Lillyzz

Activity

  • LiveWithCancer
    Hey Lillyzz!! Just saw you response on survivorship ... WhooHoo!! Congrats! I might already know this (or should already know, but my brain is a sieve), but what treatment are you getting. It thrills me so much when I see more and more of us with late stage lung cancer beating the horrible odds!! Anyway, biG congrats!!!
    May 2016
  • PennieEckard
    Hi Lilly, I have the same cancer. I also am on maintenance chemo. I lost track of how many rounds, it's somewhere between 50-60. My daughter were keeping track :) Chemo brain hit me.....
    I'm happy for you.
    June 2016
  • Journey
    Hi Lillyzz,

    Sorry that you have to go through this unfortunate adventure. The road may get scary and rough, but know you are not alone and you have come to a great place for support and understanding. WhatNext is really wonderful. Ask any questions or concerns you might have, and someone here will probably have a helpful answer for you.

    I was diagnosed with stage IV, Adenocarcinoma, Non-small cell lung cancer four years ago and have been stable ever since. My treatment was open lung surgery (removal of lower right lobe) and chemotherapy (Cisplatin & Navelbine, and Zometa infusions (not a chemo) monthly for my bones). I feel very lucky to be alive and doing very well. Try your best to stay positive and hopeful.

    My best wishes to you.
    November 2014
  • marcscohen
    Hi I hope your feeling pretty good after the chemo and radiation
    October 2014
  • lilymadeline
    Hi Lizzyzz, Thank you for following me! I’m so sorry that you are stage IV as well, but we both get through this battle that we both have with ‘chronic cancer’! Good luck to you and God bless!
    October 2014
  • Lipi
    Hi. You are about the same age as my sister who is also at stage IV. What treatments have worked well for you? Thank you
    July 2014
  • GregP_WN
    Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

    https://www.whatnext.com/conditions/cancer/lung-cancer

    There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

    Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

    Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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    GregP 3X Survivor
    Team WhatNext Community Mgr
    January 2014
  • DaveWaz

    Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

    Wishing you the best.

    David
    Founder, WhatNexter
    January 2014