes it very hard for me to get care. I've been discharged while sicker than a dog. A few days later my family dragged me in, and I'd be readmitted. My husband and daughter were really good about this. Even with both of them, nobody wanted to see me at times.

My son and Levi aren't tuned into this. I'm on my own, and I don't know if I'm sick or not. When my stomach has digestion problems, I feel hot and feverish. I start feeling feverish and sweaty before my stomach is noticible.

Yesterday, the clinic was mostly filled up with diabetics having their problems- and I was on the --hit list as usual.

Good luck with your scan tomorrow. Sending you positive energy.

Good luck tomorrow!

Your site has helped me to understand many aspects of my illness.
What I am going to state below is real and serious.
Suddenly, my situation in what refers to the treatment and place where to carry it out has changed dramatically. The doctor that has to do with chemotherapy considered that I was too weak and I am not going to be sent to the place where I was told I was going to rest after leaving the hospital. So I need a place to stay and I wonder if I can address it to a member of the community who has vast resources and can offer me a shelter in a property in exchange for my job. Or offer me a job that I can carry out online. I am weak and in pain while sending this message to you and, I cannot deny it, very nervous.
Please let me know how you think I can address this within the community.
I am currently living in California and I am a Programmer Analyst. But I think that my age is not precisely the standard in companies. I am more than 50 years old. So I need to depend on contracts. I looking forward to go to any place or work for anybody who can help.
I also want to know about people who have requested second opinions in what refers to oncology diagnosis. Have they done it through the same facility where the first diagnosis was done. Have they used another company or institution? What is the standard in the request of second opinions?
I hope that, as in other cases, this community can help.

Nice to meet you and
Thanks for having me!

Greg I downloaded your book to my Kindle reader app on my IPad and everything worked fine and I started reading it. Now today I went back to read it and it's not there. It shows up on Amazon that I ordered it and when I try to deliver it again, it doesn't work. Is there a way I can just buy the book? I really want to read it since you and I had a lot in common with our cancer.
Thanks,

Hello! I've been trying to edit my diagnosis to show only ovarian cancer, however, it keeps including Fallopian Tube. I would like to update my cancer diagnosis. Could you please help me? Thanks.

Hi Greg,

Wayne Lindgren here and my screen name is Mistymaggie--I need to change my email to w1wbl.usa@gmail.com ----- can you do ?

Hi Greg
How are you doing

You seem like go to guy. I'm coming to you for inspiration!! I hope you can steer me in the right direction. I don't now where else to try. I need to work from home after having cancer and open heart surgery 18 months apart. But everywhere I've looked turned to scams. Are there any stand up honest people any more who are willing to give someone such as my self a chance? You seem to know a lot and have contacts out there if you could help me with a oppourtunity I'd be estatic. I'm not looking for handouts just something I can do. Thank you humbly Linda

Hello:
I went to the websites that originally provide resources for fundraising and created a couple of websites.

Is it OK to mention your website for fundraising while explaining my latest symptoms ?

I am in pain now and my capacity to do different tasks is very limited. I am depending on creating websites, do some graphics work or videos. So I am trying to create networks to work online or receive donations online.

As I go on with this journey, I realize how important economic resources are.
Hope you understand and can give me your best advice.

Hi Greg, I enjoyed your book and learning about your journey. You're are great inspiration on this website!

Greg, did you write a poem in the Spring 2016 issue of Cure magazine?

Dead link for me--Yes to weakness, nausea, and now, since radiation, feeling sort of ligh-headed. I feel like I'm not breathing in enough air. Make sure that you aren't dehydrating.

Heat makes for trouble sleeping, and now it makes my nose-lip hurt. Then cold now does the same thing, especially making the f

Hello Greg, it is Elephant.
I saw my Oncologist on June 1st. He has given me a 1 Mon. reprieve from my anti-E medication.
Just starting to feel "normal" now June 12th.
In the mean time I have sent my PET/ and CT X-rays/ with written reports to an Oncology Breast Cancer specialist in Montreal. (He is a son of very close friends of our family). I watched him grow up.
We have spoken by telephone X3, He has a wonderful manner.
Very easy to talk to, his wife is a Radiologist.
They will likely come to the same conclusion as the specialists here. However it does not hurt to have fresh eyes look at my results.
I am also seeing my family Dr. to have blood work etc. and to see if we can trig my other meds. in preparation for my return to the anti-E medication.
I am afraid I can only empathize with your hot humid weather.
We have had only a few sunny days. The rest very cool, rainy and damp. I should not complain. At least we are not in a drought situation.
I love your HOPE poster.
There are days we really do need to be reminded. Especially today with the slaughter in Orlando. HOPE encompasses more than Cancer.
My thoughts and prayers are with my American friends.
May their next stop not be close to my home.
Take care, stay well, Elephant.

I saw your latest post about thinking long term and planning your life. I am surviving cancer and unexpectedly going through a very hurtful divorce. My husband cheated on me while I was taking a new chemotherapy. He said he always knew I would be okay. Does that mean it is okay to cheat on me and our family? I am trying to move forward with managing taking chemotherapy and in addition moving forward without my husband of 28 years. I am concerned that the stress of my life can negatively affect my body and recurrence. I try to mentally visualize my future but it is very difficult. I appreciate your posts and read them frequently. Thanks.

Hey GregP_WN, Larae55 would like to talk with me. How do I go about getting my info to her? You have my permission to give her my info. Thank you so much!

Hi, Greg. I don't know if Amazon notifies you when someone posts a review about your book or not but, in case they don't, I did read your book - which I really liked! - and posted a review.

Greg could you please provide Jocelyn from Lake St. Louis, Mo. my Email address. We would like to communicate offline. We live close to each other and I think I could help her get through some things. Thanks for all you do!!!